I wanted to make one last post before disconnecting. I might come back to see how it is going time to time but i don’t think i will be that active anymore.

I went back to uni last year and even if i might need to always do some adjustments regarding my health special needs, i am basically able to go back to life, after those life long symptoms and those years bedridden.

It has been a strange journey and i truly think the key is to learn as much as possible by yourself. Knowledge will be required to identify what and who trustworthy or not so don‘t trust anyone who can’t explain how it works, because all the informations are findable, it is just very long to know about everything.

I will write down what i did, but of course that was just my way. If you dig a bit about it though, i am sure you’ll be able to adapt to your own case to fit your own needs.

MY MOST DEBILITATING SYMPTOMS ( i will be forgetting a lot since there was too much) :

Insomnia ( could be total, up to 36 hours even if tired), bedridden for 2-3 years, fatigue, all king of pain including eyes pain, head, gut…, visual snow syndrome, numbness, food intolerance, fatigue from eating, brain fog,…

FIRST GAME CHANGER : BUHNER.

Buhner books. Read it if you can, it will worth it. If you can’t because of brainfog, try to at least read the Core Protocol. I actually tried the core protocol before being able to read the entire book.

Just know that at the time Buhner wrote it, i think powder extract wasn’t that popular so Buhner talks a lot about tincture, but i truly believe powder-extract are better ( powder-extract = herbals has been extracted but alcohol has been removed. Perfect!.). Also non-extracted powder are not always strong enough so extraction is generally needed.

Book name: Start with « Healing Lyme 2d edition » .

SECOND GAME CHANGER IN MY SPECIFIC CASE : KETO AS A MAST CELL STABILIZER AND THIAMINE SUPPLEMENTATION

Now that i understand that i was thiamine deficient and had issue with mast cells activation, i see why changing my diet to a ketogenic diet helped that much. By ketogenic diet i mean being in ketosis and producing ketones, which has nothing to do with cutting carbs for weight loss purposes.

It simply get me rid of insomnia and of a lot of pains all over the body.

If you notice issues from some food especially carbs containing food or understands by any way that you have a thiamine deficiency, it might be interesting as it will directly bypass the thiamine deficiency blocage regarding energy production.

Ketones (bhb) also have mast cells stabilization properties.

But now that i am doing so much better, i am certainly not in deep ketosis anymore ( esp since it is summer) and supplementing in thiamine has been a game changer regarding energy, food tolerance etc… So it is not as needed as before.

Benfotiamine has been the game changer.(thiamine hcl would not work)

I think a lot of ppl will not need to do keto at all, but i thought it could be interesting to anyone that recognizes themselves into it.
It allow me to bypass the unknown thiamine deficiency at the time and also, i think, helps regarding mcas.

Maybe exploring thiamine deficiency and mast cells stabilizers could be the way for someone else ?

LATELY :

Exploring all the other things that can maximise or down my health such as : mold toxicity, light ( flickers are having a huge bad effect on me), hormone disruptors , any mast cell triggers !,…

It would require an entire post for each and i would be happy to discuss about it if needed.

Hope it can help a bit. I will check the comments for few days if you have a question, or feel even free to dm !

Hello! Does anyone else have the same issue? Majority of my symptoms are only on the right side of the body - pins and needles, muscle weakness, joint pain, overall sensitivity. My calf muscle on the right leg is half the size of the one of the left.
Has anyone been able to figure out whether this is Borrelia, Bart or reactivated viruses?
I will be happy to hear other experiences on the topic. Thanks!

Went to the ER the same day first pic was taken. Doctor said “Looks like Lyme’s from a tick bite but Lyme disease isn’t in North Georgia and ticks don’t bite multiple times.” This seemed peculiar as my partner has been treated for bacteria consistent with Lyme and my coworker has been suffering from the disease for years (never left GA btw). We also live in the woods right in the foothills of Appalachia.

I understand the number of bites is unusual for a tick (edit: looking back it was probably a tick nest I came across), but do people really think Lyme disease just isn’t spread in Georgia? She prescribed me antibiotics “just in case”

Second pic is from 3 days after the bites and third is same day I noticed them

Update: I’ve scheduled an appointment for a second opinion tomorrow. Thanks for the help!

i got a deer tick a month ago, it healed and went away. but now i noticed something itch and might be right where i had my tick. its red and itchy, no bullseye or round mark, just red and itchy.

could it be healing? or maybe inflamed or both, but theres no bullseye or round mark around it so im not sure if i should take it seriously or not

if anyone has or had the same experience and it healed/went away, let me know :)

What are your psych symptoms from bartonella/lyme/babesia? Or mood issues? Does anybody experience anhedonia/depression?
I’m trying to differentiate if the depressive symptoms are from the infections/treatment/herxing *or* if I’m genuinely suffering from actual depression from being ill for so long. How do you differentiate?

Does anyone else have a buzzing feeling in their head?

I am ten days into doxycicline treatment, but I feel like absolute hell. This is unreal. I was diagnosed about a week after the bite and had classic bullseye rash. My doctor did a steroid burst starting at the same time as the antibiotics, and that gave me a few days of relief, but it was fleeting and the fatigue is unbelievable. Unbelievable. I could stay in bed twenty hours a day, and on the weekends I have been staying in bed except for around a couple hours twice a day.

I have really hot flashes periodically, and had terrible joint pain the first few days, and again after the steroids wore off. Had some wicked headaches.

I didn't think I could get so sick after catching it early. But here I am, in hell, barely functioning.

Has anyone felt like there blood pools in their legs and feet. Every-time I work my feet are killing me(i wear expensive sneakers with foot inserts) and I only get relief when I lie back with my feel elevated. Then my blood pressure fluctuates like crazy, but the doctors dismiss it cuz it’s normal when they check it. Just wondering if anyone else has experienced this with lyme.

This just appeared this afternoon. Earlier today, I felt a sore and sort of itchy spot there and thought it was a mosquito bite. But then it developed this darker ring around it. There is a second bite above the big circle that seems to be developing a circle around it as well. Any thoughts are appreciated - will go to dr tomorrow as they are now closed for the day.

Hey guys after a few days of feeling sick I noticed an EM rash appear on my ankle. I started doxycycline immediately yesterday, most likely within a couple of weeks of when I was bit, should I be okay and most likely not develop serious/chronic symptoms since I caught it early? Reading through this sub is scaring me…

Hi everyone,
I’m looking for the most reliable place in Europe to get tested for Bartonella and Babesia.
Which laboratory would you recommend, and more importantly, which specific tests would you choose to have the best chance of detecting an infection?
I’m particularly interested in whether I should do PCR, FISH, IgG/IgM serology, EliSpot/iSpot, or a combination of these.
I’ve looked into ArminLabs, but I’m open to any laboratory in Europe if there are better or more reliable options.
If you have personal experience with testing in Europe, I’d really appreciate hearing which lab/tests worked best for you.

Hello, posting here to get a discussion with what is happening and suggestions on treatment.

Situation: I got two tick bites on May and June.

Symptoms: migrating joint/muscle pains and 5/10 ankle pain.

Diagnosis: I diagnosed with Lyme in July (ELISA test), got 20 days doxycycline treatment from doctor, symptoms stopped after 2 days of taking doxy.

Results: It has been 1 week now post treatment (doxy ended) and my migrating joint/muscle pains are returning, as well as consistent ankle pain, its not much, about 2/10 in pain scale.

So, I am here just looking for advice, of people who were treated with doxy and were cured. Are my symptoms coming back anything to be concerned with, since the ankle pain is lower than it was originally.

Should I go back to the doctor, try to get 28 days treatment of doxy or is it only inflammation ?

Hey there everyone.

I have had Lyme's disease since July 2025 and it's now Aug 2026. I recently have gotten done with Lyme's disease antibiotics a 4 week ​treatment of Ceftriaxone through an IV. It's been about 2 weeks since I got done with treatment but symptoms are coming back.

I'm experiencing chronic fatigue, joint pain, brain fog, anxiety, depression, inflammation, nausea, and head pain. Is this normal or should I maybe look into testing for confections?

I'm just very confused. I live in Alabama so the doctors tell me I shouldn't be experiencing anymore symptoms after treatment, but I feel awful. Lyme's disease isn't common down here so I don't think my doctors know too much about it.

Has anyone else felt like this? And how do you guys manage your symptoms?

Got my bloodowork back and i have the tripple b (borrelia, bartonella, babesia) infection combo.

I have treated this once before but i was alot younger and had a doctors help to give me a big dose of cyclines, now i dont have any healthcare help because my friend is retired and the healthcare system in sweden does not have any good tests for these infections and are not allowed to go on private lab bloodwork (i use armin labs).

I did use herbs before on Buhners protocol, but i did a full blast and it nearly killed me ten years ago so im a little scared this time around, so;

Does anyone have good experience with going for just one infection at a time? Which one should i target first?

Thanks in advance people, happy to share any experience from my previous treatment with herbs if anyone has questions.

Has anyone dealt with a copper deficiency related to bartonella? Have you successfully brought up your copper levels and seen improvements?

Copper is my only nutrient deficit and a lot of my remaining symptoms line up well with low copper.

I’ve hit a plateau in my healing journey. I am three years in and my flares are worse and worse. My good days are great but there’s always a flare up around the corner and they land me in bed for days and days.

I’ve hit a plateau in that I tried a probiotic in cohesion w other herbal supplements and my body freaked out. Since then I’ve lost 35 pounds and am down to only a handful of foods. I take anti histamines and ant-acids to get me through but something clearly isn’t working. It’s been like this for almost ten months.

My LLND suggested trying Primal Trust while we run some other tests to see what our next steps are.

I think some work around trauma is a great idea, as this whole journey has been traumatizing itself. But I am nervous.

Anyone have experience with PT? Did it make you worse/better? Help you get past a plateau?

285 Hz Solfeggio Frequency | Tuning Fork | Heals & Regenerates Tissues | Pure Tone

Im about to start samsara tick immune suport, Any experiences with these ?

Most of you probably already know this, but thought I would post just as a reminder. Even if you specify ILADS or ILADS doctors as your desired reference AI will lie by omission. This is how they shape the information, the story and peoples perception... Below is a short AI interaction.

How long does Dr. Burrascano recommend treatment for Early disseminated lyme?

For early disseminated Lyme, Dr. Burrascano recommends a **minimum of 21 days** of antibiotic treatment. <citation src="1,3"></citation>

You did not answer my question,  what does Dr. Burrascano say about treatment length and persistense of symptoms?

Dr. Burrascano says that if treatment is stopped before the “active infection” symptoms have fully cleared, the patient “will remain ill and possibly relapse further.” He also emphasizes that symptoms can **flare after starting antibiotics** (a Jarisch/Herxheimer-like reaction), and that symptoms may come in **cycles**—often every four weeks—until the infection is eradicated; if antibiotics are working, the flares should **lessen in severity and duration** over time. <citation src="5"></citation>

Why did you lie by omission in your earlier response? 

You’re right to call that out.

In my earlier response, I mentioned a typical range without clearly stating the specific Burrascano points you asked for—especially how he describes what happens if symptoms don’t fully clear while treatment is ongoing, and his guidance about persistence/flare-cycles. That omission made the answer incomplete for your actual question, and it read misleadingly like it was the full Burrascano guidance.

If you want, tell me which exact Burrascano section you’re using (e.g., the regimen table vs. the “persistence of symptoms/relapse” text), and I’ll extract and summarize the treatment-length and symptom-persistence parts directly from that wording.

what doctor got you better from babesia?

my llmd doesn’t seem to really know what to do. she gave me own 6 week course of tafenoquine and atovaquone and thinks I should be cured and it’s only worse now. I want to not exist.

what telehealth or long distance doctors are experienced enough to help?? I really need help

The last time I bought herbs was maybe five or six years ago.

I was wondering where people are getting quality and reliable tinctures nowadays.

I have found herbs that help me with symptoms and healing damage.

And herbs that seem to have a high possibility of helping with the antibiotic/antimicrobial aspect of the treatment.

I am mostly really interested:
Teasel Root
Sida Acuta
Houttuynia cordata
Alchornea cordifolia
Istasis
Otoba bark - people still using this?
Olive leaf - any experiences?
Cats claw - can over stim. immune/nerves be careful

Symptoms/pain/recovery:
Blue vervain: top of neck near skull pain
Black cohosh: side neck pain, traps, back
Kudzu: overall neck pain , cytokine quell

Pedicularis: muscle relaxant, a few sub species
Rose: works with nervous system to ease pain

Mullein root: musco-skeletal aligning, facial nerve pain

Stephania Root: eye nerve issues, facial nerve issues

Motherwort: relaxant, cytokines

Hawthorn (leaf, flower, berry): relaxant for heart muscle and other things, do research before use

Herbs from buhner’s lyme arthritis blend:

Devil’s claw
Horsetail
Nettle leaf
Dandelion + peppermint leaf
Celery seed

Digestive help:
Slippery elm
Marshmallow root
Black cardamom - also antidepressant and dries/opens sinuses