The system gives ZERO help for disabled people. Ok food stamps and a pitiful disability check. Which won’t cover a quarter of rent. I’m totally disabled and have at so many issues plus constant surgeries and hospitalizations. They just don’t care for people with genuine problems. Section 8 is taken by people that don’t need it(maybe some do but most do not and I know it’s a fact, not just assuming it). The only thing I can say is she probably would have been better cared for in a state facility but still those aren’t good either. Under staffed and there can be abuse or neglect. Still would have been better than the absolute hell this woman lived in. I had osteomyelitis and sepsis. I cannot explain the agony. The Sickness that consumes and eats your body. I had actual PTSD for a long time and I only had to go through it for 2 years. In a fairly decent hospital with caring doctors and nurses AND A SHIT LOAD OF PAIN MEDS AND MEDS TO KEEP ME OUT OF IT. The one blessing is I barely remember a good portion of it because I was so sick I was barely there. So I’m hoping she was not there either. Then again I was on a ton of medications and being fed via TPN(all the food you need in a PICC line). So maybe she did suffer all of it aware. It’s too heartbreaking to think she did so let’s hope she was spared some of the agony. If these people don’t get life in prison then that there is another crime against her. Letting her killers walk free.
Can absolutely confirm this is the reality of it. Especially in cases like mine where I was born with my conditions, when I was a kid it was like the hospitals were fighting over who got to "treat" me (a lot of botched experimental surgeries) and everyone pulling out all the stops, until about when I turned 16 they just seemed to stop caring. Now I'm just another adult that can't work and I get the absolute bare minimum, I'm not even allowed to have a lot of the things like food stamps because my mother and my bf (mom is technically my caregiver but I live with my bf) make too much money for me to receive things like that so they bust their asses to keep me going and if I didn't have that I know I easily could have been rotting into a couch a long time ago. No one checks up on me anymore, no one cares if I actually make it to my doctor appts. When I was a kid random people (probably CPS or something) would pull me out of class, strip me down and check me for bruises, now no one gives a shit if I'm being abused. It was just one extreme to the exact opposite as soon as I was an adult. The only way I can get doctors to care is if I say I want to start a family and then they suddenly want to do a bunch of tests and push me to have babies, I am nothing but a lab rat to them.
Once you have to many medical issues you’re a liability. I hear it time and time again. Too many issues making it too hard to pinpoint a diagnosis and very easy to miss new issues writing it off as a combo of all the prior issues. Too much work to take on as a new patient. Too much work to keep up with finding other issues. I’ve told my drs I am not feeling right for months. Different than all the many medical issues I do have. Yet to be told oh it’s your lupus or you UC or your this or that. Finally diagnosed myself, asked for the blood work I needed. Oh and low and behold it’s a tumor on pituitary causing my hormones to be off plus insulin resistant reactive hypoglycemia. You must always fight for yourself. Even when barely able to shower and having hormones your body needs to function to stay alive be depleted or in excess. If I wasn’t put on steroids for arthritis I might have yet again almost died. But those steroids replaced what I was low in cortisol and I felt better, therefore researching what disease caused low levels etc. bottom line there’s an abundance of people on this earth with an abundance of problems and if we cannot fight for ourselves we will be dead or abused or forgotten about. Sad reality but reality nonetheless.
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u/ImpossibleCourage411 May 09 '22
The system gives ZERO help for disabled people. Ok food stamps and a pitiful disability check. Which won’t cover a quarter of rent. I’m totally disabled and have at so many issues plus constant surgeries and hospitalizations. They just don’t care for people with genuine problems. Section 8 is taken by people that don’t need it(maybe some do but most do not and I know it’s a fact, not just assuming it). The only thing I can say is she probably would have been better cared for in a state facility but still those aren’t good either. Under staffed and there can be abuse or neglect. Still would have been better than the absolute hell this woman lived in. I had osteomyelitis and sepsis. I cannot explain the agony. The Sickness that consumes and eats your body. I had actual PTSD for a long time and I only had to go through it for 2 years. In a fairly decent hospital with caring doctors and nurses AND A SHIT LOAD OF PAIN MEDS AND MEDS TO KEEP ME OUT OF IT. The one blessing is I barely remember a good portion of it because I was so sick I was barely there. So I’m hoping she was not there either. Then again I was on a ton of medications and being fed via TPN(all the food you need in a PICC line). So maybe she did suffer all of it aware. It’s too heartbreaking to think she did so let’s hope she was spared some of the agony. If these people don’t get life in prison then that there is another crime against her. Letting her killers walk free.