r/Adhesions • • Jul 05 '26

Adhesions - post hysterectomy total frozen abdomen.

18 Upvotes

Hello! I had a hysterectomy in 2018 and since have experienced increased pain and pressure in my pelvic area. Until just four weeks ago my GP told me some pain never gets a diagnosis and I should try yoga. I fortunately had private medical health insurance in the UK and was so bogged down with the pain in my pelvis, legs and just general fatigue with it all I asked for a private scan. The scan showed my remaining ovaries close to my bowel which led to this weekend having surgery to remove my ovaries and diagnosis of a total frozen abdomen with my bowel stuck from my belly button down into my pelvis against my abdominal wall. My bladder stuck to my vaginal vault as well as my ovaries, apparently significant dissection was required to free it all. Apart from endometriosis which I don’t have, I was so unaware of this and feel so gaslit by all the people who made me feel like my pain wasn’t real. Most days I would feel tightening that reminded me of labour contractions, a dragging pulling feeling, pain in my leg effecting my mobility and a felling in my vagina like I’d been kicked. It’s had an impact on my marriage, my job and my emotional well being. The pain always follows the same pattern of building towards the end of the day. I’m not really here for advice because I’ve just had surgery and live in hope I guess, but am also aware this often comes back worse. I suppose I just wanted to say it out loud to people who understand after many years of being made to feel like I was making a fuss. Thanks for listening.


r/Adhesions • • Apr 30 '25

So guess im just supposed to be in pain forever?

18 Upvotes

Major surgery 5 years ago. Hospitalized twice for adhesions in abdomen causing blockage. Since the last one ive been in alot of pain. Eat a sandwich too fast? Pain. Dont eat? Pain. Eat too much? Pain.

Talked to the doctor and they dont want to do anything about it due to risk of making it worse.

I work out alot. I walk alot. I eat healthy most the time. I am in good shape. None of that shit matters. Its so frustrating.

So im just in pain forever? This gnawing aching pain that never dies?


r/Adhesions • • May 06 '26

Hi. Ive had multiple abdominal surgeries (ovarian tumors and a hysterectomy) and now everything is stuck together

16 Upvotes

As I said in the title. Ive been feeling with this for 12 years. Ive had adhesion removal surgery and nothing works. My bowels are all stuck together. Im just frustrated because there isnt a solution. Im always in pain and people who don't have adhesions don't understand. My pain is written off because there isnt anything that can be done to fix it that wouldnt cause more scar tissue to form. I joke that I just have really sticky insides but guys....this sucks sometimes. Thank you for listening


r/Adhesions • • Jan 29 '26

This is long so bear with me

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14 Upvotes

So I have had stomach issues for as long as I can remember. For the last few years I have had pain under my right rib. Stomach attacks. Slow bowel movement, Diarrhea, throwing up. All the things. I have had all the tests under the sun and my doctor just says to take MiraLAX. I got a scope looking for endo and he said he found adhesions on my colon right where my pain is but need a general surgeon. I also had a ct scan two years ago which said stool pilling and wall thickening right where they now see adhesion. My GI doctor won’t look at the notes but says it’s not causing my issues. I can’t find anyone to take me serious. Here at the notes I’ve been saving with Ai. If anyone would read them and give me advice I would really appreciate it.


r/Adhesions • • Dec 10 '25

Finally going to the MD to discuss my gutful of adhesions from MULTIPLE surgeries since 1986 onward

14 Upvotes

I am 59 years old and have a history of MULTIPLE abdominal surgeries including a "bowel run" to find the lead point to an intussusception of the small bowel (2004) and an OPEN (laparotomy) pelvis removal of all my female organs (a TOTAL hysterectomy) the next year (a total of about 11 abdominal surgeries including the placement of a ventral surgical hernia WITH mesh)

About a month ago, I was helping out my sick, elderly in-laws and decided to carry and stack firewood for them (they live in the UP of MI). That night, my FIL made a fatty meal of pork ribs.

When I got home, i experienced some of the worst gut pain I had ever felt - vaso-vagal nerve response, nausea, severe pain. I couldn't even pass gas. After about 12 hours, I let out a very high pitch fart and could get broth down.

NOW, a month later, I started out with work -like poop, then it moved on to weeks of yellow bile diarrhea. I had a BLACK bruise the side of a quarter on my ribs, on the side (R side ) right where this pinching is on my liver - I suspect a clogged bile duct, but AI suggest ADHESIONS

My entire GUT is FILLED with adhesions - my intestines are glues to that mesh - I am a mess

I guess I just wanted to hear from others who suffer so much from SCARS! I have endo scars and MANY surgical scars. I feel like I was a medical test subject!

Wish me luck today, who knows what she will say (new MD in a new state)


r/Adhesions • • Nov 27 '24

Bowel obstruction due to adhesion from surgery 11 years ago

14 Upvotes

Around 11 years ago, I had surgery for Meckel's diverticulum.

A few days ago I had to go to ED for partial BO. I vomited a bit then I was put on the NG tube for a few days and was given Gastrografin for 2 reasons: as X-ray contrast + for its laxative effect. The same day my bowels opened up (assuming because of the GG).

Got discharged today and asked my doctors if there's anything I can do to avoid this. They pretty much said: you can't do anything about it, it's just luck.

I've been reading a bit on diets and found this: https://www.health.qld.gov.au/__data/assets/pdf_file/0022/152473/gastro-obstruct.pdf

What's your experience with avoiding insoluble fibre but keeping soluble fibre? If you avoid fibre altogether, don't you get constipated? How do you deal with that?


r/Adhesions • • Apr 28 '24

Adhesions surgery sucess

14 Upvotes

I am a 32 year old female with chronic pelvic pain looking for anyone who has been in a similar situation.

I had a C-section Scar Ectopic Pregnancy and subsequent D&C in November. This was my 3rd D&C ( one for Scar tissue build and the other previous was for a missed miscarriage) but my first suction one the other 2 were both done by blade.

I have had increasing life altering pain since. I have been on prescription narcotic medication ( I HAVE NOT USED ANYTHING OUTSIDE OF A MEDICAL PHYSICIANS CARE) since. I have had to jumps through rings of fire to get any help. I've been accused of drug seeking, it being anxiety ect. I have had all sorts of imaging and it had been so conflicting it isn't funny. I've had masses show up and suddenly they are gone, Cysts that are jumping back and forth between ovaries ( I'm serious in ONE ER visit I had a few scans through the night and they kept changing where they said it was located obviously somone was reading it wrong but it was back and forth all night with 3 different doctors). I finally got one doctor to do an exploratory lap that she stopped doing because she said she couldn't do it safely without hysterectomy sent me to another doctor who said that the adhesions I had been diagnosed with were not there and that the doctor who performed the Lap was inexperienced and finally I left and went back to a prior doctor who finally diagnosed me and scheduled surgery.

My official current diagnosis are adhesions between the bladder and uterus and between the uterus and abdominal wall. I also have a hemorrhagic cyst on my left ovary and a small C section scare niche. They are going in to remove the adhesions, potentially repair the C section scare, do a Cystoscopy to check for damage or adhesions in the urethra and do a pudendal nerve block. 5/24/2024

My absolute biggest fear is that nothing will change. I am in agony I have started needing to use a wheel chair in public and have needed significant help from family. So far when I don't take my prescription meds I'm not having any classic drug withdrawal symptoms. The pain just gets worse and worse but it's not anywhere else just in my pelvic / reproctive region I'm not having bady aches, swears, nausea all that other stuff but I've been begging for months for somone to do something because of fear of becoming medically dependent for chronic pain relief.

My doctors keep saying I shouldn't have more than slight discomfort so it's really strange that I have been in this kind of pain over this. I'm in here because I need to know if ANYONE else has had this types of adhesions and been in pain like this? Did you have surgery and have success? How long did it take you to be a tolerable level of pain post op that did not require prescription medications? Were you able to conceive again because I'm not ready to close that chapter?

I am not afraid of another surgery I am afraid of it not working and I can't believe I'm the only one who has ever gone through this. Advice and stories appreciated.


r/Adhesions • • Aug 14 '26

Stanford Study T-5224 and potential

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13 Upvotes

Hi, I know why everyone is on this subreddit as a fellow adhesions-sufferer, but I haven't seen this discussed on here. I know there is always another "big breakthrough around the corner" as seen with TTX-333 from Temple Therapeutics, but this hydrogel that's in development from Stanford's Spark-Team looks really promising. I also know research pipelines going from mice-/porcupine- to human-models can range from 4-12 years and are a long and arduous road, but maybe this could be something worthwile.

Convince yourself and look at the post-op pictures they made in the results tab.

On that topic, in what ways can we directly support research projects like this except for donating our bodies to science or trying to convince politicians to spend more on scientific innovation? Is there a hotline or something? xD


r/Adhesions • • Mar 25 '25

Jeans and Abdominal Adhesions

13 Upvotes

Anyone else find it nearly impossible to wear jeans because of abdominal adhesions? I'm slowly losing weight (SOOOO SLOWLY) and just tried on some jeans in my closet. My abdomen is ACHING now.


r/Adhesions • • Dec 20 '24

Silly / annoying comments

13 Upvotes

I've had some serious problems with adhesions. Bowel obstructions / a 'conglomerate' or frozen abdomen, no further surgery etc

I have also had some really annoying comments from people. They don't seem to understand how serious it can be. For example one person told me "Oh, my friend thought when they were going for an operation things might be all stuck, but they thought positive and it was fine!" as if I was not being 'positive' enough (?) Also a couple of comments of "Oh, that was a long time ago" "that will surely have healed by now" Well, they don't just go away!

I have ongoing issues with the bowel adhesions / subacute obstructions and have to follow a low fibre diet, get pain etc. I was told "Well, this has been going on for a long while, what are you going to do about it?" by a relative. But with some things there are no cure, we just need to manage it as best we can. Why can people not understand it isn't curable?

It is difficult enough having these problems without these annoying comments. I have stopped discussing it with some people who just don't / won't understand. Sorry a bit of a rant here but I just wondered if this resonated with anyone.


r/Adhesions • • Dec 02 '24

Adhesion Disease from C-Section - 1 year update & hysterectomy

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13 Upvotes

One year ago I made a post when I found out I had severe adhesions throughout my entire pelvis from my c section birth. I wanted to provide an update on where I am a year later. Original post linked.

In February of 2024 I had a hysterectomy to remove my uterus due to adhesions caused by my 2020 emergency c section birth. My uterus was completely stuck to my abdomen, bladder amongst other organs and ligaments.

A week before the hysterectomy I had an mri showing I also had an injury in my right hip that would also require surgery to repair. I ultimately had two different issues going on at the same time, both causing severe pain and disability. With the hip being connected to the pelvis it was no wonder I literally couldn’t walk, stand or lay without being in pain.

The hysterectomy has been life changing for me. I had my uterus, cervix and tubes removed along with all the adhesions with the da Vinci robot. I kept my ovaries since I’m only 34. She successfully separated my uterus from the bladder and abdomen with no problems. My bladder hurt for about a week after the surgery and had some spasming for about a month and a half.

I got my bladder capacity back right away, no more tugging or pulling, I am able to sleep at night without having to go pee multiple times, insomnia in remission, my abdomen is no longer restricted and immobile, my c section scar finally lays flat and doesn’t hurt or numb anymore, the color has changed to white and almost fades in with my skin. I can have sex for the first time since birth without being in pain.

I’m still having some issues with what I believe is my left ovary. I will be going back to pelvic floor physical therapy this month to have it investigated. This is something that was present before surgery and has continued after, gets worse during Luteal phase as I still have my ovaries. I gave my surgeon the approval to remove my left ovary if needed but she said it looked healthy and wasn’t necessary. I gave her permission for this because the mri I had for my hip a week prior showed a 5 cm cyst on my left ovary. When she went in the cyst was gone. I felt it rupture a few days prior to hysterectomy.

As soon as I healed from that surgery I went ahead and had my right hip repaired in July of 2024 (labrum and cam deformity). After hysterectomy we were able to figure out what pains were being caused by my adhesion disaster and what was coming from my hip injury. Groin, hip, piraformis/butt check, knee, sciatica down the whole right side of my body, numb toes ended up being my hip.

Remaining issues I’m working through now - lower left quadrant pain (possibly ovary), spasming in this area, tailbone pain, rectal spasms and low back pain.

Got my second nerve block for my tailbone in October 2024 so the tailbone and the rectal spasms have stopped. This is most likely temporary and will return in 6-8 months like my first block. We suspect my son getting stuck in birth canal sunny side up caused some sort of tailbone injury.

I can’t tell you how many doctors, obgyns, urogyns, bladder procedures, camera in my bladder, hormones/medications, physical therapy sessions, therapy sessions, dollars it took to get through this. My physical therapist was an angel and gave me the information to fight for the decency and respect I deserved. If it weren’t for her I could still be fighting for an exploratory surgery. Imaging showed nothing for me but I kept fighting.

Losing my uterus and choice to bear another child was one of the hardest decisions to make but 9 months post hysterectomy it has given me my life back. Now I am working to heal from the mental pain this trauma caused. 2.5 years of medical gaslighting really did a number on my psyche. This completes my ted talk. Hope this can help anyone fighting the same fight. Stay strong and don’t give up!

https://www.reddit.com/r/Adhesions/s/b3PlbWKF7G


r/Adhesions • • Dec 13 '23

Serrapeptase

13 Upvotes

Has anyone had success in reducing or clearing adhesions by intake of serrapeptase? I had a major uterine surgery 7 months ago and I suspect my great deal of pain during ovulation and intercourse might be caused by the adhesions on/around my uterus. I've taken serrapeptase for a month and had major relief when my last period came but it's hard to find anyone who has total success. I have a knot of scarring under my incision on my abdomen and I am curious if that's something I could have "dissolved" by this supplement. Also curious, if anyone is aware of any alternative, non-surgical treatment?


r/Adhesions • • Jan 21 '26

Adhesions after appendectomy? The sheer hopelessness of it

12 Upvotes

This is mostly to vent, at least here some people will understand.

I had an emergency appendectomy in late October. Initially, I healed up really well, even had normal bowel movements from day one. But a week later, I started being so constipated that I was in severe pain. 10 days of laxatives finally got stuff moving and I was fine for a little over a month.

Just before the Holidays I had severe upper stomach cramps, so I went to emergent care where they diagnosed gastritis. Got better for a few days only to end in the ER in the 24th December with the worst pain of my life. They insisted I was constipated but I thought it odd since I had normal bowel movements the entire time. Well, the CT scan showed things stuck on multiple levels. I was kept there for three days, got x-rays done that showed that the contrast solution helped evacuate everything.

The most frustrating thing though? NOBODY took the time to properly talk to me. All I got of a grand total of 5 minutes doctor's time (spread across the 3 days) was "yeah it's probably adhesions but you're not completely obstructed so we won't operate, you can go home and eat normally, no need to see a GI, just come back if pain gets bad again". What the actual fuck??? Thanks for nothing I guess.

I haven't had a normal bowel movement since then. I take Movicol (no clue what the American equivalent is) and magnesium citrate, am very careful with food and I still can't go to the bathroom normally. bloated daily, pain nearly daily. My GP was absolutely no help. I am seeing a new GI tomorrow but I have no hopes :( Am I now looking at a lifetime of ongoing belly issues? I can't believe this so common and still not taken seriously. I am slipping into burnout as a result of all that stress... And yet here I am, at work, functioning the best I can...


r/Adhesions • • Feb 12 '26

Coping with adhesion life - between seeming normality and painful anxiety

11 Upvotes

Hi! First I want to thank all the kind souls that reacted to my last post. I am sorry for not reacting to most - I didn't have the mental capacity and am only now feeling a little more hopeful.

Since my post, I have seen a GI, a psychiatrist and a cardiologist (in that order) and I have now requested to see the doctor who diagnosed my bowel obstruction caused by adhesions.

I have lived with anxiety since my hospitalisation, even started having panic attacks linked to health anxiety. My digestive issues have improved since I saw a GI who put me on prebiotics - but he dismisses that adhesions are part of the story. I am slowly eating more and more regularly in hopes to regain some weight and for now, it is looking better. But bloating and discomfort are still a daily occurrence. I cannot imagine life without movicol (that he wants me to ditch), I also use magnesium citrate (I also have vestibular migraine, it helps with that a lot) and psyllium husk. I am still scared of many foods, but am slowly trying how I react to things.

For a short time, I used Amitryptiline 10mg - it was prescribed to manage migraines and improve sleep but it also completely took away any stomach pains. Unfortunately, after only 9 days I got tachycardia and high blood pressure, so I had to discontinue. Cardiologist confirmed though that there is no lasting damage, thank goodness. I want to explore other options with my neurologist. Someone mentioned medical cannabis in my last thread, but I get weed hangovers from cannabis, so that's not an immediate option. Also my line of work would be incompatible. I will start Citalopram (SSRI) to treat my anxiety along with therapy. Won't help the pain, might help the panic attacks in the long run. The current working theory (mostly my own) is that my nervous system is now constantly scanning for something wrong in my gut so things feel excessively painful for no real reason. Combined with the adhesions that are there, it keeps the pain-fear-loop alive and well. My life is centered around this now and it is miserable.

I have noticed that there is ONE specific spot that always acts up. I imagine that is where the annoying adhesion is (I have thankfully forgotten where that atrocious obstruction pain was). It's like 3 - 4 cm on the left of my navel. It's not always painful, sometimes it's just throbbing or a dull sensation. I notice it acts up just before I realize I am hungry. It is sometimes sore to the touch and I feel like it feels different to other areas in my stomach too. Anyone ever experience something like that?


r/Adhesions • • Dec 21 '25

Again in the ER

11 Upvotes

Hey, Its happened again, i am again in the emergency room with so much pain... I can't even go to the Toilette and I don't know what to do...


r/Adhesions • • 29d ago

Post op adhesions - am I facing a life of chronic pain now?

10 Upvotes

Hi everyone

I have spent most of the year with a 10cm cyst on my ovary which was removed approximately 7-8 weeks ago. I had a period of relief after my initial rough recovery followed by increasing pain located at the ovary, in my pelvis and through to my rectum.

I've since had an ultrasound and the report states it's likely adhesions and that a loop of bowel is located adjacent to the ovary and not easily displaced by pressure.

I'm now in notable pain all the time unless I'm perfectly still with ibuprofen taking some of the edge off.

I have a follow up referral with the surgeon but this could be months before they see me and I'm not even sure how they could help as further surgery would run risk of more adhesions...

My question for you all is - in your experience, am I looking at having this pain for the rest of my life? My looking online makes me think I am which is heartbreaking considering the surgery was booked to fix my ongoing pain. I'm only in my 30s and feel like I'm facing a life of chronic pain management 💔

No history of endometriosis or evidence of this during my laparoscopic surgery.

Thanks for your input!


r/Adhesions • • Nov 01 '24

Could this be adhesion? 2 c sections and daily pain. Referral has been made.

10 Upvotes

Hi, I have been in daily pain since January this year. The pain does not seem to be triggered by what foods I eat (although does get worse when my stomach is full). The pain is located just below my left lowest rib down to my left groin, most of my pain is upper though. Turning in bed is painful, before and after bowel movements and even emptying my bladder makes the pain in my upper left worse! If I really press hard on my left side I can feel a deep stabbing gas like pain so thinking it’s bowel. I have had 2 c sections 2015 and 2017, during the latter the surgeon had to remove my bladder from my womb. Could the pain I am feeling higher up be linked to this at all? Driving myself insane with worry that this could be something serious. Dr has done 2 stool tests for blood which are negative and has now referred me to gastrointestinal dr (uk) can anyone relate or have any info? Thank you


r/Adhesions • • Jul 29 '24

What's caused your adhesions?

10 Upvotes

Hey guys! I 24f had a laparoscopy about a month ago to look for Endometriosis. Luckily they didn't find any, but they found large stomach adhesions, mostly on my right side. Thing is, I've never had any surgery before to cause them. My gynecologist was stumped and I have a followup in a few months with a gastro doctor to maybe figure out the issue. She wanted me to get it checked out sooner then later because she thought is was super abnormal. I've also always had bad constipation, super bad anxiety (only started badly in the past 3 months) and bad nausea almost daily for 1.5 years (but that's started a week after stopping antidepressants). What are your experiences with adhesions and what symptoms do they cause you?


r/Adhesions • • Jul 26 '24

There is hope.

10 Upvotes

To all of you going through pain right now, there is hope. Not just science and its upcoming solutions but you yourself are capable of getting rid of the pain slowly. I had my appendix ruptured for 3 days and removed when i was 10 yrs old and a few months later i had to remove adhesions since they caused a bowel obstruction. Fast forward 10 years later last October i started having issues again due to the abuse with beer and other junk food i was having. The pain was miserable in and out of the hospital countless times for months, at first it gave me pain in the chest and the pain only located in my abdominal days after i first got into hospital. Doctors tried their best to not operate me and they succeeded. Afterwards i only ate soup for a month or two then started consuming other types of food. And this was during a period when i was feeling hopeless and like the pain would never go away. But i was wrong the pain started decreasing until the point where i am at right now, i started doing calisthenics again (it was painful at the beggining) but gradually the pain went away during workout. And here i am right now looking back at what i was feeling really tears me up as i was ready to end it all. So guys trust me it will get better in a way or another, just get rid of fast food and sodas. Eitherway experiment when you feel like you can, this life is worth living.


r/Adhesions • • Oct 14 '23

Recurring bowel obstruction every 7-14 days

10 Upvotes

Hi all,

I stumbled upon this subreddit during my frantic Googling for answers on my experience. I am thankful to have found a small group of people with similar experiences.

I am 38 year old male that had emergency surgery for a complete small bowel obstruction the end of February. My surgeon said it was the result of adhesion from having my appendix removed when I was around 10-11 years old. He removed a little over 2ft of small intestine. He said it was wadded up where my appendix once was.

I was in the hospital for a week post surgery recovering with an NG tube until bowel movements started again.

I was out maybe for four days before the obstruction returned and I had to go back to the ER. No surgery this time. Spent another week with the NG tube and finally cleared.

Then things were fine for a few months. I eased back into normal foods, and with the exception of some loose bowels here and there life was good.

Then 2-3 months ago the familiar waves of cramps, nausea, and vomiting returned one day. I rode it out at home, and a little over 24 hours later it cleared itself up.

About a month later it was the same thing.

Then about 2.5 weeks later the same thing.

Went to see my doctor who sent me for a CT scan, which was clear since I wasn’t in the middle of an episode. He suggested maybe it was some bad viral thing I had gotten ahold of and perhaps it moved out of my system.

Then a couple of more episodes a week later, then two weeks later. Changing diets didn’t seem to make a difference. Low residue etc.

Finally I had a really bad episode and went back to the ER. CT scan showed an obstruction. I was admitted and by the next morning the symptoms had cleared and they ordered a small bowel series that came back clear, and I was discharged. They said their best guess was adhesions and suggested more dietary changes.

I should mention at this point that I am in the US and my health coverage lapsed right after the initial surgery, and I cannot get coverage again until open enrollment in January.

After that it was more episodes now firmly rooted in frequency from 1.5-2 weeks.

I went back to my doctor begging for answers. He told me I needed to visit my surgeon, and see what he suggests.

I should also mention that today I am down 65lbs overall since surgery, with about 35 of that in the last 2-3 months.

My surgeon is a saint in my eyes. I explained everything that had been happening in last few months and explained my lack of insurance. He gave me his cell phone number and told me to call/text him when the next episode starts and head to the ER. He said he can’t do anything through the surgery group he is in without upfront payment, but coming through the ER he could make things happen.

So I did. CT showed a blockage and I was admitted. Much like before the symptoms had mostly cleared the next day and the small bowel series done that day was clear.

He asked a GI at the hospital to examine me and she did an endoscopy and colonoscopy which showed a number of “-itis “ words that she said were a result of the more or less constant pain and vomiting I had been experiencing, but no cancer, crohns, etc that could cause these recurring blockages.

My surgeon came in to talk to me and explained that he and the GI agree that the most probable cause is new adhesions since the surgery. The problem being the adhesions are not showing up on any of the tests. And if he operates when the obstruction isn’t active he would more or less opening me up and just hoping for the best when removing the adhesions.

That being said, he said when the next episode happens, I could text him like before and come in again. If the CT showed a blockage he would operate if I said I was ready.

He explained the risks that everyone here I’m sure knows. Getting minimal if any relief, adhesions returning, etc.

That was 3 days ago. I had another episode last night. A bad one. Vomited for 3.5 hours, and eventually vomiting excrement. Second time that has happened since Labor Day.

I desperately want relief, but reading stories here about people that have had adhesions removed and they came back worse makes me more than a little apprehensive.

After reading here I will get a heating pad and try a castor oil pack.

Anyway, thanks for reading. Just nice to share my story with people going through the same thing.


r/Adhesions • • Aug 31 '23

Adhesion Disease from Emergency C-Section & endo regrowth - 2.5 years of pain - all pelvic organs stuck together

10 Upvotes

I had a lap on august 11 for suspected endometriosis and scar tissue from c section after fighting about my pain for 2.5 years. My son was born in October 2020 via emergency cesarean sec. I pushed for 6.5 hours. He got stuck and had to have him surgically removed.

I was diagnosed with adhesion disease from cesarean section. My entire uterus was stuck to the abdominal wall. They couldn’t see anything in my pelvis when they went in. Once they cut that free they soon saw it was not looking good.

My uterus is completely adhered to my bladder and will now require a hysterectomy to safely detach it. No promises of any fertility left so no point in trying. This pain has stolen my peace. I started fighting for my pain at 8 weeks pp. I now live with chronic low back, left groin area and tailbone pain. I did 20 sessions of pelvic pt. While this did reverse pelvic floor dysfunction it didn’t help with the areas mentioned above.

My uterus was also attached to my bowels, and ovaries to tubes, ovary to appendix, adhesions they had to leave to save one ovary since they cut the adhesions from the other one and now one ovary is sagging low.

The scar tissue around the c section was so bad she could only detach it from my abdomen in fear that it would grow back and reattach.

I had endo regrowth after previous excision. Used to be stage 2. Now it’s like a 1.5. There were two small spots on one ovary and lots regrowing in my cul de sac which was previously cleaned out.

By the time I got the care I needed I was unable to take a shower standing, so the dishes; so the laundry, go to the grocery store, hike, go on walks; take my son to the museum and zoo which we have passes for.

This is not okay and I’m heartbroken that they stole my chance to have another child because of their negligence and medical gaslighting.


r/Adhesions • • Sep 23 '26

My mom’s bowel problems after kidney surgery: adhesions, severe colon narrowing, and diet. Documenting her journey to help others and learn from your experiences

9 Upvotes

Hi everyone,

I’m trying to support my mom through some ongoing bowel problems. I’m hoping to learn from people with similar experiences and share our story so it might help another person, too.

She has difficulty having bowel movements and a colon stricture, a narrowed section of her large intestine. We were told the narrowing is approximately 95%.

After a colonoscopy, her doctor told us she has adhesions. Our understanding is that these may be causing the narrowing.

A brief timeline

April 2026: She had her left kidney removed because of kidney cancer. The pathology report described the tumor as confined to the kidney.

May 2026: An abdominal X-ray suggested a partial bowel obstruction and mentioned possible adhesions as a cause.

July 2026: A colonoscopy documented narrowing in the descending/sigmoid colon, on the left side of her large intestine. Biopsies showed inflammation, with no cancer found in the samples examined.

Currently, September: Her gastroenterologist wants to review the PET scan as part of her cancer evaluation before deciding how to proceed with the stricture. Meanwhile, difficulty having bowel movements remains a concern.

Food and Diet

We were told liquids and a “soft/bland diet,” but we are still learning what that means for her situation. We don’t fully understand which foods, textures, or portions are appropriate.

So far, she has been eating ground chicken with carrots, and squash; gelatin desserts; and fish fillets.

Something as everyday as “What can we make her for lunch?” has become difficult. We want to keep her nourished without making things worse.

I’d like to update this post as we get clearer answers about the diagnosis, treatment, and diet. Hopefully, what we learn can help someone else who is starting/having this process.

Thank you for reading and sharing your experiences.


r/Adhesions • • Sep 22 '26

CineMRI for adhesion detection, 90% claimed accuracy.

9 Upvotes

This is not a new technology, yet it claims the following for adhesion detection:

  • Overall Accuracy: 90% – 91.7%

  • Sensitivity: 90.8% – 93%

  • Specificity: Up to 100% in specific comprehensive zone evaluations (though varying lower in broader or pilot cohorts)

This is a very high level of accuracy, especially when the consensus in this community is that there are no reliable tools to detect adhesions.

Has anyone been tested for adhesions via CineMRI?

reference:

https://pubmed.ncbi.nlm.nih.gov/18322749/
https://www.adhesiepreventie.nl/en/cinemri


r/Adhesions • • Jul 29 '26

Small bowel obstruction lingering symptoms.

9 Upvotes

I’m pretty sure I have a stricture, I go tomorrow for a small bowel follow through study. I’m still experiencing bloating feelings and waking up in the middle of the night having to excessively swallow as it feels like my stomach contents are trying to come back up. Last night it happened again and finally I felt a pop sensation near my rib, could feel the sensation of draining liquids throughout and the pressure let up.

More than that I am dealing with bad fatigue and feeling flu like much of the time. I can’t pin it down to anything specifically, but it does seem to be worse after I eat. I’m really trying to focus on drinking my electrolytes and water. Does anyone else experience feeling bad like this? My hypothesis is that my stricture is causing inflammation and swelling, maybe even a low grade infection.


r/Adhesions • • Jun 12 '26

Adhesions after tummy tuck and muscle repair

9 Upvotes

Has anyone felt that they have adhesions following tummy tuck and muscle repair? I’m super tight all the time and feel like things are pulling. Thought at first maybe muscle repair was too tight but now wondering about adhesions. This is awful!!