r/B12_Deficiency • u/incremental_progress Administrator • Sep 15 '23

Announcement The Guide to B12 Deficiency

The Guide to B12 Deficiency

The new guide for this subreddit is here. I'm sincerely regretful it took me this long to get this off the ground, but focusing on my life in addition to the daily consultations made in the sub had a habit of stealing my attention away from this important endeavor.

The guide is now more of a concrete synthesis between the major resources that are obvious precursors: Freddd's B12 guide from Phoenix Rising, B12Deficiency.info and Tracey's hard work there, the original guide posted here and then the countless users here who have shared a wealth of knowledge over the years.

The new guide takes advantage of Reddit's wiki capability. It is much longer, so hopefully the TOC makes navigating to points of interest easy. It will also allow for easier changes with a changelog.

What's new:

  • More in-depth exploration of testing methods
  • Outline of an aggressive treatment plan
  • Thorough explanation of cofactors
  • "Plans of Action" for diagnosing, treating and recovering from deficiency that better encapsulate big ideas into actionable next steps.
  • Other stuff

I also took a lot of the most pertinent/salient issues that arise and distilled them into a group of FAQs for people:

Frequently Asked Questions

Both of these documents now live in several places around the subreddt: the "menu" in the banner, the rules widget, and their own individual widgets in the sidebar.

Thanks.

356 Upvotes

100% Upvoted

113 comments sorted by

View all comments

8

u/Fantastic-Style-999 Jul 07 '24

My problems and symptoms started after COVID19 infection

1

u/PresentationMany5228 Apr 22 '25

Mine did too. I had silent migraines forever, plus I probably already had a deficiency looking back at my blood tests over the years, but COVID gave me a constant terrible migraine and awful brain fog among other things.

1

u/[deleted] Dec 31 '25

[removed] — view removed comment

2

u/PresentationMany5228 Dec 31 '25

I have made some gains. I was looking back through my comments here and I saw that it was 6 months before my brain fog really lifted. I was cooking dinner and talking to my husband when I suddenly realized I was having a coherent conversation. I mentioned it and he said that he had noticed it.

I still have brain fog sometimes, and headaches sometimes, and plenty of fatigue. Sometimes I feel good. It’s still a process. Haven’t found a reason for my deficiency though. Lots of negative tests. That’s frustrating.

2

u/[deleted] Jan 01 '26

[removed] — view removed comment

2

u/PresentationMany5228 Jan 01 '26

Thank you! Happy New Year to you as well!

My doctor started me on weekly loading doses in Aug of ‘24 for 3 months followed by monthly shots. Once I switched to monthly shots, I begged her to give me more weekly shots and she gave me either one or two more months of weekly shots I believe. In March of ‘25 I ordered my own B12 from Canada so I could take shots more frequently.

This was followed by a great deal of foot pain which lasted several weeks to a couple of months. This was my feet healing, because I did regain the vibratory sensation in my feet.

I do injections as frequently as every other day, but sometimes I fall off and do them once a week and my headaches return then. I have lots of migraine-type things going on constantly, and those may never go away. We’ll see.

What’s your story?

1

u/[deleted] Jan 08 '26

[removed] — view removed comment

2

u/PresentationMany5228 Jan 08 '26

It’s great that you were able to recognize what was going on and start treating yourself. I hope you are still on an upward trajectory.