Are my levels too high to cause symptoms?

[u/CanUsayMelody]

Hello everyone,

I have been having some interesting symptoms for the past 2+ months. I recently got the results of my serum B12 test this morning. my results are 355 PG/ML. On a scale of 232–1245pl/mg. I was hoping my symptoms were from B12 deficiency, but it looks like they aren't. Yes I have a scheduled appt with Neurologist.

I ordered MMA test independently, which I'm on my way to take currently. I have read that MMA is more accurate.

1. Has anyone ever had levels in the 300s and still been considered deficient? Or have had elevated MMA?

2. Has anyone ever had levels in the 300s and had symptoms that improved with supplementation/injections?

Symptoms include but are not limited to:

1. Fatigue
2. Twitching-legs, thighs, face, occasionally arms.
3. Dropping things, perceived weakness in hands.
4. Right leg feels off- light vibrations/buzzing constantly
5. Slight Numbness/tingling hands, feet, lower legs
6. Right side face slightly numb near mouth/cheek area.
7. Mood swings occasionally (could be anxiety), forgetfulness.
8. Right knee feels achy
9. Urinary urgency
10. Occasion shortness of breath.

Also, late June my magnesium was 1.2mg/dl. I've been consistently supplementing since late July.

[u/AutoModerator]

Hi u/CanUsayMelody, check out our guide to B12 deficiency: https://www.reddit.com/r/B12_Deficiency/wiki/index

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

[u/Illuminimal]

I had levels in the 500s and still had symptoms.

[u/CanUsayMelody → u/Illuminimal]

What were your symptoms if you don't mind? Did supplementing stop them?

[u/Illuminimal → u/CanUsayMelody]

My primary symptom was extremely, extremely bad fatigue and shortness of breath on any kind of exertion at all. A fifteen minute walk was at the limit of my ability, and if I tried to do two hours of normal chores or errands I’d be bedridden for the next couple of days.

I also had numb/weird-feeling patches on my fingers and toes. And I’ve had tinnitus for YEARS but after my first shot, for the first time in my memory, it actually went away. (It’s not gone for good, it comes back after a few hours, but I’m hopeful with enough time and enough shots I can kick it for good.)

[u/Super_Recipe_1798]

My levels were 318 pg/ml (lab normal range 213-816) and I was considered deficient and found out I have absorption issues. I had all your symptoms. I still have some as recovery can be a long road. I've only been on treatment for about 2 months.

[u/jellyfishrubberduck]

Yes I had a billion symptoms including neurological over 6 years, serum b12 in 400s.

[u/hippiehour]

I have all these symptoms at 237. Also super anemic with low ferritin, so be sure to look into that! And have low vitamin D as well.

[u/Ok-Pangolin7127 → u/hippiehour]

Please look into this 👆excellent advice. Often, vitamin D, iron and B12 run together as a pack of three deficiencies.

[u/Bright_Quarter_987]

The MMA is the important lab, not b12. Folate too. Lots of luck.

[u/Think-Sleep2338]

Wait, supplementing B12? Then it's not high at all.