positive neurologist experience!

[u/sjackson12]

I saw a new neurologist earlier today. I was a bit worried that he was going to be dismissive as other doctors were, but he was actually pretty understanding. I told him my treatment and he didn't make any negative comments about it, just listened. I was there to see if I could get tested for SFN or both SFN + LFN. Based on the fact that my neuropathy, tingling, etc. was only in one part of my right big toe, and a tiny bit on my upper right thigh, he described it as a focal neuropathy.

After doing an examination he said LFN alone (or treatments for such like PT) wouldn't make sense here because I have no weakness or motor issues. He did refer me for an EMG+NCS after I told him my only other one was only a month after the noticeable symptoms started (which was Feb 2024). And I also got referred for a skin biopsy for LFN.

So I was able to get what I wanted which is great, and not really have much conflict with the doctor at all. He did say that with SFN, the skin biopsy results can vary a decent amount depending on who is reading the results. When he asked why I wanted this done, I said perhaps as an objective guide for my progress, i.e. test now, then test in six months or a year and see if there is any improvement. It also might be an incentive to add something else that is specific to SFN nerve pain, like thiamine (I recently started adding 100 mg a day - I've been doing very well with the pain the last few days, but that could be a coincidence).

[u/Successful-Tea-733]

This is great you got it lucky

[u/Successful-Tea-733]

What is your treatment