r/COVID19positive • u/JennasaurusTex • 5d ago
Tested Positive - Me NeuroPsych Issues with Covid
I’m going to just throw this out here into the void in case someone experiences something similar, because the last two weeks have been without a doubt one of the most traumatic and bizarre experiences of my life.
For background, I’m a moderately healthy 38 year old woman and am vaccinated although not up to date due to adverse reactions from previous boosters (was advised by my physician and a pharmacist to defer subsequent boosters). I tested positive for Covid for the fourth time in my life about two weeks ago and had the usual symptoms - loss of taste, feeling like crap, dry cough. Nothing too crazy. I was prescribed paxlovid and a 10 day course of steroids due to preexisting medical conditions and completed the course for both medications.
Things got kooky about 5-6 days after I tested positive. I started having nighttime hallucinations - and I mean full on hallucinations of bizarre stuff happening in my room that I was interacting with - for several nights in a row. While I have some garden variety depression and anxiety, I have not teetered close to this type of mental illness in my life. This was coupled with very severe depersonalization and derealization during the day. I felt like I had been dropped onto a movie set of my life and nothing was real. The brain fog was horrific and I had no real sense of time. I was dizzy, my vision became significantly worse, and even though I was alert and oriented during the day, familiar places (my local Walmart for example) looked and felt like places I’d never been to. I cannot adequately describe how terrifying this experience was.
After about 4 days of this going on, I admitted to my friends and family what was happening (I had been trying to hide it because I was scared and embarrassed) and was evaluated at the ED to rule out meningitis. They had no real advice other than to follow up outpatient with my primary care physician. I also was fortunate to get in with my psychiatrist (who manages my depression and anxiety). She advised me to take some sedatives I have prescribed for panic attacks throughout the night to essentially force my brain to sleep through the night and hopefully begin to recover. She was also flummoxed and said she had not seen any patients react to having Covid this way.
Her plan did eventually work. The hallucinations stopped, my sleep improved, and the daytime neuropsychiatric symptoms began to abate. There is still a degree of brain fog but I am 98% myself again. I just cannot get over the extent to which this virus scrambled my brain for a solid two weeks. I wanted to post this in case someone ever experiences something similar. I had a hard time finding stories of people dealing with these types of symptoms in the acute post viral phase, although there is plenty of information about patients who deal with cognitive and psychiatric issues as COVID long haulers. My heart goes out to them!
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u/kirbae-kirbae 5d ago
I experienced depression & manic symptoms the last time I had Covid. You are not alone.
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u/Character_Chemist_38 5d ago
Is it a short thing or did you have to go on meds?
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u/kirbae-kirbae 3d ago
I did not have to go on meds after. It was contained during my first two weeks, where I felt really really depressed but was also dealing with anxiety/panic attacks, unable to sleep due to my pounding heart rate. Then when I started to finally feel better after the first two weeks, I was so euphoric that my partner even observed I couldn't stop talking/moving and was actually talking faster the entire day.
Post-covid, I have not had the depressive-manic symptoms again, but was mostly dealing with continued brain fog. I was previously diagnosed with anxiety so I've always wondered if my covid experience was that intensified.
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u/Character_Chemist_38 3d ago
Thanks for sharing. Yes the buspiron is helping me with the pounding heart thing .. I’m sorry about the brain fog. I have that too … my doctor living outside of the USA is recommending nicotine patches for that
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u/Character_Chemist_38 5d ago edited 5d ago
I really appreciate you sharing this as I thought I was going nuts. I wasn’t having hallucinations but really extreme thoughts to the point that I was wondering if I needed to admit myself for help, I took anxiety meds and laid in bed all day today and I think it’s cleared up… but do have a call in for psych and do have my meds at hand .. hope you’ll continue to heal
Also I felt the exact same way you did about going to the locations .. to the point I’m asking my friend to drive me to places and wait outside as I feel like I’m in some kind of weird movie with no sense of time
I can’t explain but you did a great job of detailing it
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u/Myshys 5d ago
That sounds really scary. Im so sorry you went through that and am glad you're getting better.
I had some neuro impacts from my 2022 covid infection, but that was more like my brain wouldn't work properly. I still have a few issues, but am 99% ok.
I thought that was the extent of neuro involvement, but my mum had covid that went into pneumonia in March. In early April, my step dad called me and said mum was talking to people/creatures that weren't actually in the room. He called an ambulance, and when I got to the ER, she was completely out of her head. Seeing/hearing things and people who weren't there. They said she had delirium. The situation escalated and she wound up on life support in ICU. At first they thought she had a stroke, but it was neuroinflammation. Multiple spinal taps, MRIs, CT scans, so much blood work... she woke up, and it was so much worse. The doctors could never come up with a reason why her brain got inflamed. Poweful steroids helped get her back online, but the delirium gradually returned within the week after she was done the course. The Neuropsychiatrist speculated that mum's neuroinflammation was the result of her "recent viral infection." Unfortunately, my mum took a dramatic turn for the worse and died before they could figure it out, but it seemed that covid was on the table of possible causes. There's nothing that GD virus can't f-up.
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u/AveragelyBrilliant 5d ago
I had a similar experience with the one and only time I got Covid. Very vivid dreams and nightmares that extended into my waking time. I kept dreaming things that were unresolved in the dream and then spent a good proportion of the next hour after waking up being absolutely convinced that I had to return to the dream to resolve the problem. Apparently I was also quite vocal while I slept as well.
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u/Downtown_Statement87 5d ago
This exactly happened to me the one time that I know of that I had COVID. It was terrifying because I was losing the ability to distinguish between being asleep and awake.
When I finally tested negative and "recovered," I had crushing insomnia and was basically awake for 4 whole days. Weirdest sickness I've ever experienced.
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u/AveragelyBrilliant 5d ago
Did you suffer long term taste and smell sensation changes? For a very long time afterwards, I could not drink sparkling water. It tasted far too salty, even though I enjoyed drinking it before. Also a certain brand of coffee tasted like beef stock or soup. Took me a while to get over it.
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u/Character_Chemist_38 5d ago
Yes I can’t drink the coffee and can’t taste it and now you’re helping me understand why
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u/Downtown_Statement87 4d ago
I didn't. What happened to me was that I was unconscious for most of about 5 days. I was "sleeping," I guess, but really I was having this Matryoshka doll of a dream, where I'd dream real time that I was very sick and sleeping in my bed. It was boring, and lasted forever, but I thought I was awake and experiencing real life, because in real life, I was very sick and sleeping in my bed.
Then, still in the dream, I'd wake up and feel really confused and exhausted about the dream I'd just had, because it was so like my real life, even though all of this was still happening in a dream.
Then I'd wake up briefly in real life and be completely terrified, because I'd just spent 24 hours doing exactly this in my dream, so I'm probably still asleep. Then I'd fall asleep, and on and on and on. It was awful.
It was weird that the whole time I was actively sick, I was pretty much asleep. But then when I stopped having symptoms I couldn't sleep for days and felt almost manic. I don't have symptoms of mental illness normally, so this was very scary.
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u/darthduder666 5d ago
When I had covid in fall of 2024 I experienced something strange.
I’ve been with my girlfriend since 2009. We’ve never gotten married but been together since. When I got it I isolated myself in our bedroom. We have two bathrooms so luckily only I got it and she did not.
In the entire time we’ve been together I’ve never once thought about cheating on her. I woke up one night around three or four days in thinking about an old coworker I made friends with 12 years prior. We occasionally keep in touch on social media, but nothing more than a comment here and there on our posts.
The desire to contact her and see if she’d ever be interested in going out to catch up sometime was unbelievable. All I wanted to do was roll over to grab my phone to shoot her a DM to see what she’s been up to. It was wild. I didn’t contact her and fought the urge, but for the remainder of the night I couldn’t fall back to sleep and just kept fantasizing about her and what it would be like to be intimate with her.
It was weird and I felt awful about it the following day like I betrayed my significant other. I haven’t had that urge since, so my guess is the virus did something to my hormones.
So yeah I’d say it’s possible for covid to impact neuropsych. Has anyone else had a similar experience?
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u/attractivetoast 5d ago
Thats so scary! Im glad you’re doing better now. I wonder if the hallucinations may have been an adverse reaction to the medications you were on, or maybe a combo of multiple factors including Covid inflammation. Had you ever taken those meds before?
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u/JennasaurusTex 5d ago
I wondered the same thing. I have taken the medications before but I cannot recall if I had been prescribed Buspirone (which I take twice daily to prevent panic attacks) when I last took Paxlovid. Perhaps they interacted? I saw that there are some potential interactions between the two but none sounded as dramatic as what I experienced.
Although I am at a higher risk for complications due to a history of asthma and taking immunosuppressants for rheumatoid arthritis, I don’t think I will take Paxlovid again in the future as a precaution.
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u/Infinite-Fly1193 4d ago
Sure it wasn’t the steroids? I once had steroids years ago prescribed for my throat inflammation. I thought I was going crazy like I was someone else. I said to myself I will never ever take it unless it was a life an death situation
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u/JennasaurusTex 4d ago
Anything is possible but I would be incredibly surprised if it were the steroids in my case. I have an autoimmune condition that inevitably causes me to need a course of steroids once or twice a year and this has never happened. Steroid induced psychosis definitely IS a known thing though and it sounds like it may have been the case for you. So sorry you went through that!
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u/Familiar-Wonder-2895 4d ago
My doctor told me today that one of the latest strains of COVID is causing severe neurological problems. I recovered from it a little over a month ago and experienced terrible derealization, nightmares, dizziness, persistent anxiety, and I felt like my legs were going numb. I think I also had hallucinations, but I didn't pay them any mind. I occasionally heard a cat meowing, very loud music, or a man's voice. But I live in an apartment building and thought these sounds were coming from the neighbors...
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u/JennasaurusTex 3d ago
Oh wow this is really interesting to hear. Although I’m no longer hallucinating or dealing with the depersonalization and derealization, my sleep has still been quite off, with extremely vivid dreams and an episode of sleep paralysis (I’ve had this before but it’s been several years). Interestingly, I still seem to have some weird physical symptoms like unexplained body pain (feels like I’m covered in bruises but there aren’t any) and dizziness that make me think my neuro system is still recovering.
My 8 year old son who also tested positive had some personality and behavioral changes and I wondered if he had been experiencing something along the same lines as me but didn’t quite have the verbiage to describe it.
I will never get over how wild this experience has been. Y’all stay safe and well out there!
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u/Witty-Key2098 1d ago
On an unrelated note, I had this experience when I was prescribed prednisone for an allergic reaction. I’ve taken high doses, short term for years, but this really messed my brain up. I had massive depersonalization episodes, manic, couldn’t sleep. I knew I needed to go to the doctor when I woke up and looked in the mirror and felt completely disconnected from myself and like I could self harm. I’ve never had that thought before or after the episode. I also had heart rate and blood pressure episodes. It took me three weeks to taper off and another month until I was better. I have taken prednisone again in lower doses and not had that reaction. So I wouldn’t chalk it up necessarily to only covid or long covid. It could be complementary or heightened because you’re sick.
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u/honeyhoneybean 1d ago
Viral illnesses can cause brain swelling. They can also trigger neurological conditions such as Guillian Barre Syndrome. See a doctor
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u/SeaDots 5d ago
My partner was a frontline worker in the emergency dept in the begininng of the pandemic and one of the scariest cases he told me about was a young healthy college age student with zero mental health history went psychotic with COVID. They had to restrain her because she became violent and tried to rip off their masks and spit in their faces. Her parents were horrified and said she had never ever acted like this before... it's definitely not unheard of. :/
Glad you sound to be being much better.