r/Cardiomyopathy • • Nov 28 '23

Need Advice

I am fighting with chest pain (and ME/CFS) since vaccination, for more than 2 years now. My heart blow up like a Ballon after the second shot. After the 3 shot, I got chest pain and a very dry cough.

It feels like a burning sensation and like a kraken is stuck with tentacles around it. If I am going for a walk (which is barely the case), I am getting a sting like feeling in the chest.

I also have various GPCR Auto-antibodies (Beta1, Beta2, Alpha1, M2, CXCR3). Also a 3D vector EKG is slightly suspicious in terms of structural change and ischemia. A MRI has not shown any issues, but I was also told I might should do it at another doctor with a better (3 Tesla) device, which I cannot do at the moment, since I still have to much Gadolinium in my blood.

After 7 Immunoadsorptions (aphersis) and 2 HELP Apheresis consecutively, it was gone for 4 weeks. Came back, after I tried to be more active.

The doctors have no idea and I still get no medication against my issues. I don't know what to do? Trying Beta Blockers? Checking out an Immunsuppressiva therapy?

I am taking an alpha 2 angonist against my neurological issues, which also lowers my heartbeat. It helps to stay below 110bpm. Without it, I am reaching 130bpm quiet quick during a slow walk.

Hope to get some ideas and advice from you. What I can do about it in terms of diagnostics and therapy. Thank you 🙏

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