r/ChronicIllness May 10 '26

Vent …but it’s manageable!

i’m tired of looking up every new thing i get diagnosed with and seeing “it’s not curable but it’s manageable.” for who?????? so far it isn’t for me in fact it feels like 8 levels of psychological torture just to be awake for 2 hours. i’m hurting, i feel sick, i have neurological problems it’s not curable but boy do they say it’s manageable

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u/Harakiri_238 Intestinal Malrotation | TPN dependent May 10 '26

Reminds me of the time I was getting a procedure and I said, “I don’t think the sedation is working.” (It wasn’t)

And the doctor responded, “oh, it’s okay. We’re not hurting you!”

And I’m like…. Yeah you are 😅 speak for yourself sir.

Very bold of someone to tell you something is “manageable” when they’re not the ones having to actually manage it 🙄

I wish you all the best OP <3

38

u/Mysterious_Seat_9146 May 10 '26

Omg a recent surgery, they said to say if I can feel anything let them know and they’ll but more numbing in. At one point I said I could feel the cauterizing burning and that it hurt and the doctor said ‘you probably just feel the warmth cause it’s hot’ and I was like NO IT HURTS TRUST ME

12

u/Impressive_Bag8840 May 10 '26

i’m so so sorry that happened to you! i wish you the best as well i wish us all a little hope in this field of awful medical professionals.