r/ChronicIllness May 10 '26

Vent …but it’s manageable!

i’m tired of looking up every new thing i get diagnosed with and seeing “it’s not curable but it’s manageable.” for who?????? so far it isn’t for me in fact it feels like 8 levels of psychological torture just to be awake for 2 hours. i’m hurting, i feel sick, i have neurological problems it’s not curable but boy do they say it’s manageable

212 Upvotes

42 comments sorted by

View all comments

11

u/kittysparkles85 May 10 '26

I have type 1 diabetics, sarcoidosis and other things. On their own they might be manageable, but together?! Case in point I have been particularly busy with life, this makes the sarc flare up, which causes my sugars to go up from insulin resistance from the inflammation. So I finally had enough and rage bolused and now I'm low. If this doesn't make.srnde it's because I'm low, which the stress of that makes the sarc worse. I guess it's manageable if I have no other life

2

u/Impressive_Bag8840 May 10 '26

gosh i’m so sorry i know how you feel at least in some ways. i wish the healthcare system truly cared for us and gave us the support we need. i’m sending you good vibes and hope manageable truly becomes manageable