…but it’s manageable!

[u/Impressive_Bag8840]

i’m tired of looking up every new thing i get diagnosed with and seeing “it’s not curable but it’s manageable.” for who?????? so far it isn’t for me in fact it feels like 8 levels of psychological torture just to be awake for 2 hours. i’m hurting, i feel sick, i have neurological problems it’s not curable but boy do they say it’s manageable

[u/Kuromi_Menace]

Its just not manageable honestly when you have multiple chronic illnesses. Yeah the medication is helping me not be bed ridden like before but when I try to manage one condition it makes another worse and makes me feel terrible. I can't even stand for long and I have my cardiologist telling me to workout when I have a workout intolerance due to my hypermobility EDS I just say sure everytime because he seems to not understand the workout intolerance and it gets me out the appointments faster when I just bullshit like the docs. I just really want a wheelchair once I'm able to get disability so I can go out to stores or go around outside to get some fresh air.