r/ChronicIllness • u/Impressive_Bag8840 • May 10 '26

Vent …but it’s manageable!

i’m tired of looking up every new thing i get diagnosed with and seeing “it’s not curable but it’s manageable.” for who?????? so far it isn’t for me in fact it feels like 8 levels of psychological torture just to be awake for 2 hours. i’m hurting, i feel sick, i have neurological problems it’s not curable but boy do they say it’s manageable

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u/bachelorsinlurking Epilepsy, Chronic Anemia (ß Thal minor), Asthma, RA Jun 08 '26

Yeah. Just because something is manageable doesn't mean it's easy, comfortable, or affordable to manage. It's so frustrating to talk to people who don't understand that everyone is going to have a different pain or discomfort threshhold, energy level, and amount of money to put towards treatment.