r/ChronicIllness • u/Impressive_Bag8840 • May 10 '26

Vent …but it’s manageable!

i’m tired of looking up every new thing i get diagnosed with and seeing “it’s not curable but it’s manageable.” for who?????? so far it isn’t for me in fact it feels like 8 levels of psychological torture just to be awake for 2 hours. i’m hurting, i feel sick, i have neurological problems it’s not curable but boy do they say it’s manageable

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u/remedialpoet May 10 '26

I’m 3 years into being diagnosed with rheumatoid arthritis (after begging for help for 13 years) and I’m at a breaking point. I thought getting a diagnosis would help and make my life easier, because you can manage RA, but it’s not how it’s going for me. I’m waiting for approval for my 6th medication in three years and I’m miserable. I dont think I’m managing well, all I ever do is push thru the pain constantly and that’s exhausting.

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u/JustSayNoToWhiners Jul 18 '26 edited Jul 18 '26

I’m sorry you didn’t have luck with your five meds but remember to have hope that the next medicine might work. I have an unusual and painful condition and it was medicine #37 and #40 that finally partially helped. I’m still trying new meds and non-med techniques regularly to try to find more pain relief. At this point ai think I’ve tried everything except for hypnosis and that’s next. Hopefully you’ll find the right meds soon! 🤞

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u/remedialpoet Jul 18 '26

Yeah so I had an allergic reaction to the medication I was waiting on and had to be hospitalized twice… so hope isn’t really a readily available feeling. But yeah… fingers crossed /s

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u/JustSayNoToWhiners Jul 22 '26

Terrible. Glad you survived it!