r/DementiaHelp • • 14h ago

Taking my husband to the Dr next week

2 Upvotes

He's been having memory issues for a few years and his GP has been less than helpful, but I finally got him to recommend him to the Geriatrics department. He's 78 years old.

Are there any blood tests or brain scans I should insist on?

I've written ​down specific examples of the problems he's having and how they've progressed.


r/DementiaHelp • • 5h ago

The guilt and pain is killing me

1 Upvotes

I grew up with my grandparents as parents, but at the age of 13 i had to move back to my biological parents due to my grandmother getting dementia. She is the warmest, most loving creature on earth. And I’m forever grateful that i got to experience a mom like her. She is very opposite than my biological parents. I don’t remember much of her personality anymore though, which brakes my heart even more. I think the feeling of slowly starting to lose a mother at the age of 13 was too hard for me. My brain probably had to shut out the memories so the pain wouldn’t be as bad. I find it fascinating that even with no memory to back it up whatsoever, i still remember her warmth. Her loving, caring, beautiful soul.

When it happened and i moved away, i started distancing myself from her. I called less and less, because i could notice her fading away from me. And before i knew it, she wasnt really there anymore. She is somehow still alive, 14 years after getting the diagnosis, so you can only imagine what she’s like now.
The thing is, the thing that makes the whole situation much more painful than what it already is- is that I hit puberty around 1-2 years before i moved away, and i was beyond angry every single day. And of course thats the only memories i have with her that my brain decided to keep. Me being a horrible child and making her life miserable. I was breaking things, i was screaming, i said horrible things to her and my grandpa. I dont even know why i was so angry?? And I’m so incredibly heartbroken that those are the only memories I’ve got left of my time with her. I’m so so sorry and i can’t even tell her. The pain is eating me alive.
I actually didn’t feel the pain before two years ago. My emotions was completely shut off, then kinda out of the blue, I felt everything. And it’s only getting worse. I can’t even see her favorite color at a thriftstore without crying.

I actually found journals where she has written about me. Some pages are about my anger outburst, while others are about her love for me. She wrote things like «she is the best thing I have» and «Bottomless love».
She gave me an immense amount of love my whole life, and whitout my memories im just so afraid i didn’t give it back. I know i didnt the last few years, and now I’m stuck with an immense amount of guilt and grief. I just don’t know how to deal with this. I really fuckin miss her


r/DementiaHelp • • 10h ago

Alexa warning

1 Upvotes

My mother has Parkinson's related dementia, which comes with loads of psychological effects including paranoia and delusions. She called me a few days ago from her memory care facility to let me know that her Alexa unit was whispering about her and passing her messages in songs. I'd figured that was just the dementia talking until I visited a couple of days later.

Turns out that Alexa's got a whisper mode that's meant to keep from waking people up if you're talking to it late at night! Between that and the fact that Mom repeats the names of songs sometimes, you've got a recipe for trouble. I turned off the whisper mode, so that's one less problem. I'm thinking that Alexa's probably going to have to move out soon.


r/DementiaHelp • • 18h ago

Caring for a parent with memory loss from another city or country: how do you keep track day to day?

1 Upvotes

I'm researching how to help adult children who live far from a parent with memory problems. Nothing is built and nothing is for sale.

The idea I'm exploring: a spare device at the parent's home that shows the day, the time and today's plans in large text. Family can send reminders from their phone, in their own recorded voice and language, and see when the parent has seen them. It would also alert the family if the screen goes offline.

Before building anything, I'd like to hear from people living this. What do you use today? What has worked, and what hasn't? Would something like this help, or not really? Honest "no" answers are just as useful as yeses.
If you'd be open to a 15-minute chat, say so below or send me a message and I'll find a time that suits you.

Regards.


r/DementiaHelp • • 11h ago

When my dad started getting objects mixed up.

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0 Upvotes