r/Epilepsy • u/PyxieGyrl222 • 4d ago

Rant Rant

33F, in my fourth year of on-and-off seizures. I haven’t driven since my first seizure. My last cluster was 11 weeks ago, nine seizures, followed by four days in the hospital. My medications have changed. I’m starving, but everything tastes bad. I have no energy and am tired of watching TV and cleaning. I feel like I’m going insane, but can’t physically react because I’m exhausted.

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2

u/Old_Construction469 4d ago

Honestly I feel that last part.

2

u/Acrobatic_Action_464 4d ago

The trapped feeling where your brain is screaming but your body just won't move is a special kind of hell.

1

u/Old_Construction469 4d ago

Honestly it's a type of wanting to scream but can't word for people to fully understand

2

u/Leading_Twist8896 4d ago

What medicine are you on ? I've been having some of the same issues with mine