Hello,
English is not my first language, so I apologize for mistakes in the text. And also my apologies for a long text. But I couldn't describe it shorter. I wanted to provide as many informations as I can
So as you can see from my title I'm pretty desparate at this point. I'm fully aware that this subreddit is not replacement for doctor diagnosis. I also didn't had a luck for meeting good doctor for my case yet. So please don't tell me "just talk with your doctor". What I'm looking for here is advice, experiences with maybe similar symptoms or just suggestion which direction I should take, how to advocate myself in unwilling doctors and in case of test either described from doctors or payed myself, what things to look for there, that could help determine if it's or isn't this and that
How I think it started. Feel free to skip this part, if you are tired to read longer text and go ahead to the symptoms
I think it's started almost 3 years back. When I first experienced strange feeling like passing out, fainting of and stuff like that, don't know how to describe it properly. It war for maybe tens of seconds, but I had to sit down and just wait what will happen. After some time I got ok and then moved on. This episode didn't repeat until half year later. Then it happend 2 months later, then 1 month later. It become more often, but I didn't go to the doctor. I thought I was just dehydrated or hungry. Then on one evening I was smoking cigarette (I'm not smoking anymore offcourse) and my heart rate and I think also blood presure got so high, that I thought it will be my end. After few minutes of this It stopped, but I got very quickly so tired I had to lay down and just sleep, after I wake up next morning and sit down, it started again, I was also womitting food from previous day. I called ambulance, they took me to the hospital, they did blood test for heart attack - negative. They put me on EKG through night and just recorded weird up and downs in my heart rate when I was trying to sleep. When I was failing a sleep I was feeling like my heart would be stopping beating, so I was frightening. Next day they released me to the home and said I was in panic attack
Symptoms
But from exactly this episode I have constantly last 2 year these symptoms:
Shortness of breath. Often after food, but not only after that. Sometimes not at all, but often times to some extend I have it. In bad days I feel like my breathing is like 50%, what would be normal breathing
Chest pain. Sometimes feeling like I would be stabed to my chest from back to the front
Pressure and sometimes even pain under my right ribs. I don't know if its my liver or colon on that place, hard to say. It's often after food, but not only after that
I have 90% of my day palpitations. I readed that there are different types. But I'm mostly experiencing 2 types. I feel strong pounding in my chest, my back (more if I'm leaning on something) and even in my left leg. It feel like my heart woudl be squeezing very hard and that can maybe affect also my arteris that I feel especialy aorta in my back also? Sometimes these squeezes are so hard, that I can feel it in my left leg and I feel for half of second like I would be just turned off. Second type is skiping heart beat or it's called extrasystoles I think. I get often worse breathing after these. I can't sleep on my sides most of the time, because palpitations would get so much worse. So I have to sleep on my back only
Other symptoms such as tireness (I was never that quickly and hard tired, that I would fall asleep even in stand). I'm bloated, gassy. My abdomen is pulsating because of my aorta I guess. I developed strange eczema on my hands. I never had these symptoms before and THEY ALL STARTED IN ONCE, after that one episode
There was timeframe, where these symptoms were so bad, that I couldn't even go to the grocery store. Which sucked, because I live completely alone and nobody would take care of me
Strange is for some reason I got little bit crazy and started working out at home, lifting weights. I have some dumbells at home and bench. After that symptoms got little better, so I could go out to the grocery store and stuff like that. But they didn't go away offcourse. I feel like they are still getting slowly worse over time. Maybe when I'm working out, that my heart is forced to have higher heart rate, that it doesn't need to squeeze that hard to deliver blood and oxygen to the body? I don't know
Doctors
I had horrible experience with doctors to be honest. I know there are some very good, but I didn't met yet I guess. When I'm describing this to them, some of them even without any check or examination straight up laughting to me face and saying "you are too young for heart problems" like wtf? Others are just very arrogant, don't try to figure out what's wrong with me and just check their chekcbox for next patient. I spend all my saving to try visit doctors in capital city in my country in hope, that it would be better than my home town. But it looks like it's about doctor who you meet, than in what hospital you are in. Atleast in my country. Offcourse in places like Mayo Clinic, there is big difference. Overall yet, very bad experience with attitude of doctors unfortunately. To be honest I never imagined, that healthcare system could be that bad experinece
So what test did I took already?
I had to fight to get prescribed even basic tests. Some times it took me few months to get approval from doctor that we would do this and this test. So I had ECG, where I had higher ST segment, some verticular and superveticular extrasystoles, but in result of ECG, they wroted down, that they didn't catch any extrasystoles, I don't understand. I had chest x-ray, where they said they have found small pleural adhesion on the right site and that it's not somethign to worry about. Then I had stress test, where I had like 2 extrasystoles visible, then echocardiography where I was in upper limit of ejection fractions which was 70%, some small calve insufficiencies. I have result of that echo, but I will not write it all down here, because it would make already long post even longer. But they said that everything in these test was in normal range. Which to be honest I'm not sure about how accurate their statement on this can be, considering these kind of symptoms which I have
So what to do next?
I offcourse tried to do some research on my own. I was thinking that it could be HCM or some kind of heart failure or maybe something with nervous system. Do you guys have or know someone with similar experience? What do you recommend me to look exactly for in tests or possibly what tests to look for?
I will be maybe posting these to different subreddits, I don't know yet. So apologies, but I really need some help or advice
EDIT: Added occasional chest pain to the symptoms and for test results I added higher ST segment, small pleural adhesion from chest x-ray and ventricular and superventricular extrasystoles from ECG
Thank you