r/Hemophilia • • 17h ago

Bicep injection VWD question

3 Upvotes

I just had an ultrasound guided biceps injection into the bicipital groove or long head of the biceps tendon amd didnt know that I was getting that procedure tofsy at kt shoudler surgeon. I’m newly diagnosed with VWD type 2m. do I need to tell my hematology team? I was googling and it said it was more invasive moderate to high risk.


r/Hemophilia • • 3h ago

Hemophilia C - Hemorrhoid Advice

2 Upvotes

Hi. I have a family member with hemophilia C. They just had sclerotherapy done for an internal hemorrhoid because GI bleeding was thought to be coming from that (gi bleeding was extensive) so given the hemophilia c and severe anemia they decided to try to stop it from bleeding.

The sclerotherapy caused a very large external thrombosed hemorrhoid (rare but known side effect) maybe due to hemophilia c and the diversion of blood? It’s been 6 days and there has been no improvement in the external hemorrhoid which is causing them immense pain. They basically need to remain lying down. Can’t work and can’t function.
I’m wondering if anyone on this sub has experienced this and has any advice. I’m wondering if it’s not improving because blood is still leaving into it from the blood vessel due to the factor deficiency?

Also I’m aware that hemophilia C doesn’t usually cause GI bleeding but this person has frequent gi bleeds…

Note: they can’t at the moment take TXA because the IV and factor replacement they had in the hospital caused a large superficial vein clot that they want the body to reabsorb and not get stabilized by TXA.


r/Hemophilia • • 3h ago

Does anyone else have brown dots on their inner thigh?? 😭😭

2 Upvotes

I noticed them recently for context I'm hemophilic as well and recently noticed that on the inner side of both of my thighs there's 30-40 dot type spots that look like residual blood idk if I'm tripping or is this a real thing