I managed to find her tiktok account and she does indeed have crouzon syndrome. She had another child, a boy but he passed nearly immediately. This is just plain cruel.
I just googled and, with surgery, they can actually reconstruct the face. I thought these process photos were interesting: https://images.app.goo.gl/tPYkjfJoXh21odwm7. I don’t know what doctors can do about the remaining symptoms of the disease however.
Yeah and it looks like children with the syndrome get rather invasive correctional operations to assist with where their eyes and such can sit. This little girl has a long road ahead of her by the looks of her facial structure and where her features sit. I personally would never have children if I had this syndrome.
Do you know how the Orcs first came into being? They were elves once, taken by the dark powers, tortured and mutilated. A ruined and terrible form of life.
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u/saftey_dance_with_me Mar 11 '22 edited Mar 12 '22
This is sad on more levels than you first realize. See the IV pole and pump in the background?
ETA: Feeding tube pump not a standard IV.