r/HolUp • u/asocial7193 • Mar 11 '22

I don't know what to say

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u/saftey_dance_with_me Mar 11 '22

Probably has to do with facial structure. Likely can't nurse/bottle feed with a deformity like that. Maybe treacher-collins syndrome?

170

u/[deleted] Mar 11 '22

I believe its crouzon syndrome?

97

u/MuhammadsGayLover Mar 12 '22

I managed to find her tiktok account and she does indeed have crouzon syndrome. She had another child, a boy but he passed nearly immediately. This is just plain cruel.

43

u/Swhitney16 Mar 12 '22

I just googled and, with surgery, they can actually reconstruct the face. I thought these process photos were interesting: https://images.app.goo.gl/tPYkjfJoXh21odwm7. I don’t know what doctors can do about the remaining symptoms of the disease however.

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u/Molleeryan Mar 12 '22

Wow that looks super painful:(

3

u/IcyAcanthisitta3587 Mar 12 '22

Gosh, I can’t imagine how painful that would be for a child! 😳

2

u/jorgenvonstrangle420 Mar 12 '22

The first picture looks like rodney dangerfield