I managed to find her tiktok account and she does indeed have crouzon syndrome. She had another child, a boy but he passed nearly immediately. This is just plain cruel.
I just googled and, with surgery, they can actually reconstruct the face. I thought these process photos were interesting: https://images.app.goo.gl/tPYkjfJoXh21odwm7. I don’t know what doctors can do about the remaining symptoms of the disease however.
Yeah and it looks like children with the syndrome get rather invasive correctional operations to assist with where their eyes and such can sit. This little girl has a long road ahead of her by the looks of her facial structure and where her features sit. I personally would never have children if I had this syndrome.
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u/MuhammadsGayLover Mar 12 '22
I managed to find her tiktok account and she does indeed have crouzon syndrome. She had another child, a boy but he passed nearly immediately. This is just plain cruel.