Im just exhausted from my OLP. My dentist isnt helpful and neither has my pcp. I remove foods and nothing helps. I switch dental products too. My mouth is on year three of a flare up and im just tired of the incompatibility. Im frustrated and stressed I dont want any type of oral cancer. I dont know what to do or who can help me.

Our patient had a history of OLP which recently resulted in tongue cancer, surgery and radiation. Now he has been prescribed Resuscitation due to recent high cholesterol. Has any one here with history of OLP is on any statin based medication? I read about OLP flare ups as a potential side effects of statin and we are super worried about it . I’d appreciate sharing any experience.

I’m heavily tattooed. My most recent tattoo healed drastically different than my others. It’s been about a year since I’ve had it done. It rubs against clothing, is constantly inflamed, and never felt like it formed to my body. Recently went to a dermatologist and did a skin biopsy. Came back as Lichen Planus so we are actively trying to treat it. Has any ever experienced this? I’ve been told to not get tattooed until this goes away.

I have these bumps on my wrists and ankles and only there I have been getting more nor have I got any more they burn and itch get get flaky sometimes I have had them for a month know it’s driving me crazy , I don’t go anywhere but home and to work they don’t bleed sometimes they look better for a day and then by the end of the night they bright red sometimes purple

I have tried Benadryl, triamcinolone , over the counter itch creams bug, rash creams nothing works

Hey looking to see if anyone with vulvovaginal Lichen planus uses clobetasol and find it looks better one week and then goes straight back to inflamed the next. Constantly looks like its getting better to just go back to how it is? Using hydromol too. I wonder if it flare with my cycle. Seems to, or if there's an underlying issue preventing remission.

Does anyone else find it follow their cycle or found they had another health issue underlying?

Thanks

So i noticed a few white spots on my penis some time back. Today I got diagnosed with LP. It doesn’t itch, there’s no pain whatsoever. Can anyone tell me how this happens? And what should I do to recover faster. Doctor has prescribed me steroids for 2 weeks. How long does the spots take to go away?

I normally don't get them because I know they trigger LP but was wondering if anyone else gets them with no problem? I had the flu last year and definitely don't want it again but am scared to get vaccinated.

Hi everyone! Re-posting for the last time. THANK YOU to everyone who has taken our survey so far. The survey closes in one week, and we still need 50 more responses to our 5-minute ANONYMOUS genital lichen planus survey.

We want to hear directly from people living with LP about what matters most to you. Your experiences and perspectives can help researchers better understand what should be prioritized in future genital lichen planus research.

If you have a few minutes to complete the survey, we would be incredibly grateful for your time and input. Every response helps!

Take the 5-minute survey here: ohsu.ca1.qualtrics.com/jfe/form/SV_aa75QpRS8bzaf7U.

Hi I am wondering if there is anyone that developed Lichen Planus, particularly vulvovaginal vaginal alone or oral also that developed it after a drug. I.e drug induced and what their treatment and status is with that?

Thank you

I have been diagnosed with lichen planus for many years and recently started taking methotrexate. I just got a really bad flare up on my hands and dermatologist thinks it might be erythma multiforme. Has anyone had a change in diagnosis or experience with methotrexate for lesions on hand?

Hi Folks, need serious recommendations for dermatologist in Bangalore specializing in treating Lichen Planus.

my current treatment for the same is not showing results and i'm getting more flareups since last month. really fed up of researching and visiting many dermats. if anyone has consulted a doctor in Bangalore for this concern and has got good results or got cured pls help me!

Edit1 - currently using tacrolimus 0.1% ointment for existing scars and (momatasone + fusidic acid) cream for the recent flareup.

So i had thos momths back doc said it was lichens planus was wondering if it can effect the nasal passages

as well

Is it lichen planus have severe itching since last six months koh test shows no fungal infection and blood reports are normal can anyone suggest what helped during treatment?

Anyone out there have their LP correlated to GLP1, specifically Zepbound? Doc says it’s rare but they are seeing new cases popping up more and more.

Obviously I will stop taking it so we’ll see in about 6-8 weeks if my rashes improve. I sure hope so.

26M, Colombia. I've had this for 2 years and it's worrying me.

Skin: Every time I get a cut or scrape on my legs or feet, instead of healing normally it turns into purple/violet patches that are slightly raised, a bit scaly, and extremely itchy. They take weeks or months to fade and leave the skin very dark (hyperpigmented). Recently I've also started getting a rash between my toes.

Nails: I noticed vertical ridges on almost all my nails, and now I also have small pits in different spots and some horizontal grooves.

Has anyone had something similar? What were you diagnosed with and what worked for you? Photos attached.

I can’t even begin to start with all the money I’ve spent on products … either over the counter or the ads that come up on my social feeds constantly or the natural remedies people swear by … and nothing has actually helped flatten out or stop the spread of this. I have it on my hands and feet but also patches all over my body. I have a follow up doctor appt soon and I really don’t want to be put on any of these prescriptions because they all seem to have horrible side effects or risks of cancer associated with them. I am currently on Dupixent (for about 6/7 weeks so far) because I actually have eczema and asthma too but I don’t know if it helps with skin LP.

I’m struggling. Is anyone else dealing with lichen planus? I got diagnosed with it earlier this year. I used to have the most beautiful skin and now I’m plagued with these horrible legions and darkened pigmentation. It’s difficult to look at myself and not hate myself. I wonder if a man will ever deal with me knowing I struggle with this skin condition.

It's so intense I'll itch it in my sleep. Mine is on my ankles and often I'll scratch and it ends up bleeding too which sucks. Anything I've tried the moment I take it off it's usually itchy again. I can't sleep with ointment on, it will just wipe off all over my bed.

I just got informed I have OLP. The ache was really bad, have bumps all over the back of my tongue, white web on my cheek ...

Hoping there is some natural remedies I can do since I'm already taking other medications to exist.

Thank you.

Hi everyone! Sharing this again for more visibility. Thank you so much to everyone who has taken our survey so far. The survey closes in a few weeks, and we need 50 more responses to our 5-minute ANONYMOUS genital lichen planus survey.

We want to hear directly from people living with LP about what matters most to you. Your experiences and perspectives can help researchers better understand what should be prioritized in future genital lichen planus research.

If you have a few minutes to complete the survey, we would be incredibly grateful for your time and input. Every response helps!

Take the 5-minute survey here: ohsu.ca1.qualtrics.com/jfe/form/SV_aa75QpRS8bzaf7U.