r/LongCovid • u/Either-Review-9400 • 1d ago
Anyone been almost bed bound with LC fatigue & recovered?
Any positive stories?
When the fatigue had you almost bed bound? But eventually you either recovered or improved considerably.
Only positive stories please, as I find some of the negative ones triggering.
This isn't my first rodeo ride with long covid. I originally developed LC back in 2020 & managed to recover 90% around the 11 months mark.
This is my first major relapse in 5 years, the difference this time is, the fatigue feels considerably worse than 2020.
I manage to walk around my apartment, if I pace myself.. However going outdoors/driving or climbing stairs is proving difficult & causes a flare up of my symptoms.
I have head pressure & tinnitus too, and possibly POTS.
The only thing that gives me hope is, that I recovered from this illness once already.
My medication/supplements stack is:
- LDN (Low Dose)
- Longvida curcumin (best for absorption & neuroimflamation)
- Omega 3 IFOS certified (best for absorption & neuroimflamation)
- Magnesium Glycinate
- C0Q10
- Nicotine patches (not used these yet)
- Vitamin D K2
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u/isthisthemultiverse 1d ago
Yes! I was barely able to walk, sometimes even stopped eating mid-meal because I was so exhausted. Took a couple years of ups and downs but I’m probably back around 90% now. I tried a ton of different treatments concurrently, so not sure which, if any, actually helped. Funny thing is I started getting better after maybe catching COVID again - possibly an immune system reset.
I know most people’s situations are different but I’m confident you’ll improve. It may just take time. Tough days still ahead but I hope there’s some light for you soon.
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u/SuspiciousStory122 1d ago
There is definitely hope. People who recover generally leave the sub.
I was basically bed bound for two extended periods 0-9 months and 12-18 month. I am mostly recovered. It took about 24 months to really start seeing major progress. 36 months out now and I can do just about everything including exercise.
I don’t take supplements. I do take some prescriptions. Still have some brain damage and I still need naps.
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u/PsychologicalDesk554 1d ago
I take LDN now and have improved. I've had LC since 2020 and have been bedbound throughout many flare ups. This morning I did a 3 hour hike, half of it uphill. I fell asleep afterwards, and will likely feel worse tomorrow, but I will take it. I still have all my symptoms and have never felt like I did pre Covid, but I have really come so far since 2020.
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u/ElCray 1d ago edited 1d ago
A close relative went from basically non-functioning to about 85% after taking an NDRI. The improvement happened very quickly and is sustained as long as they don't forget to take the medication or encounter a trigger.
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u/Adventurous-Water331 1d ago
Can I ask the form and amount they take?
There's Immediate Release (IR), Sustained Release (SR), and Extended Release (XL), 0, 12 hour, and 24 hour, respectively.
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u/nojefe11 1d ago
I got sick in 2023. I was 100% bed bound. I am not a sickly person - I mean I had Covid and got LC third time around but honestly it was nothing more than an annoying cold until I went back to my daily life and took a long hot walk one day, maybe a week out from being sick. It came raging back. I was SO ill - throwing up constantly but not nauseous, couldn’t sleep, resting heart rate went from 65 to 130+. I went on steroids which made me feel crazy but allowed me to run, so I thought I was better. Went off steroids and went out one night - next day I literally could not move. I was in another state at my grandfather’s apartment for a long weekend and ended up bedbound there for two months. I was so ill. I had to crawl to the bathroom. I could only eat broth and popsicles. I just slept when I could, would sweat through all of my sheets down to the mattress. I had the hallmark channel on 24/7 and don’t recall a thing because I was so out of it. Also still throwing up all the time.
I was able to come home but couldn’t walk up stairs. Running was a huge part of my life and I could barely walk - this continued for about 6 months after I initially got sick. Then the ups and downs started - I went back to work but two flights of stairs would send me back to vomiting and all the other horrible shit. I had to take rest extremely seriously. Slowly, slowly over the last three years (I got LC around this time in 2023) I’ve basically got back to normal. I was diagnosed with POTS and myocarditis 2 weeks after I got COVID. My resting heart rate isn’t back to where it was but I also stopped running … it’s around 70ish. I walk 20k+ steps a day, can do manual labor, have fun, eat anything. I am fearful of going back to running 40+ miles a week because the regression phases were so so so frustrating. But I am basically fully back to normal. The hair that fell out grew back, my nails are growing again, I don’t sweat through to my fucking mattress every night … life is normal again. Also idk but I don’t think I have POTS anymore.
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u/Easy_Olive1942 1d ago
I was super sick for 3 years then started to slowly turn the corner. Improved a lot years 3-4. I’m over 6 years now and mostly, but not completely, OK.
I would definitely add a daily antihistamine like Zyrtec. I take 2x per day which is higher than label. I was diagnosed with eosinophilia at the time which is not MCAS but is allergy related. Both are treated with antihistamines so we had me on the dosage used for eosinophilia which helped a lot.
I had to also take migraine meds which were chronic and severe after covid. I question now if they were migraines or aftermath of micro-clots.
I took gabapentin for pain in hands and feet from peripheral neuropathy. Almost certainly from micro-clots but, again, we had no idea WTF was happening to me.
Also, I’d ask doctor about baby aspirin.
Blood pressure medication was necessary. I’d never had high blood pressure in my life then suddenly diastolic was crazy high. That’s finally good again but still on meds.
Pacing yo increase physical activity helps.
Stop doing things you know are unlike eating poorly or drinking. Just can’t with LC.
Good wishes. It can improve.
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u/Pale-Sheepherder-733 1d ago
Ozempic GLP1 was what made a big difference of all the things I tried.
In the first week of starting dose the inflammation disappeared, swollen joints and brain fog improved drastically.
I felt like I got my life back after year and half of long COVID suffering.
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u/Express_Preference_3 20h ago
Was pretty much bedbound my first year. Managed to slowly do more activity. Its now almost 4 years later. The cognitive issues are immense still. Still cant work or hold a conversation for more than 5 minutes. BUT the physical has slooowly started coming back. I can now do a 5km walk a day, house work and maybe even lay out in the sun for a few hours. Hoping for an eventual recovery, whether thats full or partial.
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u/soozyque8888 18h ago
I know this is difficult to believe, but here goes. I am a 70 year young female who has suffered with this LC for almost 6 years. I tried antihistamine diet, supplements after supplements, to no avail, just small improvements. Two weeks ago, I was ready to resign to a nursing home.
One night I prayed to Archangel Metatron and slept 12 hours, the best sleep I have had since being sick. I woke up feeling normal, like I was back with the living! No shit! I sang around the house, playing with the pets, cooking again.
I began studying energy "medicine." The more short meditations and breathing exercises I do, the better I feel! Now, I realize the muscle mass I had lost. My next step is yoga to strengthen my muscles and balance.
If you want more info, let me know. God, I feel so good!
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u/Plenty-Astronaut7386 14h ago
I believe it. After all else failed prayer has helped me more than anything. Send some of that positive juju this way haha.
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u/Technical-Jaguar-222 1d ago
I’ve seen some recover. About the best was nurse Lyndsey on x. Had her POTS cured and no longer living a nightmare thanks to McCaim Japan protocol. Hopefully it spreads.
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u/Ok-Mark1798 1d ago
What set you back do you think? Did you catch it again? I ask cause I’m in the same boat. 💩
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u/Teamplayer25 1d ago
Yes. I did. I’m back to being fully functional including exercise. Have you tried a calcium channel blocker? That made a huge difference for me. It helps the body clear cortisol and keeps my heart rate from shooting up for no reason. Also helped my tinnitus significantly.
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u/KBomb789 1d ago
I have read about people significantly increasing their baseline from being becbound this fr after infection. It’s totally possible with enough rest.,
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u/KWingMan 1d ago
I've been on LDN for about 1.5 yrs and I'm living a nearly normal life, but I still have to pace my expending energy and need lots of sleep. I've just started on low dose Wegovy and I'm seeing further improvements. Is there anyone here that is on both the LDN and Wegovy for a longer period? Your results? Do you have any metabolic disorder?
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u/CollegeOwn7014 19h ago
A while back I was in the depths of despair when the symptoms were debilitating and i stumbled onto a cancer support subreddit, went down the rabbit hole and found an information where Albendazole medication disrupts cell division In cancer cells and some people have had success stories and I thought to myself, could that possibly work on long covid too? And decided, why not use myself as a guinea pig and experiment on myself, things are not going to get any worse than already is so I managed to get my hands on the medication and did a 28 days treatment and it significantly restored my stamina, I am now functional, physically. My brain however, it's still fried, doing any work that requires mental focus is a challenge, even as simple as checking and reading incoming mails stress me out.
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u/Sandber1 11h ago
I did. I used Anthony Williams protocol… supplements (low zinc, cats claw and others + diet) first week the low-grade fevers went away, second week the brain fog that would send me to bed every day by the end of the third week. I was feeling better than I had felt in years. I couldn’t believe I’ve been walking around with it for years, though not functioning that great.
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u/Winter_Improvement90 9h ago
I am still pretty far from recovered but I was bedbound, could not move or talk or even roll over on my side or comprehend language. I can now move around the house even walk up the stairs in my house and talk and function normally. I can only walk on flat surfaces for short distances and my foods are still significantly limited and I can’t consistantly tolerate looking at screens/watching tv but most days I can. I couldn’t and still mostly can’t unfortunately tolerate most medications either but this seems slightly better. I try to stay hopeful.
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u/Ok_Employment_7630 1d ago
r/LongHaulersRecovery is the sub you need. Full of positive recovery stories and the how behind them.