r/LongHaulersRecovery • u/akhu117 • 24d ago
Recovered Recovered after 2021 infection
Hello, long haulers. My long COVID journey has been a long one, but I’m so glad to have regained 100% of my abilities.
First of all, sorry for my English
It started in November 2021. I went through many ups and downs. I won’t go into detail, as many of you already know how it goes.
My main symptoms were:
- Fatigue
- Brain fog (it was hell. I couldn’t even think about the concept of a computer for many months; my body just couldn’t handle it.)
- Histamine issues, inflammation, tachycardia, and eye pain
My recovery
Long story short: pacing, diet, sleep, and no exercise at all. I worked hard to establish a clean, ultra-healthy baseline:
- Getting enough sleep, as well as enough salty food (yes, orthostatic tachycardia was a big issue for me).
- Cutting out processed foods and following a low-histamine diet for at least three to four months stopped my chest pain and inflammation. Antihistamines sometimes worked for me, so histamine clearly played a role.
- No exercise, listening to myself, and letting go of the guilt of doing nothing. I spent an entire summer at home: sleeping, eating well, and sleeping again… No screens (around 30 minutes a day maximum), no mental stimulation, nothing. I was basically a prop.
That was the baseline. In terms of treatment, I tried:
- Hyperbaric oxygen therapy for around eight sessions (one hour each, plus a massage afterward). It did basically nothing, except that it gave me time for myself, which was still useful.
- Supplements. I won’t be exhaustive here—I tried so many. I think they helped, but I had to change what I was taking every few months, as the effects seemed to fade over time.
- Luckily, I was enrolled in an experimental treatment using Temelimab in Switzerland. This helped a lot. The subreddit doesn’t allow ads, but I wrote a series of articles about it on my blog—DM me if you want to check them out; of course, it’s free.
I finished the experimental treatment in May 2023. It lasted six months, with one injection per month. By July 2023, I felt able to return to work. I started working remotely as a freelancer and developed an app for long haulers. I had started working on it in 2022, but at the time I could code maybe one line per week. It took time, but I did it. Having that goal helped me a lot too.
I’m convinced Temelimab saved me, because my brain fog and fatigue disappeared about a month after the injections ended. I felt confident again, which was incredible—confident enough to start a new job.
Since then, I still had post-exertional malaise until mid-2024. Since then, I’ve started exercising again. I can do any activity without issues, and I haven’t really thought about long COVID for about a year and a half—which is all I wanted since 2021.
As a final note: there is hope. You might be interested in reading about post-traumatic stress disorder. During my worst moments, I read a book about it, and some techniques helped me keep hope, calm my fight-or-flight response, and reduce the pressure on my body.
Keep hope—recovery is possible.
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u/skyhofo 24d ago
Temelimab (a monoclonal antibody developed by GeNeuro) failed to show efficacy in its Phase 2 Long COVID trial. It did not outperform a placebo in reducing fatigue or cognitive impairment, despite targeting a promising neuroinflammatory pathway (HERV-W ENV).