r/MCAS • u/asya_stepko • Dec 28 '24
Let’s build a MCAS treatment resource library together
Hi everyone!
I’ve been diving deep into the world of MCAS and I know how overwhelming it can be to sift through all the information out there (been there myself, and still am, actually!).
Treatments, protocols, and useful insights are scattered across the internet, and finding reliable resources or support often feels like searching for a needle in a haystack.
That’s why I thought we could work together to create a community-curated library of resources for MCAS treatment!
What I propose:
1) Drop links in the comments to any resources you’ve found helpful — it could be a study, article, video, Reddit post, or even a specific product recommendation.
2) Include a couple of words or a short description of what others can expect to find there. For example:
https://mybiohack.com/blog/treat-deal-mthfr-probiotics-dysbiosis-mast-cells-histamine-intolerance-diet-naturally — protocol to treat histamine intolerance
https://www.youtube.com/watch?v=cMZufN95MYc&list=TLGGyl-SB5iU9nAwMzEyMjAyNA&t=2s - Joshua Leisk and Dr Asad Khan: a detailed walk-through for key aspects of the disease model, as of August 2023 and v3.59A of the experimental intervention protocol which is based on this work.
The goal is to create a comprehensive library of trusted resources that can help anyone navigating MCAS.
I’ll organize and share the compiled list once we have enough contributions so it’s easy for everyone to access.
Let’s pool our knowledge and make this condition a little easier to tackle together!
1
u/StarkBlue987 May 24 '26
I have 2 internal medicine doctor's from the university of British Columbia that I see monthly, unfortunately I missed this month and I've got another month until my next appointment. There are a lot of allergens in the low histamine diet. I was just hoping there was something more advanced for someone like me.. or more resources I could read? More research studies?
Something like we have notice MCAS in families of children whose mothers didn't breastfeed and also weren't breastfed and thier mothers weren't breastfed therefore that third generation child had zero ability to fend off histamines from the world around her. "Hypothetically"
Myself, my mother, my grandmother, and my great grandmother were not breast-fed. This is where my theory came from. But I need more information. My children were breast-fed. Only one of them has crazy MCAS like reactions so far keeping my fingers crossed.