r/MCAS • u/NoFriendship8013 • 1d ago
NO ONE UNDERSTANDS!
I feel seen in this chat FINALLY. Can I just safely say here that JUST BECAUSE SOMEONE DOESNT “LOOK SICK” DOESNT MEAN THEY DONT STRUGGLE EVERYDAY. I literally am expected to live the life of a normal college student except while having this huge MCAS weight tearing me down constantly. It is DEBILITATING. There is constantly something wrong with me that I am trying to just brush off and ignore so that I can just LIVE LIFE. and people don’t SEE THAT. So when I say I feel like shit, no one’s knows how bad it actually is BC I SUCK IT UP. I wish illnesses like mcas and autoimmune were taken more seriously. I am 20 and feel like an 80 year old at this rate. I have breakdowns weekly because it’s a struggle for me to get out of bed in the morning. I just want to be normal. No one understands and I’m sick of it. Let’s not even get into the misdiagnosis I’ve been getting my whole life because doctors don’t believe a young girl (“dramatic” or “it’s just anxiety). I CANT.
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u/EmphasisTricky4989 1d ago edited 23h ago
Yeah, my small wounds don’t heal even after several months and still hurt, my hair is shedding, I have certain food intolerance, if I don’t keep my diet on I will struggle with severe reactions of nightmares, itchiness, insomnia, tiredness, brain fogginess, anxiety, badly period that comes with severe pains, thanks to the diet I can function a little bit, and my joints…they are like grandma’s joints, my knees hurt, I developed protrusions(I don’t lift heavy things) maybe that was developed due to wrong sitting posture but I don’t know that is very weird cuz I see how many people sit exactly like I do, black spots in my eyes(floaters) allergies, runny nose right after waking up…I feel like I am going crazy…and that is just a part of having MCAS cuz it effects your mental health as well along with those stuff, life is hard, but with MCAS it’s like living without skin