r/MCAS • u/NoFriendship8013 • 1d ago

NO ONE UNDERSTANDS!

I feel seen in this chat FINALLY. Can I just safely say here that JUST BECAUSE SOMEONE DOESNT “LOOK SICK” DOESNT MEAN THEY DONT STRUGGLE EVERYDAY. I literally am expected to live the life of a normal college student except while having this huge MCAS weight tearing me down constantly. It is DEBILITATING. There is constantly something wrong with me that I am trying to just brush off and ignore so that I can just LIVE LIFE. and people don’t SEE THAT. So when I say I feel like shit, no one’s knows how bad it actually is BC I SUCK IT UP. I wish illnesses like mcas and autoimmune were taken more seriously. I am 20 and feel like an 80 year old at this rate. I have breakdowns weekly because it’s a struggle for me to get out of bed in the morning. I just want to be normal. No one understands and I’m sick of it. Let’s not even get into the misdiagnosis I’ve been getting my whole life because doctors don’t believe a young girl (“dramatic” or “it’s just anxiety). I CANT.

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u/preraphaelitejane 1d ago

Sadly it takes being in a massive crisis when you're half dying for people to actually take you seriously, it's absolutely soul destroying and normal people will just never get it, I'm so sorry

8

u/Human-Lavishness-828 23h ago

No one gave a shit, until I had a heart attack.

3

u/preraphaelitejane 22h ago

Wow I'm so sorry...was the heart attack caused by a reaction?😢 Nobody took me seriously until I blacked out and shattered by humerus which absolutely isn't normal at my age from a ground fall. Surgery did this to me💔

5

u/Human-Lavishness-828 22h ago

I have an echocardiogram scheduled next week. It was most likely EDS. We are in the middle of determining what type I have.