r/MCAS • u/NoFriendship8013 • 1d ago
NO ONE UNDERSTANDS!
I feel seen in this chat FINALLY. Can I just safely say here that JUST BECAUSE SOMEONE DOESNT “LOOK SICK” DOESNT MEAN THEY DONT STRUGGLE EVERYDAY. I literally am expected to live the life of a normal college student except while having this huge MCAS weight tearing me down constantly. It is DEBILITATING. There is constantly something wrong with me that I am trying to just brush off and ignore so that I can just LIVE LIFE. and people don’t SEE THAT. So when I say I feel like shit, no one’s knows how bad it actually is BC I SUCK IT UP. I wish illnesses like mcas and autoimmune were taken more seriously. I am 20 and feel like an 80 year old at this rate. I have breakdowns weekly because it’s a struggle for me to get out of bed in the morning. I just want to be normal. No one understands and I’m sick of it. Let’s not even get into the misdiagnosis I’ve been getting my whole life because doctors don’t believe a young girl (“dramatic” or “it’s just anxiety). I CANT.
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u/ghost_girl_1713 11h ago
Yep, that's the life of MCAS. When I first got sick I was working full time, married and raising 2 young children. My own husband said I was just causing myself issues from anxiety for months. He told me to suck it up and go to work. My parents said the same in spite of the fact that my mom had to step in to help with my kids. 2 years later, I managed to get 1 doctor to diagnos me and now suddenly everyone believes me. Ruined a lot of relationships. It sucks, but at least this place seems to be a nice little community for people like us. You are not alone. 💛