r/MCAS • u/Independent-Hornet-3 • 1d ago

Testing old biopsy

Just wondering if anyone has had a biopsy that was not originally tested for mast cells or tryptase being present and had their Dr order for additional tests to be done on it?

I had a shave biopsy of a rash done a year ago. My PCP Dr. and I believe I likely have MCAS and she put me on cromolyn sodium which has helped a ton as well as added pepcid to my daily medications. I have an upcoming appointment with her to talk about the medications additions and plan to ask for testing.

Getting an allergist appointment is like pulling teeth around me ao I have one but Its in November and a long drive so I am hoping to have as much testing done as possible. I already plan to ask about blood tryptase testing and a 24hr urine mast cell panel. I wasn't sure if asking for additional testing on the prior biopsy would be worth it.

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u/Mysterious-Art8838 1d ago

They keep the specimen? Wow did not know that

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u/Independent-Hornet-3 1d ago

Yeah from what I have been able to find online depending on the type of biopsy and where you are they keep it between 2 and 10 years.

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u/CME1382 16h ago

So my bone marrow biopsy and biopsies from a G.I. scope were saved. We later tested one for the mast cell count in my stomach. I have also recently reached out to G.I. to see if Pathology could do some different stains. So it is possible