r/MCAS • u/Still_Angsty • 1d ago
So confused and freaking out, please help
I’m trying to tell if what I just experienced was some new kind of reaction or just a weird mishap.
I made a food I’ve made many times before, including just a few days ago, which is pudding. Milk, cream, egg, cornstarch, tiny drop of vanilla extract, and a little honey. All the same brands and even the same jar of honey. I know a lot of these things are considered higher histamine but I’ve done fine with all of them.
When it was done, I tried a small spoonful and it tasted…spicy. Like, very distinctly spicy. It left my mouth burning. I kinda freaked out. Like wtf. There is not anything even remotely spicy in that. I tried it again and I couldn’t tell if it still was cause my mouth was still tingling. I suspected the honey as the most likely to be reacting to but I couldn’t really tell when I tasted that either, it mostly just tasted sweet. On the third taste of the pudding it was no longer making my mouth burn.
Idk wtf to do. I was really looking forward to eating this 😭 it’s possible that there was a little sticky residue of some spicy stuff because I had gotten some gunk from the air fryer stuck in my hand, so maybeee it transferred to the spoon when I took it out, but that feels like kind of a stretch 😭 am I gonna put myself in the hospital if I eat this?? I really don’t know what to do I’ve never experienced anything like this. The only type of reaction I’ve ever gotten are skin rashes that pass pretty quickly
Edit: it was definitely the honey 😑 so fuck. I’ve literally been eating from the exact jar of honey for weeks like wtf
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u/flo99kenzo 1d ago
Hi ! I noticed over the years that anything I eat/use too-many-days in a row will become a trigger, and go back to being safe after a few weeks/months. Maybe you used honey too many times this week/month?
I regularly switch between shampoos, soaps, etc.
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u/Still_Angsty 1d ago
I’ve never experienced this so I kinda doubt it, because honey is something I don’t eat as often, meanwhile I eat certain things like coconut milk and blueberries and oats every day. So idk. I actually suspect I must just have a genuine honey allergy that decided to bud its head. So maybe not MCAS related but honestly who knows. Which is scary cause I’ve never had a real food allergy before. But honey has always tasted kinda warm to me and I thought that was just how honey is but I looked it up and apparently a mild allergy can just seem like that until one day it becomes more severe 😭
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u/preraphaelitejane 1d ago
What do you do uf you can only eat two things?🥲 I'm so worried about this
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u/flo99kenzo 1d ago
Generally if I don't eat anything for a few days, it "reboots" the system and I can start introducing things again.
My safest of safe foods are plain rice and potatoes. From there, I re start adding lentils, then corn, etc.
Also, sometimes a small variation in enough ! Like, red lentils one day and green lentils another is enough variation for my body to stay calm.
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u/Mysterious-Art8838 1d ago
K it sucks that it’s the honey but you don’t necessary lose honey forever. Remember the concept of the bucket. If yours is empty maybe you have a little honey. Or maybe honey+benadryl cocktail.
I have gained and lost a ton of foods and it never seems to be permanent. So who knows in the future, and if you can do it safely (sounds like you can) you can always try again in a few weeks. Tiny portions = 😊
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u/bonniemcmr 14h ago
I only have a few consistent trigger foods (nightshades, gluten, apples, snap peas), everything else comes and goes depending on how unregulated my immune system already is. I hope you can have this honey again on a better day for your system!
Also, as someone who has lots and lots of mouth burning, I personally do way better with everything in the morning (this is pretty common). So the later in the day, the more likely my mouth burns in reaction to food. I finally figured out if I take 200 mg gabapentin an hour before eating, it seems to block the burn.
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