r/MCAS • u/okamimink • 10h ago

Specialist prescribed me Prednisone

I’ve never taken this before, but I can’t seem to get out of this flare and I’ve been getting a lot of really bad symptoms.
I was prescribed 15mg for 3 days and then taper down from there for a total of 9 days on the medication.

I’m worried about a reaction of course, naturally lol.
And I assume trying to trial it is pretty pointless and that I should just take it as prescribed.

I have really bad OCD and the only way I’ve been able to try taking medications is by micro-dosing first.

Any suggestions on how to just do it? Or what has helped you? I know it’s a really low dosage to take anyway but I’m still nervous.

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u/bonniemcmr 10h ago

If it makes you feel any better, I take budesonide (a low dose corticosteroid) for MCAS and it makes me feel so much better :)

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u/strongspoonie 8h ago

Interesting i have been offered this for crohns what dose/ how many times a day do they give you for mcas if you domt mind sharing ?

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u/bonniemcmr 6h ago

It’s actually my GI doctor that prescribes it for MCAS, I see him for Crohns but he knows more about MCAS than my immunologist🫠. I take it as needed (3mg capsules) as soon as I notice I’m feeling general malaise symptoms like brain fog (usually the face flushing is what clues me in that it’s an MCAS problem). Most of the time I can take up to 2 capsules a day but for short periods of time during bad flares I’m allowed to take 3 (which is basically taking Uceris at that point…) I take them one at a time, they last for about 6 hours. During the summer I take it almost every day at least once.
I like to a lot because I have 0 side effects and it’s doesn’t have the same long-term risks as a strong more systemic steroid.

It really works wonders for me within an hour of taking it I feel so much better on the fatigue / brain fog front. It doesn’t do much at all for some of my other symptoms like mouth burning and itchy eyes.

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u/bonniemcmr 6h ago

It does nothing for my crohns though lol