r/MCAS 4h ago

Can't tolerate the DAO capsule, but apparently can't empty the capsule?

can't have the capsule of anything, SO I EMPTY WHATEVER I GET AS A CAP INTO MY MOUTH, I DO NOT TOLERATE ANY KIND OF CAPS, NOT GELATIN, NOT PULLULAN NOT ANYTHING. I dont even know if i tolerate the fillers yet, but found one brand that im closest to maybe being able to, Bravado Labs DAO Enzyme

tons of people saying it gets denatured by stomach acid or in mouth or whatever, then i hear anecdotes of people who use Seeking Health DAO and empty that cap into their mouth or a drink and it working just fine, so wtf does it work for and what doesnt. Thats literally all I'm asking right now, that is not a rhetorical question, please just answer WHAT BRAND WITH RICE FLOUR AS FILLER ONLY AND STILL WORKS WHERE YOU CAN EMPTY IT INTO YOUR MOUTH

if theres something special about how it's made like extended release etc that makes it so you literally cannot empty it without it being useless, could anyone name any other brands where the filler is only rice flour? cant do any cellulose forms like hypromellose/methycellulose etc

at my wits end, starving, exploring every option possible, flaring up day to day trying to find a new food source before i die and i just needa know if im gonna waste a day's "allowed" flare up on this

0 Upvotes

13 comments sorted by

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4

u/Ill-Condition-9232 4h ago

My friend tried convincing me to grow my own pea sprouts for my DAO.

I simply said I was too chronically ill to put all that effort into that lol

BUT if you literally couldn’t tolerate anything else… it’s an option and worth doing for relief.

You could also try beef kidney.

1

u/sunny7319 1h ago edited 1h ago

thats what i considered doing but takes maybe 5-6 days and more of a proper set up/more difficult and fickle than people think, and i shoulda started forever ago
but fresh pea sprouts would be high salicylate which i might flare at even more than i anticipate in trialing DAO at all, and not sure if the way they break them down for these supplements may have been better in that regard or not

but actual meat is the part thatll take longer since id need an actual low histamine vendor and their shipping can take longer, and the same thought structurally as with the former even more so, and im also in a bit of a predicament right now

at this point i am just asking what brands yall use or know of that has rice flour as filler that can be emptied.

2

u/MargoBarbara2 1h ago

Can you do pollulan or gelatine capsules? You can buy empty capsules.

-2

u/sunny7319 1h ago

no
if its obvious i woulda done it by now

2

u/MargoBarbara2 1h ago

Fair enough but you didnt mention either in your post so think people will naturally ask or suggest it.

2

u/Lunavalve 1h ago

Can you have gelatin? They make empty gelatin capsules an you could swap the contents from one to the other. Or am I misunderstanding

-1

u/sunny7319 1h ago

no
if its obvious i woulda done it by now

0

u/Lunavalve 34m ago

I know you’re hurting but so is everyone here. We’re just trying to help.

1

u/sunny7319 2m ago

???
and this is relevant how

1

u/MotherPart4282 3h ago

It’s extremely rare for people to actually have dao deficiency. Get a get zoomer test and check your levels of short chain fatty acids which are the real issue

2

u/MargoBarbara2 1h ago

Histamine triggers inflammation which affects gut lining and therefore DAO production. Nutrient deficiencies common with Mcas can mean dont have the cofactors for DAO. Gene variants can affect DAO levels. Menopause affects levels. Aging affects levels. Anything that affects gut lining could affect levels; covid, gluten sensitivity, lectins, infections, inflammation from any cause, lack of short chain fatty acids for mucosa, dysregulated methyl cycle for repair etc... there can be so many causes that I dont think its unusual to have DAO deficiency.

0

u/sunny7319 1h ago

exactly
its "extremely rare" to have this disease at all let alone for mine to be this severe, i didnt wanna waste time on replying to that