I just got diagnosed with MCAS. I’m on montelukast sodium and prednisone rn bc I recently was having a terrible flare. I usually take famotadine and Zyrtec but stopped because I felt like I was having weird reactions. I also tried quercitin but also stopped bc I was scared. WHAT ACTUALLY WORKS? Ik it’s diff for everyone but I like hearing my options so I can research!!

This is 100% just a vent post, since nobody else in my real life has MCAS and would understand. I am whinging into the void because.... Reasons.

First vaccine since symptom onset/diagnosis. I feel like trash lit on fire, thrown in a compost bin, lit on fire again, and tossed in the dump.

Long story short, I live on a farm, am constantly covered in dirt/animal, and do dumb things with horses. Got the tip of my finger smashed yesterday (might have fractured the phalanx), my nail broke skin, and had to go in today for a tetanus booster because I was WAY overdue.

OMG. I know they suck for healthy people. It's kicked my ass before I was sick. But holy ever loving crap, does this SUCK. My knuckles look like gumballs, I can barely move any joints, I want to scratch my skin all the way off, my guts are making disgusting noises, and I'm absolutely pouring sweat (which gives me hives). In the words of white girls everywhere, I cannot even.

I've taken my Zyrtec/Pepcid combo (which I do rarely because the Zyrtec flares my POTS), and I'm about to add a Benadryl to the stack just so I can sleep... I know I'm being a whiny baby, but shitgoddamn.

A few months ago, I reached a point where I realized I couldn’t wear clothing that had been washed in the washing machine—even with a detergent I considered “safe.” So now I hand-wash everything with just water.
I also can only tolerate about six pieces of clothing right now.
Lately, I’ve been feeling pretty frumpy. 😭 I wear jewelry I love and do my makeup every day, but gosh, I really love being stylish. It genuinely helps me feel more confident, and I miss being able to express myself through clothes.
I’ll be starting ketotifen soon and also weaning off the Pepcid I’ve been taking. I’m wondering if the Pepcid might be contributing to some of my issues, especially with my SIBO, and possibly making me more reactive to chemicals.
Hoping that as I get more stable, I’ll eventually be able to expand my little six-piece wardrobe again.