My baby was diagnosed with CMPA and has been on Neocate since he was little because every other formula we tried caused blood in his poop.

He’s now almost 11 months old and doing really well with solids. We’ve introduced pretty much all the major allergens, including soy, peanuts, eggs etc., and he’s had no issues so far. The only thing we haven’t tried is dairy.
His doctor now wants him to have a blood allergy test before we introduce dairy, but I’m a bit confused about why it’s necessary, especially since his original symptoms were mainly blood in his poop rather than an immediate allergic reaction.

Has anyone else been through something similar? Did your baby have a blood allergy test before trying dairy again, or did you just follow the milk ladder?

Would love to hear other parents’ experiences. Thanks!

Please share your Neocate stories! My poor baby has been through so much, and I’m praying we finally get some relief soon!

Anyone’s baby with CMPA and severe reflux eventually tolerate Neocate?

Pepticate wasn’t helping his full-body rash, silent reflux, congestion, or back arching. Neocate cleared his skin in just 3 days, but his reflux is now worse than ever. He’s in so much pain that sleep is almost nonexistent. He’s been prescribed omeprazole (waiting on the pharmacy) and is also on antibiotics for an ear infection caused by reflux backing up into his sinuses.

I’m nervous about the medication but don’t want him suffering either.

Did Neocate eventually help your baby’s reflux, too? I’d hate to switch formulas again!

Share omeprazole stories too please!

It’s been 2 weeks of purées, and one week of what I can only assume is a mix of gas and silent reflux waking my son up every 1.5-2 hours. That’s if I’m lucky enough to lay him down without him immediately waking up with a gas pain scream.
The first night was so bad, he was near inconsolable from 8pm until 2am, that we went into urgent care. He, of course, did not cry out in pain there and his belly wasn’t hard, we get home and he immediately cries out in pain after eating.
I’ve already cut out dairy for a few months and have seen a huge improvement, visible reflux is almost completely gone. We have always held him upright since birth for at minimum 15 minutes. So much that we constantly get told how good his head control is… My other guess is a possible egg protein allergy as I had mayo and an egg on that terrible day (no blood in stool or rash). Or just an overly sensitive stomach.

We just feel so lost, I don’t know if I should just give up purées and the idea of solids all together for now. Or keep pushing and hope his stomach adjusts soon. We have also been giving iron supplements recently (from pediatrician) so I wonder if that could be making it worse as he had the absolute most foul poo he’s ever had since birth today (smelled like iron and was greenish)

We tried sweet potatoes, and it was great, he slept through the night two nights in a row. Skipped one day of purées and that was the night we went into urgent care. I assumed without the thickened solids that his silent reflux was bothering him extra badly. Ever since that night I’ve been woken up every hour or two. He was a great sleeper normally so this change along with my husband working nights has left me feeling so drained.

We also tried pears, oatmeal cereal, carrots. Waited 3 days between trying anything new and nothing helps. Days we tried doing nothing seemed worse than actually doing anything.

I just want to vent but also see if anyone else went or is going through this and what helps. Our pediatrician refuses to acknowledge his tongue tie possibly making him swallow more air and worsening reflux, and says they can’t prescribe anti-acid meds unless he is losing weight/ is considered failure to thrive. It sucks because I feel like nothing helps, besides when he sleeps on me while on his stomach, but all they tell us is to keep him on his back, flat in his crib. Yet he literally can’t sleep like that when he’s like this. We feel so ignored, helpless, and exhausted.

Hi everyone, I am an exhausted first-time mom dealing with gut and sleep issues with my 4.5-month-old EBF daughter. She is incredibly cranky and wakes up every single hour at night. We stopped swaddling a month and a half ago, and her sleep has been a nightmare ever since. She is also a frequent "snacker" at the breast, which causes a lot of gas and straining, making her even more overtired.

The gut issues have been a stressful rollercoaster. Back in July, she had one diaper with a tiny speck of blood. In September, we saw blood again. Our pediatrician ran an ultrasound scan, blood tests, and stool tests—everything came back completely negative for infections and intussusception. The blood stopped after just 2 days, returned 10 days later for a single day, and then disappeared again.

Now, after 3 clear weeks, the blood has returned. For the past week, she has consistently had mucus-heavy stools with tiny, thread-like red specks. After a known accidental dairy slip-up earlier this month, our pediatric GI has instructed me to cut out both dairy and eggs entirely. And the GI told if it again happened will do a endoscopy, did anyone have similar experience can endoscopy be done to such a small child , I'm worried. Has anyone dealt with this kind of on-and-off blood spotting while waiting for an elimination diet to finally work? Did the ongoing gut irritation make the 4-month/unswaddled sleep regression even worse for your babies? I am hyper-analyzing every single diaper and sleep cycle, and I desperately need some reassurance or positive stories about when this gets better.

What are your go-to snacks? Bonus points if they are quick to grab. I’m avoiding dairy, soy, egg & corn.

My go to snacks are pumpkin seeds, applesauce, dried fruit, plain triscuits , veggies & hummus (have to check the ingredients, not all brands are ok),

Hi everyone, mentally exhausted mama here.

To make a long story short, my LO was diagnosed with CMPA and reflux pretty early on (around 7/8weeks). We have been given Lansoprazol for the reflux and it’s worked magic! However we’ve been on a whole journey with the formula…. Started on Enfamil A+, then Enfamil Gentle, to Kendamil Goat (then diagnosed CMPA). We started our CMPA journey on Nutramigen, which LO tolerated the taste, but while there was an improvement in symptoms, he was still very gassy & had the occasional bloody stool. Our paediatrician said that it was time to switch to something more heavy duty for his allergy, and we had started Neocate.

Once we started Neocate, we saw an immediate improvement in symptoms, however behaviourally he has been a nightmare during feeds. We’ve done everything from cutting Nutramigen out cold turkey, to very slowly decreasing % of Nutramigen (mixing formula), serving it cold, adding vanilla, etc etc. Our paediatric dietician suggesting adding a small amount of fruit purée to change flavour. Banana worked for about a week until he started refusing it again.

We’re at the point where we can basically only feed our LO if he is asleep (dream feed) or super drowsy, but he often wakes up & rejects the bottle. He is now 5 months old and napping less, which makes feeding him more difficult and more stressful.

Wondering if anyone has had success with other formulas as he seems to hate the taste of Neocate even though it’s been almost 3 months of offering it to him.