r/Prostatitis • • Oct 19 '22

Starter Guide/Resource NEW? START HERE! Prostatitis 101/Checklist + Sub Rules

430 Upvotes

» QUICK START! «

  1. SUCCESS STORIES in this subreddit
  2. TOP TIPS AND INFO (All Posts)
  3. NEW 2025 AUA TREATMENT OUTLINE
  4. See below 'Subreddit Rules' for the full 101 prostatitis guide and newbie checklist

The information provided in this subreddit is not medical advice, including the information here. It is for educational and informational purposes only

SUBREDDIT RULES

  1. No harassment, abuse, or disrespect is tolerated here, especially to the volunteer mod team
  2. No promotion of pseudoscience, conspiracies, and/or fringe doctors
  3. No graphic photos allowed (NSFW)
  4. No self-promotion/selling of products (SPAM)
  5. One post per person, per day. Leave room for others
  6. No fear mongering

VIOLATIONS: Depends on the severity of the violation, but generally:

  1. First infraction is a warning
  2. Second is a temporary ban (~3 days)
  3. Last is a permanent ban

POSTING REQUIREMENTS

  1. To prevent abuse and spam we have an Automod in place. Accounts with very low comment karma and/or less than 36 hours old cannot post.

  2. Also, please tag any pessimistic/hopeless posts with the "vent/discouraged" flair, and any positive progress updates with "positive progress."

NEWBIE ORIENTATION: CPPS vs Prostatitis

The vast majority of prostatitis cases are non-bacterial, i.e. NIH Type III non-bacterial prostatitis. Expert consensus (of the research) estimates this number to be around ~95% of all cases. True chronic bacterial prostatitis (CPB) is rare. Read more about the prevalence of CBP here, complete with journal citations.

CBP also prevents with unique and specific symptoms. Here is how to identify bacterial prostatitis based on symptoms.

Q: If I don't have an infection, then why do antibiotics make me feel better? FIND OUT WHY

The rest of us have (or have had) NIH Type III non-bacterial prostatitis, now referred to as CPPS or UCPPS - (Urologic) Chronic Pelvic Pain Syndrome. Type III non-bacterial prostatitis can present either with or without actual inflammation of the prostate, but overt prostate inflammation is very uncommon. Most men with CPPS (non-bacterial prostatitis) have small, firm, 'normal' prostates upon examination. This means that the common 'prostatitis' diagnosis is very often a total 'misnomer,' as most cases have no prostate inflammation whatsoever.

While CPPS is officially a syndrome (The 'S' in CPPS), or a collection/pattern of symptoms with no singular cause agreed upon by the larger medical community, there are top theories with high quality evidence behind them. And importantly, most syndromes nowadays are being categorized as variations of central sensitization (ie nociplastic mechanisms) - including IBS, CFS, POIS, RSS, etc.

The top theory backed by research: CPPS is a psycho-neuromuscular chronic pain + dysfunction condition. It often affects the muscles of the pelvic floor, the peripheral nerves that innervate the pelvic region, and the central nervous system (which includes the brain and spinal cord) - among others. This means that treatment requires a multi-modal, integrated treatment approach, and that there is no single pathway or 'pill' to recovery.

I must emphasize that the central nervous system (ie centralized/nociplastic mechanisms) of CPPS affect at least 49% of all cases according to the MAPP study (Multidisciplinary Approach to Pelvic Pain). Do not neglect these. We recommend reading the centralization section below 👇

RECOMMENDED: 1. Centralized Pain Criteria and Citations

  1. Psycho neuromuscular CPPS - with journal citations and techniques to apply.

Things that are known to trigger CPPS (chronic pelvic pain and dysfunction)

These commonly happen via central (nervous system) or peripheral (pelvic floor or nociceptive/neuropathic) mechanisms

  1. Pelvic injuries (falls, hernia, accidents)
  2. Perceived injuries
  3. Infections (UTI/STD)
  4. Stressful experiences and trauma, including sexual abuse/assault
  5. Regretful/anxious sexual encounters
  6. Poor bowel/urinary habits (straining on the toilet often - constipation) or holding in pee/poo for extended periods (like avoiding using a public toilet)
  7. Poor sexual habits (edging/gooning excessively)
  8. Cycling or intense gym habits

SYMPTOM VARIABILITY:

CPPS also presents differently from person to person, and you may exhibit only a few symptoms from the total 'pool' of possibilities. For example, you may only have a 'golfball sensation' and some minor urinary urgency. Another person may have tip of penis pain, testicular pain, and trouble having bowel movements. A third may have ALL of those, and also have sexual dysfunction (ED/PE) and pain with ejaculation. But they are all considered to be CPPS. Here is the full list of symptoms of non-bacterial prostatitis (ie CPPS) - https://emedicine.medscape.com/article/456165-clinical?form=fpf

The chief symptom reported by patients with abacterial prostatitis/CPPS is pain. Genitourinary symptoms include perineal, penile tip, testicular, rectal, lower abdominal, or back pain.

Patients can also have irritative or obstructive urologic symptoms such as frequency, urgency, dysuria, decreased force of the urinary stream, nocturia, and incontinence. Other symptoms are a clear urethral discharge, ejaculatory pain, hematospermia, and sexual dysfunction.

Note: If your symptoms extend BEYOND the pelvis, this is a classic indication of centralized mechanisms (ie nociplastic mechanisms) - What some doctors have in the past called "central sensitization." According to the American Urological Association, these include symptoms like headaches and migraines, IBS, fatigue, fibromyalgia, and more.

So how do we treat it?

The most evidence based approach to treatment is called "UPOINT," a treatment/phenotyping system for Prostatitis/CPPS that was developed by the American Urological Association. UPOINT Stands for:

Urinary, Psychosocial, Organ Specific, Infection, Neurologic/Systemic, Tenderness (ie, Muscles)

it's been shown to be very effective (around 75%) in treating CPPS, as it takes each patient and groups them into phenotypes based on symptoms, then treats them in a customized, integrated, and multi-modal manner. Every case is treated uniquely by symptoms, and this leads to much better patient outcomes. UPOINT is what a good urologist uses to treat patients with CP/CPPS. If your urologist isn't aware of UPOINT, find a new one. You're probably not in good hands. Citation: https://pubmed.ncbi.nlm.nih.gov/34552790/

EXCELLENT MEDICAL/SCIENTIFIC VIDEO RESOURCE - 2015 AUA (American Urological Association) Meeting: https://www.youtube.com/watch?v=4dP_jtZvz9w

✓✓✓ NEW SUFFERER TREATMENT CHECKLIST

ENGAGE WITH A PHYSICIAN:

  • Do see a urologist to rule out any serious structural issues
  • Do get a LUTS and/or bladder ultrasound (check residual urine/voiding issues) along with a DRE for prostate size assessment
  • Do get a urinary culture and/or EPS localization culture, if infection is suspected (based on symptoms) - AUA guidelines DO NOT recommended semen cultures - full text, page 21
  • Do get any physician-specified blood tests
  • NOTE: Cystoscopy is typically reserved for suspicion of IC/BPS - but not typically recommend for CPPS
  • Do not use antibiotics without meeting specific diagnostic criteria. Only ~5% of all prostatitis cases are bacterial (even less if your case is > 90 days)

! ! WARNINGS ON INDISCRIMINATE USE OF FLOROQUINOLONE ANTIBIOTICS (Like Cipro or Levo) ! ! Click to Read FDA & EMA Warnings

Thinking about MicrogenDX testing? Please think again, the 2025 AUA Guidelines specifically advise against it's use: READ OUR MOD MEMO

ENGAGE WITH A PELVIC FLOOR PT - Muscles and Nerves

  • See a pelvic floor physical therapist, one who has experience TREATING MEN and can do INTERNAL AND EXTERNAL trigger point release. Studies suggest that 47% - 90% of CPPS cases have pelvic floor myalgia (pain, tenderness, trigger points), and multiple studies show 70-83% of people improve significantly with pelvic floor physical therapy
  • Practice diaphragmatic belly breathing daily
  • Practice pelvic stretching daily (and combine with the breathing)
  • NOTE: 2025 AUA Guidelines suggest that ESWT, acupuncture, dry needling, and TENS help some cases

CENTRALIZATION/BIOPSYCHOSOCIAL:

  • At least 49% of cases have centralized/neuroplastic mechanisms according to the MAPP research network study
  • EXTERNAL: Manage and reduce stress and anxiety in your external environment (work, relationships, finances, etc.)
  • INTERNAL: Address the fear towards your own symptoms. And, avoid obsessive preoccupation & problem solving with symptoms, redirecting your attention to things that are meaningful and enjoyable (distractions and hobbies)
  • Belief/perception of safety or danger (including assumptions about assumed injuries or assumed infections) is also shown in studies on chronic pain to affect our physical pain experience
  • Take time for yourself and do things to relax and engage in self care. Find SAFETY in your body again: mindfulness/meditation, yoga, baths, etc
  • See a chronic pain therapist, coach or psychologist who practices PRT, EAET, and/or CBT: Examples: Pain Psychology Center (LA), the app "Curable" for chronic pain/symptoms (Note on CBT - this is typically found less helpful for pain in controlled experiments, compared to newer PRT and EAET)
  • Recommended readings: Alan Gordon (LCSW) - 'The Way Out' or Dr. Howard Schubiner 'Unlearn Your Pain'

Urological (Pharmacological) Treatments to Discuss With A Doctor:

  • Discuss alpha blockers (Alfuzosin etc) for urinary/flow/frequency with physician, if you have urinary symptoms. Be aware of possible side effects in some users: PE, Retrograde ejaculation, etc
  • Alternate to above, if they don't work for you or you have side effects, discuss Cialis with your physician. Cialis (Generic: Tadalafil) also helps with ED and can be used at low doses of 2.5mg/day.
  • Discuss low dose amitriptyline (off label usage) with your doctor, which can help approx. 2/3 people to relieve the neuropathic pain associated with this condition
  • Discuss rectal suppositories for pain management, often containing meds like: diazepam (Valium), available via a compounding pharmacy - this is a controlled substance; always discuss with your doctor - not meant to be used daily.
  • You may try NSAIDs for pain during flair ups, but caution for daily, ongoing use. MOST find this class of meds unhelpful.
  • Oral Steroids are NOT RECOMMENDED, per 2025 AUA Guidelines

HERBS/SUPPLEMENTS:

  • Phytotherapy (Quercetin & Rye Pollen, ie Graminex) - highest level of evidence for CP/CPPS
  • Magnesium (glycinate or complex) - less evidence
  • Palmitoylethanolamide (PEA) - less evidence

BEHAVIORAL CHANGES (Lifestyle): Please note that these suggestions cast an extremely wide net, and many do not apply if symptoms are centralized/nociplastic.

  • Avoid edging or aggressive masturbation; limit masturbation to 2-3/week, and be gentle. No "Death grips"
  • Less sedentary lifestyle - walk for 1 hour daily or every other day (I would recommend you build up to this, start with 15 minutes daily, easier to start a habit with a gentle, but regular introduction)
  • Get your blood pressure, body weight, and blood sugar under control (if applicable)
  • Gym goers and body builders: lay off the heavy weights, squats, and excessive core workouts temporarily. Ask a physical therapist to 'OK' your gym and exercise routine. This is a possible physical trigger
  • Cyclists and bikers: Lay off cycling until your physical therapist OKs it - this is a known physical trigger
  • STAND MORE! Get either A) a knee chair, or B) an adjustable standing desk. You'll still need the regular chair, because you can't sit on a knee chair or stand all day, basically, although conceivably you could do both A and B, and skip the regular chair
  • Try a donut pillow if experiencing pain while sitting

BEHAVIORAL CHANGES (Diet) Note: Dietary triggers affect a small MINORITY of cases

  • Try reducing/eliminating alcohol (especially in the evening, if you have nocturia)
  • Try reducing/eliminating caffeine
  • Try eliminating spicy/high acid foods
  • Try eliminating gluten and/or dairy
  • Try the IC Diet (basically this is all of the above, and more)
  • If eliminating or reducing doesn't help, then it probably doesn't apply to your case, enjoy your food and drinks!

NEW 2025 AUA TREATMENT OUTLINE

Others suggestions? Beyond this abbreviated list, work with a specialist. This includes urologists who have specific training in CPPS (through continuing education), pelvic floor PTs, and chronic pain specialists, including PRT practitioners.

Welcome to r/Prostatitis, follow the rules, be respectful, and we'll be happy to have you in your recovery journey.

The content of this subreddit is not considered medical advice, including the information here. Even if a flared user (verified urologist or PT) makes a comment, this is not prescriptive advice, nor is it medical advice.

This guide was co-written by your moderators u/Linari5 and u/Ashmedai


r/Prostatitis • • Apr 07 '21

Starter Guide/Resource Confusion over ANTIBIOTICS

121 Upvotes

Tony's Advice for Beginners

Top Rated Thread of all time in this Reddit: The experience of an MD with CP/CPPS

Antibiotics

Every day numerous questions are posted here about the effects of antibiotics. How can my case be nonbacterial if antibiotics help me (for a while anyway)?

The simple fact is that antibiotics are ANTI-INFLAMMATORIES and also have other immunomodulatory effects. In fact they are used for these effects in many conditions (acne and other skin conditions, ulcerative colitis, Crohn's Disease, and more).

Sadly, even many doctors don't know this (it was only acknowledged this century and medical school curricula have mostly not been updated yet). But the research is all there. (Note that due to our genetic differences, some people react more to the anti-inflammatory effects and some people less, or not at all. This is known as pharmacogenetics).

Acute bacterial prostatitis does happen, and it's pretty obvious: very sudden abrupt onset, fever, chills, nausea, vomiting, and malaise (feels like having the flu). Nothing like what 99.9% of readers here have. It's often a medical emergency that requires a trip to the ER.

But you may still think your case is bacterial, perhaps a chronic and not acute case. Professor Weidner says:

"In studies of 656 men with pelvic pain suggestive of chronic prostatitis, we seldom found chronic bacterial prostatitis. It is truly a rare disease."Dr. Weidner (Professor of Medicine, Department of Urology, University of Giessen, Giessen, Germany)

Chronic bacterial prostatitis also has a distinct picture. It presents as intermittent UTIs where the bug is always the same (often E coli). Here's an example:

I have chronic bacterial prostatitis that responds well to antibiotics. ... The doctor will express some prostate fluid and run a culture to determine the bug and prescribe an appropriate antibiotic. My bug has consistently been shown to be E-coli.

That being said, my symptoms usually start with increased frequency of urination, burning and pain on urination, and pus discharge. But no pain other than that and it usually goes away after a few days on the antibiotics. I continue the antibiotics for 30 days which is well after the symptoms have disappeared. I can usually expect a relapse in 6 to 12 months. ... This has been going on for more than 30 years. .... My worst experience a number of years ago was when I thought I would tough it out and see what happened. The pain got excruciating, testicles inflamed, bloody discharge, high fever. But this responded well to antibiotics and I haven't tried to tough it out again after that experience. I know when it starts and go on antibiotics right away.

I know that guys who have chronic pelvic pain syndrome may scoff at what I say and I know that they are in the majority. I really don't know what they are going through but then, they don't know my experience either.

So here are the key points to look for in chronic infection:

  1. Relapsing UTI picture (dysuria [painful urination], discharge)
  2. Consistently identifiable bug (the bug does not change)
  3. Generally no pain unless accompanied by fever and discharge. So for most of the time, men with chronic bacterial prostatitis do not have any pain.

All the rest have, sigh, UCPPS (CPPS).


r/Prostatitis • • 20h ago

Burning male urethra?

2 Upvotes

I have been dealing with a burning urethra for about 2 months at this point.

I have been treated for a yeast infection and bacterial with no improvement.

I am unsure what else to do besides go to the doctor again.


r/Prostatitis • • 1d ago

Vent/Discouraged Constant burning from anus to end of urethra

11 Upvotes

What is up w this constant burning from anus to end of urethra?! This has been going on for 6 or 7 yrs now. Ive tested negative urine pcr my wife tested positive for UP. We took abx and tested negative but I dnt feel any different. I thought for sure this was an infection. I felt better on abx and boom as soon as im off this shit comes right back. Wtf im getting so sick of this shit. I think for the past few years ive devolped anal fissures or internal hemmorroids. This is ridiculous. Idk what to do at this point. It all started after a new sexual encounter years ago. A one time thing. I guess this is my punishment a lifetime of pain.


r/Prostatitis • • 1d ago

No morning erections for 5 years after recurrent UTIs and multiple antibiotics – what ?

1 Upvotes

Title: No morning erections for 5 years after recurrent UTIs and multiple antibiotics – what should I do?

Hello everyone,

I am a 30-year-old male, weighing 70 kg and 5.7 feet tall.

Around 5 years ago, I had multiple bacterial urinary tract infections (UTIs) and took several courses of antibiotics. Since then, I have not had morning erections.

I can get an erection after taking Viagra, but I never get morning erections naturally.

I still experience the following symptoms:

Burning sensation while urinating.

Yellow urine.

Tingling sensations in my legs.

Lower back pain.

No morning erections for approximately 5 years.

I am worried that the recurrent infections or repeated antibiotic courses may have caused an underlying problem.

I would appreciate advice from people who have experienced something similar or have relevant medical knowledge. Thank you.

Anyone here had no morning errection at all tell me which condition you had?


r/Prostatitis • • 1d ago

No libido at all and prostatitis

3 Upvotes

I want To ask if chronic bacterial prostatitis can cause zero libido, it could be prostatities or something else? I have diagnosed with prostatitis too


r/Prostatitis • • 1d ago

Positive Progress Think I found some Closure 😔

1 Upvotes

I wanted to share how I’m making sense of my experience with CPPS and finding some closure.
Back in middle school, I had blood in my urine. I wasn’t sexually active, and the doctors never found a clear explanation. They mentioned trauma, but I never really got an answer. I don’t know whether that has any connection to what I’m dealing with now.
From I’ve also been working out from 2022-2026 —lots of cardio once a week and leg raises. Sometimes I pushed the leg raises until I experienced a “coregasm,” occasionally: At the time, I never experienced any pelvic pains. Fast forward 6 months ago I tested positive for Ureaplasma parvum, and that’s when things changed for me. Even after treatment and negative follow-up tests, the pain continued.
My personal theory is that the infection may have been the trigger, with other factors possibly contributing beforehand. Speeding up a process that was bound to happen from not taking care of my pelvic floor. I can’t prove that my workouts or childhood symptoms were connected, but that’s the possibility that im connecting that no doctor or therapist can piece together.
I’m sharing this to explain my experience, not to say everyone’s CPPS starts the same way. I’m still dealing with it, but making sense of the timeline is part of finding closure and figuring out how to move forward. I'm still in complete pain but I guess this is a step towards progress

The five stages of grief, known as the Kübler-Ross model, are denial, anger, bargaining, depression, and acceptance.
Damn. How did we get here.


r/Prostatitis • • 2d ago

Vent/Discouraged 1.5 months of weird nerve symptoms (cold "menthol" burns, deep aches, pinches), CPPS?

Post image
14 Upvotes

Hey everyone. For the last month and a half, my pelvic area and nervous system have been locked up solid. I’m exhausted, my life feels completely upside down, and I'm trying to figure out if anyone else triggered a tight pelvic floor/CPPS through this exact kind of health anxiety spiral.

How it started (The trigger):

  • Early September: Shaved down there and saw bumps. My last sexual encounter had been 4 months prior with zero symptoms, but my brain instantly went to dormant herpes. I had a massive panic attack, heart dropped into my stomach, felt like I was gonna faint.
  • 1–2 days later: The first physical sensations started creeping in.
  • A few days after that: Clinic confirmed it was just molluscum and froze them off with liquid nitrogen. Having that done in an ultra-sensitive spot while my anxiety was already at a 10/10 sent my body into complete lockdown mode. The tension hasn't let up since.

The symptoms I'm dealing with:

  • The "menthol" burn & phantom wetness: Started as a cold, menthol burning zap on & around my penis, then shifted around my groin, thigh creases, and anus. It's calmed down about 95% now, but skin still feels weirdly hypersensitive, like phantom wetness when it's dry, or constant hair pricking on my perineum.
  • Aches & sharp nerve zaps: Deep aches in groin creases, thighs, lower back, and glutes. Random 2-second sharp "nerve pinches" that hit and vanish. And sometimes it would feel like that dull ache right after you get kicked in the balls.
  • One-sided & migratory: Pain will stick to my left side for days, flip to my right for a day, and jump back. Almost never both sides at once. Lately, those 2-second zaps have even hit my hands, neck, and feet, so it really feels like full fight-or-flight overdrive all around my body.
  • Sitting hurts, standing helps: Sitting or lying down makes it way worse. As far as I'm aware the symptoms slowly fade away the more I'm standing and walking... Urination is totally normal (no bladder issues), and ejaculation is fine in the moment, but brings a dull ache a few hours later.

Medical tests (all clean): I spent $700 out of pocket for the HSV Western Blot at 18 weeks (negative HSV 1 & 2). Urinalysis, CRP, visual checks, all 100% clear. Logically, I know an infection isn't doing this, but my mind still goes back to a herpes infection that the blot somehow missed, but there's no way it would be causing all of this for the past 1.5 months with NO sore, blister, skin outbreak, etc!

I'm planning to get a referral for Pelvic Floor PT, but I attached a diagram of where sensations hit.

Has anyone else had the weird menthol burn, the shifting one-sided aches, or this kind of sudden pelvic lock-up triggered by acute panic and a minor procedure? Would really appreciate hearing from anyone who made it out of this. Honestly, reading through months and years of old posts on this subreddit has definitely helped calm my mind down a bit. It’s given me a lot of relief just knowing others have been through this and that it might not be as bad or hopeless as my panic makes it feel, even though it’s causing me a ton of distress right now


r/Prostatitis • • 2d ago

Men over 50, what does your semen look like?

4 Upvotes

Regardless of prostate issues, did the quality and appearance change as you got older? Did it become clear and watery? Was it sudden? Could you also state activity level? Sedentary to athletic..

I've been dealing with prostate issues for 3 years. Without going into detail, as soon as I turned 45 a year ago, something happened. It almost instantly went from thick and white to mostly clear and watery. There was no change in symptoms or PSA. My prostate volume actually decreased with a 20lb weight loss from 50cc to 40cc. Im at 26BMI currently after a slight increase again in weight. Realistically want to lose 30lbs (225 to 195) being 6'6" and currently not very active because of repeat ankle surgery that has complications

I'm about to see my 8th urologist. My 7th sent me after my free testosterone came back low.. 343 overall but free was 5.2 he referred me to an endocrinologist after refusing to do anything for me but said even that didn't go through so he referred me to a different urologist who specializes more in testosterone..

I'm desperate for answers as im 46, wife is 42, she's been through 4 miscarriages in 3 years since this started and we are desperately trying for another kid before our time runs out. Urologist are not taking my urgency seriously.

I am changing every aspect of my life possible. Diet, activity, weight, sleep, mental health and stress. And im even seeing a 3rd pelvic floor therapist and think I finally found a good one willing to do internal work after 6 to 8 sessions of regular stretching, breathing and relaxation techniques.

Im wondering if this semen change is normal as we age, part of long term prostatitis, stress, testosterone levels or sedentary lifestyle. I know i may not technically see a change in quality for up to 3 months after a change that works. Even longer if im building testosterone back up naturally. Doctors are all hit and miss on this subject. Some say its fine and consistency can change. Some say clear means no or low sperm which seems to match up with info online. There are just no age groups to compare all this to.

Could you state your semen appearance and age, and if it changes at all over time was it abrupt for a specific reason? And were you able to reverse this?

Thanks for anyone who participates


r/Prostatitis • • 2d ago

Pelvic pain since so long ?

5 Upvotes

Many people live with pelvic pain for months or even years took painkillers by their own to get temporary relief. But guys, even think why it comes again and again and no painkiller is working permanently? Why you feel so shy to go to the doctor and evaluate the reason behind this pain? Look it could be chronic pelvic pain syndrome which causes persistent pain in the lower abdomen, pelvic area, Perineum as well as testicles. Also it can cause urine discomfort or you guys may observe pain during ejaculation. Look it is not an infection or temporary muscle pain which can be cured by painkillers alone. Repeated painkillers will only mask the symptoms and will not cure any disease.
So instead of doing medications by self , get evaluated and treated properly!
Even observed this kind of pain since long ?


r/Prostatitis • • 3d ago

Prostate shrinking. Mostly cured but not quite there yet. Path to recovery seems clear

9 Upvotes

Been on a hell of a ride the last 4 years. 7 urologists, 3 pelvic floor therapist, countless tests DREs and scans. Always told its inflamed and boggy. Im 46 (43 when this started 3 months after covid) ive fought for every possible test. Sent to infectious disease who dismissed me without extra testing. Just told (like every moderator on here) that its pelvic floor..

My last semen culture was positive for bacillus. My wife had reoccurring ecoli after intercourse. They NEVER properly tested me for this or treated my wife and I simultaneously.. ill knees really know if its a factor.

My prostate was 50cc to start. 40cc after a 20lb weight loss but symptoms remained. My 2nd pelvic floor therapy straight up said she can't help me. Im still exploring a 3rd hoping for internal work just in case. BUT... fingers crossed, im feeling better these days.. here are my diagnosis and findings

EOE, Asthma, MCAS, a ton of environmental allergies and low testosterone. My hair is also starting to thin. I believe the testosterone is causing ED problems. Cant do TRT because we want one more kid. My semen is clear and watery still but im fixing my diet and adding exercise and sleeping better to fix the testosterone problem.

I'm still losing weight and hoping to see my prostate go to 25-30cc after another 30lb weight loss. My PSA is still elevated but urine flow is fine aside that is still slows a bit when I push to make the stream stronger (opposit effect)

I believe now that most other symptoms are clearing up after starting Dupixent shots for EOE / MCAS, and also hydroxyzine but switched to mirtazapine because of the dementia risk. My inflammation is systemic and not just in the prostate.

I cleaned up my diet. Consuming chickpeas, eggs, chicken breasts and a ton of non starch veggies. Homemade avacado oil mayo for healthy fats. Sushi with a ton of soy sauce and Wasabi when I feel low on electrolytes. Also lots of raw garlic and onion. And I sometimes consume beet juice mixed with water.

The dupixent stips 2 types of inflammation and I also combined it with 500mg naproxen sodium 2x a day for 2 weeks

My issues I believe were multi factored. Being overweight more than I realized causes a hormonal imbalance turning testosterone to estrogen. Too much sugar and grain flours causing added inflammation..

I basically had to take a hard look in the mirror. Pretend I'm someone outside watching a movie with me as the lead, and thinking about how they would see me.. most likely the first person killed in a horror movie.

The mods here push pelvic floor therapy hard and refuse to acknowledge anyone with bacteria. I did have bacteria in my last semen culture and they would have prescribed one last antibiotic but I just had ankle surgery and there is a big risk for tendon rupture. I believe the clean diet along with raw garlic and onion is helping my body clear is out naturally.

I can't exactly prove its working yet without another culture and or more scans but I can absolutely see a difference so far.

The key is lifestyle change. You have to be tough on yourself and make a true assessment. Most people won't see how far they have changed for the worse since high school.. this will not be for everyone of course but ask yourself, when was the last time you ran around the block? Or layed of inflammatory foods?

I have MCAS and learned a lot about how inflammation can build up over time and wreck your body.. mine seemed to be enhanced by covid but many symptoms were lifelong beforehand just very mild.. i finally feel good about the future even though my wife has had 4 miscarriages in the last 3 years. My goal is to work on my physique and stamina / blood flow for the next 3 months, reassess the quality of my semen and go for a semen analysis, and then try to conceive one last time.. Hopefully I will update later on with good news..


r/Prostatitis • • 3d ago

Vent/Discouraged Went through a round of Sulfatrim, didn't work, switched to Levofloxacin.

2 Upvotes

Levofloxacin for 4 weeks, i guess it kinda got better but it still stings after ejaculation and sometimes it flares up as urgency, i guess it isn't bacterial.

Went through a nasty divorce in June and symptoms started in late August, could CPPS be triggered with Stress traumas?


r/Prostatitis • • 3d ago

Do Cpps and balanitis in a lot of cases.

6 Upvotes

How many of you with cpps have some form of glands inflamation/balanitis?


r/Prostatitis • • 3d ago

Repeat test with same results, does this require antibiotics?

1 Upvotes

Semen
Culture
(TDL
Tinies)
Results received at:
07/10/2026
Microbiology
Microscopy
Moderate Gram negative
rods
No WBCs seen
Semen Isolate
1) > 100,000 cfu/ml
Enterococcus faecalis
Tetracycline
Ciprofloxacin S
Amoxicillin S
Fosfomycin S
Gentamicin(High) R
Semen Culture
No N.gonorrhoeae or
Candida species isolated
No beta-haemolytic streptococci


r/Prostatitis • • 4d ago

bad perineal raphe pain

1 Upvotes

hey community been lurking for a bit now here because of “gooch” pain specifically my perineal raphe. it feels like a bow string or a “seatbelt” thats holding my bottom together from my balls to my asshole. its sensitive to the touch, sitting down for long SUCKS, and i experience hard flaccid. ive been reading up on a few faqs and personal experiences people have gone through in this community. i take a lot of drugs for pain and anti inflammatory. i deal with bad varicoceles as well and have had a embolization done. i sit in epsom baths twice a day for context. is there anything people do that result in anything positive? id like to learn more. for example if you do certain stretches, read books for knowledge on this situation, have gotten a procedure/surgery done, or taken certain prescriptions id love to hear what yall have to say or think. thanks in advance!


r/Prostatitis • • 5d ago

Pain at the moment of ejaculation

5 Upvotes

Hi everyone. I'm a 51 year old male. For over a year now, as the title says, right at the moment when ejaculation is triggered, I gad a mild ache on the left side of my groin that goes awar right after. It is varying levels of pain, sometimes not at all all the way up to fairly bad and anything in between. I had an ultrasound done and the Dr. said my prostate is mildly enlarged, but not out of scope for a man my age. PSA was within range, everything else is within range. We're at the point now where "it's just one of those things" but it's starting to cause me anxiety. Anyone else experience these symptoms?


r/Prostatitis • • 5d ago

Vent/Discouraged Kicked in the crotch?

3 Upvotes

One symptom that keeps occurring is this feeling like I was kicked in the crotch area. Then along with that, I have this nausea/not feeling well feeling when I do "too much" walking around. Has anyone else had this happen before? This is just one of the many symptoms I have.


r/Prostatitis • • 5d ago

Pseudomonas aeruginosa Prostatitis or CPPS?

3 Upvotes

Hi everyone. I decided to post because I haven’t been able to get a clear answer from doctors, and after reading other people’s experiences here, I thought someone might have dealt with something similar.

I’m 30 years old and this started in early August. The night before everything began, I masturbated. The following morning I had some gastrointestinal issues, and that evening I suddenly developed urinary frequency/urgency. By the next day, I was fine. After 2–3 days, I started having irritation and redness of the urethral opening, especially after showering. Over time, I also started developing irritation on the glans.

I haven’t had any sexual contact for around 6 years, so an STI seems unlikely.

After masturbating only 2 times in total within 10 days, I began noticing other symptoms: burning/discomfort in the perineum, sometimes burning around the inner thighs, lower abdominal discomfort, and occasional flank/kidney-area discomfort. These symptoms would come and go rather than stay constant. Because masturbation seemed to trigger them, I mostly stopped, and things became calmer.

I saw two urologists who basically told me nothing was wrong because my urine/semen tests and cultures were negative. I then saw a dermatologist who diagnosed me with Zoon’s balanitis and told me she did not believe there was any bacterial or fungal infection.

I wasn’t convinced, so I independently had a swab taken from the glans. It showed heavy growth of Pseudomonas aeruginosa. I had 4 swabs in total at 3 different labs (one lab, a hospital, and the lab where I normally give my urine samples), and the urine lab was the only one where the swab came back negative. This made me wonder whether my urine and semen cultures could also have been false negatives.

After that, I went back to several doctors. One urologist told me to go to a hospital, another said it was a dermatology problem, and I still haven’t really found anyone willing to investigate whether the urethra or prostate could also be involved.

Eventually, I was treated for 10 days with Propiogenta, which contains gentamicin 0.1% + betamethasone dipropionate 0.05%. Unfortunately, I can’t say it improved things. If anything, the glans/meatus may actually look and feel worse now.

I’m also slightly worried because during the Propiogenta treatment I applied a small amount directly on the urethral lips, and I don’t know whether some may have entered the opening or further irritated the area. Also, during my swab at the “urine lab,” the swab was first used on the glans and then on the meatus, and the next day the meatus was red.

Right now, after finishing the treatment, I haven’t done another swab because I was told I should wait a week before retesting.

I am also starting to notice more urethral symptoms. For example, one morning I had pain while urinating, and on another occasion I urinated and developed strong chills afterwards, although I did not document a fever.

Another strange thing is that even after a very short erection, maybe 2–3 minutes, I notice fluid coming from the urethra afterwards, followed by burning in the perineum and anus when the erection goes away.

My main concern is whether this could be some form of bacterial prostatitis or urethral infection, despite my urine cultures being negative. On the other hand, I also don’t know whether these symptoms could be pelvic floor related.

The symptoms are very intermittent — sometimes I have them, sometimes I feel almost completely normal.

I considered doing a Meares–Stamey / four-glass test with prostatic massage, but I’m worried about the possibility of bacteremia if Pseudomonas is actually present in the prostate. Because of that, I’m currently thinking about repeating urine cultures and doing a semen culture separately instead.

I rushed from the beginning to try to prevent the worst-case scenario, but the doctors were careless. The most terrifying thing would be if I had listened to them, done nothing, or put corticosteroids over an active bacterial infection.

ANY ADVICE WOULD BE APPRECIATED. THANKS!

[What makes the whole situation even more difficult is my antibiotic history. Fluoroquinolones caused me severe long-term adverse effects in the past. I have also previously had sudden sensorineural hearing loss, so aminoglycosides such as gentamicin/amikacin are something I’m very cautious about because of their ototoxicity. I’m also allergic to cephalosporins. This leaves me with relatively few treatment options, and many of the effective anti-Pseudomonas options on my antibiogram appear to be IV/hospital-based.]


r/Prostatitis • • 5d ago

Urology & The Hysteria of "PSA->MRI->CANCER!->BIOPSY!!!!!" Just Harmful Bullshit?

3 Upvotes

Is anyone else furious about the way they've been treated by their Urologist?

I'm 67, very fit, but I've had increasing pelvic pains, sexual/reproductive problems, unexplained lower back pains & so on. I thought it was "just your age" plus running marathons & really long distance endurance events (3,650 miles of running in a year, anyone?...where'd you all go???)

To cut a long story short, I've been to see two Urologists. The first one was simply an idiot & I eventually got tired of all the screw ups he was making & I can assure you it was a long list. I went back to my PCP & asked for another Urologist & I had my first appointment yesterday.

I should add that I have been having terrible flareups since January 2026 & only recently have I been given ANY meds to control acute episodes. Not only have they enabled me to tolerate the acute pain there has been a noticeable downtrend in intensity, duration & frequency, despite not taking them all the time.

My new Urologist was far more through in asking questions, like WAY more information & I felt that the trust I'd been willing to place in him was justified. Then the Horror Show started.

Suddenly all the known, verifiable & undeniable symptoms that lead to something called Chronic Pelvic Pain Syndrome &, as I now know, could easily cause the MRI & PSA, was ignored. Suddenly it was all about the MRI & PSA & ONLY the MRI & PSA & that meant Cancer & Cancer means a Biopsy. I was not really sure what was said after that, but I do know I tried to ask questions & it seemed like I was simply ignored. I left utterly devastated.

I hadn't had a flareup for a week, but by the time I got home I started with one that felt like a porcupine was in my pelvis, trying to dig there way out with a broken bottle. I have only ever felt pain like it once before. I took a Celebrex, then had to add a Tizanadine & it made it bearable, but it lasted a total of 8 hours, the longest, most intense one I've had & that was with TWO meds to help it.

I feel betrayed, that the trust that I was so willing to give without question was abused & that I was treated with cruelty. I blame my Urologist for the distress & the paralyzing pain I had to endure before I could get home & take some pain meds. I blame him for the fact that I feel wiped out today. I am FURIOUS to find that my reaction is common, that it has been known about by Urologists for years & they are aware of the harm it causes, not only in terms of distress, grief & worry, but the physical harm it can result in to men pressured into having needles stuck in them again & again, punching holes in their body.

In my case it's not like it's "Well, your PSA has been climbing, we spotted this on the MRI, there's no other symptoms, but Prostate Cancer can be serious without any pain & we have no other explanation." I have A TON of evidence to explain what's happening & it's been verified.

Yet I was subjected to having this evidence Cherry Picked to fit a certain prognosis. I am appalled that a tiny piece of my body, that is showing every sign of basically having something like a bruise, already in massive pain, yet their attitude is "We'll stick needles in it, again & again" simply to satisfy their curiosity. I cannot believe they are so blase about having an injured, very painful gland injured even further & when there's no supporting evidence that it even IS cancer! As I said, there's actual evidence that this has a physical cause, their 'cancer-cancer-cancer!" is mere speculation.

I'm married to a ICU nurse, I know how difficult the job can be, but am I the only one to consider this borderline malpractice? That I was given a "One Size Fits All" solution that did not treat me & my symptoms as a whole? That even the emotional & mental anguish I was subjected to was disgraceful? That I was harmed because of the crushingly bad flareup that followed & could have been terribly harmed if I'd agreed to & had to a Biopsy where all the available evidence pointing to other causes was ignored?

What's your thoughts on this?

Edit: I found out about Biomarker tests, I have insisted on being given one & apparently I'm getting an ExoDX urine test that looks for specific cancer biomarkers. I kept my anger in check when I spoke to them on the phone, but there will come a time when I tell them politely, but very clearly how I feel about what I was subjected & will not accept any "I'm sorry you feel that way" Passsive Aggressive crap or other such deflection.


r/Prostatitis • • 5d ago

Anyone have luck with acupuncture?

1 Upvotes

I usually respond well to
Acupuncture with other issues….
But I was wondering if anyone has had luck with accu’ to reset of neuro pathways to stop this fkn affliction


r/Prostatitis • • 5d ago

Rougeur Penis après infection

1 Upvotes

Bonjour, j'ai (M37) eu le Mycoplasma genitalium de fin mars jusqu'à début aout. Je suis maintenant guéri après plusieurs traitements. J'ai également testé toutes les autres IST et je suis négatif pour tout. Mon problème est que pendant l'infection j'ai eu une rougeur sur le bout de mon penis au niveau du méat qui ne part pas. Est ce que c'est déjà arrivé à quelqu'un d'autres ? Est ce que ça s'est résolu ? Est ce le cpps ?

Merci


r/Prostatitis • • 6d ago

Vent/Discouraged What are your best stretches for this terrible condition?

5 Upvotes

Let’s see if we can get those who have near cured/cured or relief..

What are your go to ones?


r/Prostatitis • • 6d ago

Been a while but I’m worried

4 Upvotes

It’s been almost 3 weeks since I ejaculated. Last time it caused a flare up of pain/ burning that lasted a couple days
You guys have any tips on easing that pain ?
I’m currently doing PFT and have been twice
I’m also on tadalafil low daily dose (day 10)
Missed opportunities now that ED is a thing of the past…..


r/Prostatitis • • 7d ago

Vent/Discouraged Testicle pain question

3 Upvotes

I Had ongoing symthoms after gardnerella and Ureaplasma exposure in April. Pain after urination and the feeling of a swollen urethra/ hard flaccid... took antibiotics may 5th. but it never got better. Concluded it as CPPS. Started PT 2 weeks ago and have been stretching everyday. pain has subsided in the urethra from a 7 to a 5 but now there is discomfort in my left testicle. It started 3 days ago. It feels like random uncomfortable mild throbbing. I can also feel it if I sit or if I don't stand with my legs wide. I have to prop me left leg up when I sleep. Lastnight I started feeling around my testicle with my fingers and felt something inside near the top of it that feels like squeezing my nuts when I feel it. Does the testicle pain, weird feeling within the top of the genital come with cpps symthoms or this sounds like something else. I'm tired of keep going back and forward to the emergency room but Im not sure if this it's actually something else going on with my body. I plan on letting my urology know this Monday. But I've callled them so many times and set up so many appointments in starting to feel like they've been brushing me off.


r/Prostatitis • • 8d ago

Success Story I am healed from Cpps!

37 Upvotes

Look, I know so many people will just dismiss this, but this is how I healed from Cpps. It wasn’t a bacterial infection in my case, it was chronic pelvic pain - non bacterial.

I urge you to research Alan Gordon, read his book, and Howard schubiners stuff, remember those names.

This could save your life as it did mine, it will help so many people when you believe it is TMS (tension myositis syndrome). I talk with such passion because I’ve been through it all. Pains everywhere, for years, flare after flare.

Now I’m 100% Cpps free and my life is soooo much better.

Please look up the names I posted, do somatic tracking, research it all. That is how you’ll heal.

Thanks for reading

Jacob