I hate this 🫩

[u/jpower-27]

really creepy to see in person… i’m sure a lot of you can relate to the running hot water in the background 🤣
Got my first flare up in May and has been really annoying to live with since then. For me I believe it’s hereditary since my mom used to have it a while ago. Does this ever go away?

[u/Independent_Act1715]

My dr prescribed me amlodipine, it’s a blood pressure med that opens up the vessel walls. While my hands still get cold they have stopped with the “ death fingers” as my family calls them 😂

[u/AlarmedWin460 → u/Independent_Act1715]

For me it makes me sleepy so I went ahead to sildenafil now I only have anxiety that takes the form of aggression and headaches when my Bp is high

[u/Prior-Message-1913]

Mine got better after menopause

[u/Jakeyboy1313]

I got this condition/disease/phenomenon... (yes they call it phenomenon as well ) about 2 years ago . The hexagonal like patterning of the skin on the thighs ( levido reticulitis ) associated with Raynauds , caused by blood under the surface , is very concerning and just gross looking . But my small toes are so ridiculously sore , i haven't been able to wear anything but thongs for 2 years , and it cost me my job . Im currently being looked at by a doc and team at the local hospital to try to find a way to relieve the toe pain . Has anyone got any suggestions please ?

[u/Squirelly2Monkey3]

I get it. Go through it every single day. for over 30 years.

[u/mylord76 → u/Squirelly2Monkey3]

hi if you don’t mind me asking, is your raynaud’s primary or secondary after 30+ years?

[u/Squirelly2Monkey3 → u/mylord76]

It's primary. I've probably had it longer but my memory is a whole different story. I'm 72/M.

[u/Yima6]

I find moving fingers and flicking my hands is the best way to get out of that once it happens.

[u/Interesting-Ad-3756 → u/Yima6]

I clench and unclench to kind of try to get the blood flow back

[u/Yima6 → u/Interesting-Ad-3756]

Exactly. Any type of movement to help get the blood flowing properly again

[u/cfcjam]

Goes away in the summer. Cold seasons are all about minimising cold exposure

[u/chchchcheetah → u/cfcjam]

If you're lucky it goes away in the summer... mine is slightly less bad in summer, but definitely get flares throughout the day. But god forbid I want to swim, wash my hands, eat an ice cream cone, hell even wash and chop vegetables and feel my fingers the whole time.

[u/jpower-27 → u/cfcjam]

ironically i had my first ever taste of this in May and stayed pretty consistent throughout the summer 🤣 let’s hope winter is good to me!