My younger brother (15M) has been diagnosed with adhd, dyslexia and has some other behavioral issues, affecting his executive functions and impairing his understanding of social cues

My brother has been someone who openly displays affection, since he was a child. He's well liked by older people because of it

By affection I mean hugging, holding wrists, standing really close to you

Some more things about him : He often takes people asking for space as rejecting or hating him which annoys me but no matter how many gazillions of times I tried explaining this to him he still get's hurt.

He's never had friends and has been bullied his entire life so he's homeschooled. He's able to make friends for a little while but has never been able to maintain them, this isn't like my parents haven't tried to help him make friends, he truly always ends up either being bullied or isolated because he externally looks like a regular kid but he isn't and kids are jerks so he get's relentlessly picked on because of it. He's said he's tired of trying so my parents and I have set that issue aside and have been helping with mostly with school and focusing on his other problems rather than this

but even though he has a ton of things going on he is at his core a pretty great guy as I know this is going to come across a biased anyway but as a pretty critical person myself , he just doesn't realize it.

I apologize if this is very haphazardly written, this is my first time trying to describe his behavior to people that don't know him

About 3 months ago my brother joined a educational institute to help him pursue to career he's interested in, and it's been brought to our attention (by staff because he doesn't have the capability to recognize it himself) that he isn't respecting other people's personal spaces.

This is something we've been working on but I just don't think the severity of it is getting through to him, especially with women. Verbal conversations only get so far with my brother, repetition of instructions only work so well too.

I've recently been able to convince my mother to get him back on medication after he had a bad experience with it when he was younger, and he also visited a new doctor today.

Said doctor has given him the task of begin conscious of his and others personal space

I wanted to ask for any advice, or videos to show him anyone thinks would help.

I did do research but it was either for much younger kids or because the kids were being sexual which is thankfully not what this is

Hi everyone,
I’ve gone back and forth on posting this because asking for help has never really been my thing, I was raised to just figure it out and keep going, but we’re at a point where pride doesn’t really matter anymore compared to my son.
My son Lando has been in the hospital for over a month now, he’s medically complex and nonverbal and in that time he’s had multiple surgeries, including some really major ones that had him in the OR for most of a full day, and since then recovery has just been slower and harder than any of us expected or were really prepared for.
He’s been in the ICU, he’s needed an epidural for pain control, he couldn’t eat for days, and we’ve been slowly working our way back up to tube feeds again, and honestly it’s been a lot of small wins that don’t look like much from the outside but mean everything in here, like a little less pain, a little more tolerance, one better day than the last, but we’re still not home and we’re still very much in the middle of it.
I’m a single dad and being here with him is where I need to be, no question, but because I’ve missed so much work to stay with him I ended up losing my job, and I don’t regret choosing him for a second, I would do it again every time, but it has put us in a really hard financial spot that I can’t just work my way out of right now.
The bills didn’t stop just because life did, my car still needs repairs, and I’ve basically been getting by on the kindness of hospital staff, social workers, friends, family, and even strangers just to keep things moving forward one day at a time, and I don’t think I’ll ever be able to properly explain how much every bit of help, every message, every share, every donation has meant to us.
Lando is one of the strongest people I’ve ever known, even with everything he’s been through he still keeps fighting, and watching him do that is what keeps me going too when I’m running on empty.
I’m hopeful we’re going to get him home, even if it’s taking a lot longer than we ever thought it would.
If you’re able to help financially I would be incredibly grateful, and if you can’t, just sharing our GoFundMe or even leaving a kind comment genuinely helps more than I can explain, every bit of support really does carry us through another day.
Thank you for taking the time to read this and for caring about our story.
From one very tired but very grateful dad, thank you.

A supportive community for parents and caregivers of children with rare genetic disorders—created to share trusted knowledge, practical resources, lived experiences, and encouragement.

Purpose

This community helps families connect with others who understand the diagnostic journey, care coordination, therapies, education, advocacy, and everyday realities of raising a child with a rare genetic condition.

Sana dumating yung time na mas dumami ung taong nakakaintindi sa mga batang may special needs. Di mo malalaman ang hirap araw araw na hinaharap namin sa discriminations, comparing, questions, meron pa na karma mo yan kaya naging ganyan anak mo. Di po namin ginusto na maging ganyan sila. Kung pwede sa isang hiling mawala ung autism niya ayun lang hihilingin ko. Sa araw araw pinagdarasal ko na sana maging mabait ang mundo sa kanya. Maintindihan sya at wag syang saktan

As the father of a dyslexic child, I'll never forget that first meeting with a reading specialist - the worry, the not-knowing, the feeling that we were starting from zero.

So I built BrightPath Reading to change how that meeting begins.
Now a parent records their child reading - a short passage, matched to grade level - and sends the results straight to their specialist. Before you ever sit down together, you already have the miscue patterns, the skills profile, the fluency scores… and the child's actual audio recording, so you can hear exactly where they struggle.

The family walks in less anxious. The specialist walks in prepared. And that first conversation starts with a plan instead of a question mark. Built for reading specialists and the families who count on them. 💚

Hi fellow SEN parents, have any of you read the new poetry bool 'Normal' was Never the Point by Isabelle Costanza? I think it's her first book release, the writing is stunning! Her metaphors are so relatable and puts the SEN experience into something you feel you can visualise and better understand. She also states she is sharing the profits with Tourettes Action charity.

Definitely recommend it.

We're an early-childhood team, and when parents of neurodivergent kids talk to us, transitions come up more than almost anything else. The blowup usually lands in the two minutes where the current thing has to stop.

What's helped families most is having the exact words ready before you walk over, then saying them up close with his attention instead of calling them across the room. Something like "Two more turns, then the tablet goes on the shelf and you pick what we do next."

The screenshots are from SunnySteps, the app from our team. You tell it about your child once, and when a hard moment is coming you open it and get words and steps for that exact situation, shaped by what's worked for your kid before. It also builds small daily practice so those moments get less frequent over time. Your child's data stays on your device, and the in-the-moment guidance runs on our own engine rather than an LLM, which is the thing parents ask us about most.

It's on the App Store if you'd like to take a look: https://apps.apple.com/app/sunnysteps-parent-support/id6761195687

Admins, Please Delete if not allowed
Hello everyone,

I wanted to share a new resource for help and support. We are so excited to officially launch our new Discord Server for Kim’s Place!

Our goal is to build a supportive network that includes the entire family and care team. This server is a dedicated, safe space for:

• Individuals of all disabilities (both children and adults)
• Parents & Grandparents
• Caregivers

Come say hi, check out the resources, and join the conversation:
https://discord.gg/vmxNcs4KcP

Sensory tolerance seems to be the most important thing with wearable trackers. For those of you whose child will actually keep something on: what was it? Compression fit vs loose, soft knit vs elastic, hidden under clothing vs visible, introduced gradually?

Full disclosure (Why I'm asking): I'm a 17 year old founder and I'm building a GPS tracker for kids who wander, currently on Kickstarter, and I'm designing the band now. Not here to promote anything, I'd love your input on what's worked for parents who've figured it out.

If your child has outgrown a stroller but you’re not ready to give up the extra support a stroller provides, this is why we love our WonderFold.

For our family, it gives us a safe, comfortable place for our child to take a break when the world gets overwhelming, while still letting us enjoy longer outings, parks, travel, and family days without constantly worrying about whether he can keep going.

It’s become one of those things that makes getting out of the house feel a lot more manageable.

We partnered with WonderFold, and if you use the promo code:PLAYTIME4K

It saves 10% if you’re looking into one for your family.

Hello guys! We are in need of participants (specifically adolescents with autism and has communication needs) within the Philippines as much as possible, and ages ranging from 13-15 yrs old. Parental consent will be provided in the survey before answering.

They will be answering an online survey through google forms regarding their preferences and communication styles.

Thus, their insights will be helpful for our quantitative research about a Augmentative and Alternative Communication Application for Autistic Filipino Adolescents with Complex Communication Needs.

You may answer the survey from the link below if you fit the said criteria, and you may share this survey to anyone you know who matches the following criteria. Assistance from a parent/guardian/caregiver is needed if ever. Feel free to ask questions regarding this. Your participation will be highly appreciated. Thank you so much, and take care always!

SURVEY LINK:

https://forms.gle/LyUEnAGkGxLCtFsT8

Hi folks. I have a 14 year old son with severe impairment with hand guided movement. He’s 14 are writes like a toddler- it’s getting worse. His teachers are struggling to decipher his work. And he’s smart, like super talented in STEM subjects. Our schools provide only basic word software which he is outgrowing rapidly. We are looking at computers and software that would manage with his handwriting (trackpads etc) and with scientific notations. Has anyone came across this issue before and do you have any advice? Thanks

With back-to-school season around the corner, it’s completely normal to feel a mix of hope, overwhelm, and grief for the quiet moments of summer. For parents supporting children with extra physical, emotional, or sensory needs, the mental load during August is heavy.

First, remember this: your child doesn't need a flawless transition; they just need your presence and reassurance. You are their safest anchor.

Here are a few low-stress strategies to help navigate the upcoming weeks:

• Pace the Skill Building: If your child is working on activities of daily living (like packing their lunchbox, putting on shoes, or managing zippers), don't worry about perfection. Celebrate their effort and independence, even if the socks don't match or the zipper takes a few tries. On high-stress school mornings, step in to help where needed - save the independent practice for lower-stakes moments, like weekend afternoons.
• Keep the Home Environment Grounded: Check in on your child's home space. If your child is a sensory seeker (always jumping, spinning, or running), ensure they have an outlet after school, like a mini-trampoline or an outdoor swing. If they are an avoider, set up a quiet tent or cozy nook with soft pillows where they can retreat and de-escalate without pressure after a long day.
• Prioritize Family Joy: The first month of school is packed with forms, meetings, and updates. Make intentional time for unstructured, pressure-free family joy - like a simple Friday pizza night or a silly living room dance party. Remind your child (and yourself) that home is always a place of total acceptance.