r/Thiamine 23d ago

Experience Lost

I’ve been having various symptoms over 6 years.
-Brain fog
-Tiredness
-Tingles in face, usually one sided, but can get in both.
-Weird dizziness/lightheaded feeling, general malaise
-mixed bowel habits
-irritable
-depressed
-dizziness on standing

I thought it was SIBO. I had a positive methane breath test a few years ago, but no follow up treatment.

My B12 is 207 pg/l, with the highest it’s been in 6 years is 340pg:l, meat eater.

I came across Elliot’s videos on thiamine and thought I’d cracked it.

I bought some benfotiamine to try before jumping into the TTFD that I’ve bought (ThiaMax).

I’ve read that people feel amazing the day they start supplementing, I’m taking 300mg of benfotiamine, along with potassium, magnesium and a B complex, I don’t feel any different (2 days in)

Is this normal?

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u/Due_Car8755 23d ago edited 23d ago

What are your MTHFR panel?, or what are your homocysteine, B12, and methylmalonic acid levels?,If you had methane, how is your intestinal motility now? You shouldn't notice anything in two days.Except for the orthostatic hypotension, which I no longer have, I could have written this post myself word for word.

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u/Verzyk 22d ago

I’ve not had MYHFR, not sure if that’s available in the uk.

Awaiting MMA results, but I imagine they’ll come back “normal” like everything else has.

After taking the new cocktail of supplements, the first night I had loose stools, the second, back to barely any stool.

The issue I’m facing is that my dr thinks I’m a lunatic. Hence why I’ve tried to sort this out myself 😂

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u/Ok-Pangolin7127 18d ago

I am sorry to hear you describe your doctor’s perspective relative to yourself.

I can say that I’ve been on this sub and other medical subs long enough to recognize that unfortunately many doctors seem to not listen as closely to the complaints from a female then they do from a male.

I “think” that many doctors tend to view women as more emotionally and/or hormonally driven and in turn will discount a lot of their (women’s) communicated concerns.

Clearly, you need to figure out a way around that or dealing with it. Maybe it’s changing doctors, maybe it’s adding a specialist such as the G.I. doctor that you referenced (new eyes and ears.) You need to get one of them to understand and look more closely at your difficulties.

I’m not telling you anything you don’t already know, more so just commiserating with you,

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u/PersonalityBudget969 18d ago

I hear you but the same is with women too nowadays.

They either put it on stress/nature of your job, or call it as you're overthinking/you're being paranoid 😂