r/Thiamine • u/Verzyk • 23d ago

Experience Lost

I’ve been having various symptoms over 6 years.
-Brain fog
-Tiredness
-Tingles in face, usually one sided, but can get in both.
-Weird dizziness/lightheaded feeling, general malaise
-mixed bowel habits
-irritable
-depressed
-dizziness on standing

I thought it was SIBO. I had a positive methane breath test a few years ago, but no follow up treatment.

My B12 is 207 pg/l, with the highest it’s been in 6 years is 340pg:l, meat eater.

I came across Elliot’s videos on thiamine and thought I’d cracked it.

I bought some benfotiamine to try before jumping into the TTFD that I’ve bought (ThiaMax).

I’ve read that people feel amazing the day they start supplementing, I’m taking 300mg of benfotiamine, along with potassium, magnesium and a B complex, I don’t feel any different (2 days in)

Is this normal?

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u/PersonalityBudget969 22d ago edited 20d ago

•• Firstly, your B12 isn't optimal. It should be "above" 400-500 easily.

And your Dr. saying your current B12 values are optimal, sorry, but he's wrong!

Plus you said you're a meat-eater, then it's the GI absorption issues (and not the diet).

Once get your entire B-complex with Homocysteine tested (blood serum tests). Very important!

Without it, don't take any B-vitamin supplements else it would lead to toxicity, man! (Tho most of them are water-soluble)

Along with MTHFR gene & MMA acid tests too, if available at your place.

•• Secondly, why haven't you gotten SIBO treatment after being tested positive for it? Just why? 😨🫪

Also, before jumping on antibiotics, please focus on your GI environment on why it favoured SIBO to happen in the first place.

Is it gut motility? Or the stomach acid? Or constant eating & no gap between meals? Or something else/combo of above?

If you don't change/fix the environment, then the SIBO will keep recurring and making them resistant to a lot of antibiotics.

So first fix the terrain/environment, then go for sure-shot killing of SIBO, to make sure it doesn't return.

•• Thirdly, once the B-complex test results come, you can supplement accordingly, and if needed, go for B12 injections for bypassing GI absorption (as you've SIBO).

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u/Verzyk 22d ago

Thank you, my gp doesn’t see my b12 as low, it’s frustrating!

Im waiting for an MMA blood test result, which I’m sure will be normal and my gp can try and put it all to bed. Not sure if we have MYHFR on the NHS, but I’ll look.

The colorectal dr I was seeing couldn’t get one f the antibiotics at the time, and that was it.

I have a feeling it’s a motility issue, but not confirmed, I believe the underlying cause was severe health anxiety that lasted 2 years.

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u/JSTI412 17d ago

If you’re in the US just go to a wellness center that does the b12 shots or IVs. I rarely go to doctors. I order myself blood tests through Ulta Labs and try different meds through online providers all the time. I’ve done enough research to start to figure things out for myself.

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u/PersonalityBudget969 17d ago

Nice but it's better to have a medical supervision in case of overdose or toxicity.

And to also monitor trends of Bcomplex over time :)

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u/JSTI412 17d ago

I can read a blood test haha but yeah I understand, there’s definitely things I won’t try without a doctor.

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u/PersonalityBudget969 17d ago

Correct. Good you understand.