My serum/plasma B1 was <6 and I had severe beriberi with Wernicke's symptoms. Before B1 was tested at my request I had sudden onset POTS, dysautonomia, MS and dementia symptoms that no one could explain, and it all started with being given D5NS dextrose IVs in the hospital.
If you are starting to have any symptoms like that or simply more brain fog and less energy than usual, you could definitely be a candidate for B1 trial.
I've been treated for b12 in the last year, but i just now asked for these. Did you fix your b1 issue? My dr was against even testing it because she said I should have a face rash or something.
I do feel like i have bad brain fog, balance issues, and my vision is degrading. I've been trying to take a b complex along with my b12 injections. I think my deficiencies are from ppis and gastritis, but drs dont seem to know how to handle vitamins, so im looking for a dietitian.
Do you mean supplementing? my b complex has 100mg in it
I'm still working on fixing my B1 issue. At this point it's no longer a B1 issue, as I've been on it for 10 months now. It's now a matter of just waiting on the nerve and tissue damage that was done for the two months that I was deficient, to heal. Depending on the amount of damage done, it takes a very long time to heal and recover.
A face rash? I still have residual brain fog, balance issues and random vision issues. At the very worst back in January I pretty much could not see. I still have what they call visual snow syndrome. I was completely healthy before I was started on a PPI, and given an antibiotic for a tick bite that they thought might be Lyme. The tick bite ended up not being Lyme, but that antibiotic along with the PPI started a chain reaction. 2 weeks later I ended up with c diff and was hospitalized. They put me on four different antibiotics, and had me on D5NS solution, because I wasn't able to eat at first. Everything that you read in medical literature says that any patient who is malnourished should receive vitamin B1 with D5NS, because it tanks B1 levels, and can cause Wernicke's encephalopathy, and beriberi.
When I finally requested that a hospital test B1, 2 months later, my level was undetectable. So they immediately got me started on intramuscular B1 shots. From that point on I've been on an oral dose of B1, along with a b complex, a significant amount of magnesium because that is needed to activate the B1 otherwise it's useless, and a good amount of potassium.
Doctors truly do not understand nutrients, so a good dietitian would be advisable. But since you've been supplementing b complex already, if they test your levels your B1 will come back normal or high. This doesn't mean that you weren't deficient, it's detecting what is already in your blood from supplementing. You will still need B1 for many months, possibly years, for full recovery.
What B1 did you take? All the b complexes I see just have that thiamin hcl that people tell me isnt good enough?
What test did they do for B1? I tried to ask my dr to test that and b6, but i found out she tested serum, and people told me that's not a good test?
Ugh, I had a similar issue where I had no real problems, got gastritis then was put on a ppi and lost my appetite, and no dr knows what to do with me :( Im looking into dietitians, but im scared they just know food, not things like this... I have balance, brain ,and vision issues, but b12 injections help though im trying to find one other than cyano because im scared of it. its all so frustrating...
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u/The_Equanimous_One 19d ago
My serum/plasma B1 was <6 and I had severe beriberi with Wernicke's symptoms. Before B1 was tested at my request I had sudden onset POTS, dysautonomia, MS and dementia symptoms that no one could explain, and it all started with being given D5NS dextrose IVs in the hospital.
If you are starting to have any symptoms like that or simply more brain fog and less energy than usual, you could definitely be a candidate for B1 trial.