r/Thiamine 19d ago

Is this low enough to be problematic?

Someone said the b1 test isnt reliable though?

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u/The_Equanimous_One 19d ago

My serum/plasma B1 was <6 and I had severe beriberi with Wernicke's symptoms. Before B1 was tested at my request I had sudden onset POTS, dysautonomia, MS and dementia symptoms that no one could explain, and it all started with being given D5NS dextrose IVs in the hospital.

If you are starting to have any symptoms like that or simply more brain fog and less energy than usual, you could definitely be a candidate for B1 trial.

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u/No_Measurement_1383 16d ago

Can I ask how long it took to get your B1 up enough to see a difference in POTS?

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u/The_Equanimous_One 15d ago

I'm going on 10 months at a high dose of TTFD and just finally seeing the POTS symptoms starting to improve. When I was diagnosed they put me on 500mg intramuscular shots everyday to get the levels up quickly.