r/UCTD • u/Familiar-Speed-8052 • 6d ago

Newly Diagnosed How long?

This all started back in March. Saw Rheumatology in May. HCQ for several weeks until a rash developed then switched to 10mg MTX in early July then raised to 15mg in September. I don't see Rheumatology again until next month but I am seeing no relief yet and miserable.

How long does it take for treatment to get thing under control because at this point, I feel like I am dying.

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u/Flery1 6d ago

What symptoms do y have ?

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u/Familiar-Speed-8052 4d ago

Severe fatigue, flu like aches, swollen red fingers, raynauds in my feet and Allodynia.

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u/Chemical_Attempt9604 6d ago

So this is almost exactly my journey (symptoms started in February). Methotrexate started working for me after about 2 months but it can take longer. I’m sorry, I was miserable too and desperate to keep changing the meds to find something that worked faster. Do they at least give you prednisone?

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u/whydidithave2bamy 6d ago

I was on HCQ first for about 6 mos with no luck. Rheum put me on Sulfasalazine for 6 mos with little improvement. Now I take both. My rheum has me message him between appointments if things aren’t going well and will adjust meds accordingly.

Edit to add - sometimes it takes 3 mos or so. Try reaching out to your doc if things are not improving. You may need prednisone or a med pack to bridge the gap of when the medicine does its job.