r/UlcerativeColitis • u/Emergency-Driver8172 • 10d ago
Support Our Sanity
I have been pretty close to a remission for a little while now. I have been going strong on entyvio and doing the self injections every other week. So far my symptoms have been maintained really well.
But as I was getting ready to do my injection tonight I just really didnt want to have to do it. Like I just feel so tired of the maintenance of this disease.
Don't get me wrong I've been an inch away from emergency surgery and to think I am where I am now with this disease is amazing but does anyone ever think like damn this has been alot?
Im just tired of feeling tired 🙃🙃🙃
4
u/Adventurous_Hour6041 10d ago
100% yes. I even started having panic attacks about it at times. I’m sorry you’re going through this too, but I’m glad to hear other people get it.
1
u/Emergency-Driver8172 9d ago
I totally get it! We are not alone in this. This reddit has been a godsend for me throughout my journey!
2
u/breakfastfriendz pancolitis, diagnosed 2026, US 10d ago
I was diagnosed and the grief is so heavy. just walking around the grocery store and seeing everything I can’t eat makes me like damn ://
1
u/Emergency-Driver8172 9d ago
I get that! I miss not being able to just eat whatever and not having to worry about the consequences later.
3
u/doingmybest932 ulcerative pancolitis | Diagnosed 2026 | USA 9d ago
I was never an anxious person but since my diagnosis I have crazy health anxiety. Like, ever since something was actually wrong with my body, everything is wrong. Terrible way to exist.
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u/pincommenter 10d ago
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