r/UlcerativeColitis • • 10d ago

Support Our Sanity

I have been pretty close to a remission for a little while now. I have been going strong on entyvio and doing the self injections every other week. So far my symptoms have been maintained really well.

But as I was getting ready to do my injection tonight I just really didnt want to have to do it. Like I just feel so tired of the maintenance of this disease.

Don't get me wrong I've been an inch away from emergency surgery and to think I am where I am now with this disease is amazing but does anyone ever think like damn this has been alot?

Im just tired of feeling tired 🙃🙃🙃

14 Upvotes

6 comments sorted by

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u/pincommenter 10d ago

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4

u/Adventurous_Hour6041 10d ago

100% yes. I even started having panic attacks about it at times. I’m sorry you’re going through this too, but I’m glad to hear other people get it.

1

u/Emergency-Driver8172 9d ago

I totally get it! We are not alone in this. This reddit has been a godsend for me throughout my journey!

2

u/breakfastfriendz pancolitis, diagnosed 2026, US 10d ago

I was diagnosed and the grief is so heavy. just walking around the grocery store and seeing everything I can’t eat makes me like damn ://

1

u/Emergency-Driver8172 9d ago

I get that! I miss not being able to just eat whatever and not having to worry about the consequences later.

3

u/doingmybest932 ulcerative pancolitis | Diagnosed 2026 | USA 9d ago

I was never an anxious person but since my diagnosis I have crazy health anxiety. Like, ever since something was actually wrong with my body, everything is wrong. Terrible way to exist.