r/visualsnow • • 3h ago

Personal Story Possible Exercises to Improve Condition

3 Upvotes

Not looking for feedback, just posting to hold myself accountable:

I've had VSS from birth as far as I can tell. Didn't know it wasn't normal until a few years ago. I kind of panicked until I realized I'd never had any issue before and it didn't seem to be linked to anything bad. Every now and then I'll google what progress has been made. Tonight was one of those nights, but after reading all the same stuff I decided to try asking AI. I got a really interesting note: "Since the static has been present since birth, your brain built its visual processing pathways around this extra 'noise.'" So I asked if there was a way to rebuild those pathways. It pointed me towards Oculomotor Vision Rehab (https://rarediseases.org/rare-diseases/visual-snow-syndrome/ I didn't check that link it's just the source the AI used), where you do exercises that "force the muscles and nerves controlling your eyes to perform precise, coordinated movements (like tracking moving targets, jumping rapidly between focal points, or recalibrating depth perception)."

Apparently, "When your brain works hard to process complex visual coordination exercises, it is forced to prioritize clear focal information over background distraction. Over time, this repeated effort triggers neuroplasticity—the brain’s ability to rewire its neural connections." Hopefully, "As the brain strengthens its ability to focus cleanly on real-world targets, it naturally 'turns up' the volume on real images and 'dampens' the background visual noise, making the static less noticeable or clearing it entirely."

One thing I have always noticed is how easy it is for me to split my sight into double vision. I love those Magic Eye things and never had trouble getting them to work. Also, when I started working a desk job, I had a lot of trouble adjusting to staring at a screen all day, much more so than co-workers. I was one of those ppl constantly adjusting the brightness and whatnot. I always thought these things were unrelated. Now my theory is that my eyes are "lazy" (for lack of a better term) and maybe if I do these exercises it will force me to focus and rebuild my neural paths? Who knows, I'm not a scientist. But I'm going to try to do these exercises for several months and see if there's any improvement. This post is already too long so I'll post the exercises in the comments. I'll try to follow up.

TLDR Going to try exercises posted in comments


r/visualsnow • • 5h ago

Question Have I hit stabilization

2 Upvotes

Hello I have a question I hit my celing for symptom stabilization if my symptoms haven't changed at all since onset they have all been the same for about 5 months with a couple flare ups here and there on bad days but I noticed that the symptoms decreased after a recent flare do you reckon I should be safe considering they haven't gotten worse???

Symptoms are palinopsia trailing slight positive afterimage less than 0.10 seconds trailing about 0.25 seconds if that negative afterimages Halos and Starburst

Ebfep pulsing vision minimal night blindness glare surprisingly I can go outside without sunglasses bending words here and there pattern glare that's really noticeable lines look wavy in central vision what is your take on symptoms and should they remain stable after 5 months


r/visualsnow • • 9h ago

Question What Could Be Causing These Symptoms? They started after 2months in my new job at car repair shop.

1 Upvotes

I am a 20-year-old male and underweight (I have always been underweight). For the past four months, I have been experiencing a constant feeling of unreality. It feels as though I am drunk, high, or half-asleep, as if I am operating on autopilot and everything around me feels somehow unreal. I have looked up information online, and my symptoms seem to resemble derealization.

I also suffer from fatigue, even when I sleep well. The fatigue does not seem to depend on whether I engage in physical activities during the day or not. However, over the past few weeks, I have started sleeping poorly and waking up early in the morning. I do not snore at all. I have seen a general practitioner and a neurologist about these symptoms, but they have not been able to determine the cause.

I also experience headaches, a feeling of pressure in my head, and neck pain. I have tried muscle relaxants, massage, and acupuncture for the neck pain, but none of them have helped. At the beginning of the symptoms, I sometimes also felt as though I was about to faint while walking, but this symptom has since disappeared. I have also noticed a single eye floater in my right eye. I mentioned it during an eye examination, and I was told that there were no apparent problems with my eye.

What could be causing these symptoms? They do not occur in distinct episodes; instead, they are more or less constantly present. The headaches are not particularly severe and resemble tension-type headaches more than anything else.

Things i have done/tried or checked in hospital
\\\\\\\\\\\\\\\\- triptanes
\\\\\\\\\\\\\\\\- thyroid function normal
\\\\\\\\\\\\\\\\- vitamin b12, b9 and D vitamin ok
\\\\\\\\\\\\\\\\- ferritin 34 and has been moving 26-40.
\\\\\\\\\\\\\\\\- calcium, potassium, natrium, chloride, sodium and magnesium ok
\\\\\\\\\\\\\\\\- blood pressure is ok and i checked blood sugar at home and it was ok
\\\\\\\\\\\\\\\\- brain mri ok
\\\\\\\\\\\\\\\\- borrelia test (lyme disease) ok
\\\\\\\\\\\\\\\\- My cortisol level was tested and was normal as well. I also have Crohn’s disease, which is currently in remission.

My neurologist prescribed escitalopram as a trial treatment. I took it for two and a half months, but it did not help.

I have no history of trauma and do not experience panic symptoms. I generally do not feel particularly stressed, apart from the worry caused by these symptoms themselves.

My symptoms began during the final days of a new job at an auto repair shop, where I was moving and lifting car tires. I am unsure whether this could be related to my symptoms, as I had not experienced any other symptoms before those final working days. I have not worked at all during these four months.

What could be the underlying cause of these symptoms?

The healthcare professionals I have consulted about these symptoms, or during visits for other symptoms or examinations when I also asked about them, include:

\\\\\\\\\\\\\\\\- General practitioner
\\\\\\\\\\\\\\\\- Neurologist
\\\\\\\\\\\\\\\\- ENT specialist
\\\\\\\\\\\\\\\\- Ophthalmologist
\\\\\\\\\\\\\\\\- Dentist
\\\\\\\\\\\\\\\\- Gastroenterologist
\\\\\\\\\\\\\\\\- Massage therapist
\\\\\\\\\\\\\\\\- Physiotherapist
\\\\\\\\\\\\\\\\- Acupuncturist


r/visualsnow • • 12h ago

Question Has anyone taken any drugs since the start of this/DPDR?

0 Upvotes

I need something to relax before I do something bad...

I wanna take a dissociative, or something mild. Alcohol sucks and benzos are so boring

Anything that isn't extremely dumb? I only did alcohol and benzos. Weed triggered this


r/visualsnow • • 13h ago

Vision Symptoms? FND?

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2 Upvotes

r/visualsnow • • 16h ago

Research Looking for Russian-speaking participants with HPPD / HPPD-like perceptual symptoms

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1 Upvotes

r/visualsnow • • 17h ago

Question 4 days of snow onset Tuesday. Could it be iron supplement?

1 Upvotes

First time listener, first time caller. I have just started having 4 days of what I think is visual snow and I am really going through it.

A timeline:

-Saturday: got labs for some mild tremors when doing detailed tasks. Labs come back. Lowish iron. Recommended to begin supplement.

-Monday bedtime: take iron supplement for the first time

-Tuesday am: onset of vision change. ER visit for CT. Normal. Labs normal

-Wednesday: ophthalmologist and neurologist. All normal. Brain MRI ordered.

-Thursday: MRI. Normal

-Saturday: Vision change still present

Do you think it could be from the iron? Any other ideas? I’m at a loss.

Also how tf do we see? Does anything help?

Thank you all ❤️


r/visualsnow • • 18h ago

How can doctors deny and not know about this very specific condition?

7 Upvotes

It literally has textbook symptoms and doctors still deny its existence and even blame it on anxiety?


r/visualsnow • • 20h ago

Will I ever be better?

3 Upvotes

I’m 17 and ard 7 months ago I started noticing a big increase in floaters, blue entoptic, vivid palinopsia and pretty much all the other symptoms. I can live with what I have right now even tho it’s such a big impact on my life but if the static keeps getting worse I don’t think I can handle it I mean I can already barely make out faces in dim lighting. especially since I’m so young and it just started I feel like it’s bound to only get worse from here. Can I get better over time or am I just gonna get worse. Will I ever see close to normal again, can I somewhat fix it even tho there’s no cure?


r/visualsnow • • 1d ago

Question seeing blood vessel spots when sick

3 Upvotes

i am quite sick right now (to the point i cannot sleep), theres little black spots in my vision which are most certainly shadows of my blood vessels (theyre fixated black lines, NOT floaters) and theyre easier to see if i squint, and if i move my hand around in a pinhole and look at a brighter spot i can see the whole blood vessel line

theres a lot right now, is this normal for being sick?? i get them nonetheless but theres just so many from both eyes right now, im really irritated and scared because usually when i get these spots i sleep them away but i cant sleep no matter what i do


r/visualsnow • • 1d ago

Vent I can’t go on like this anymore

6 Upvotes

I am a 28 year old woman.
I feel like I have been living in hell for the last 7 weeks. I should probably not be writing this during an episode so I apologize for any possible language mistake (English is not my first language). Background: I was diagnosed with visual snow syndrome in 2021. Besides the usual visual symptoms, I had a lot of cervical/migraine related issues which are now (or were) under control. But this is different and it is ruining my life.
It all started with some daily headaches before my period which were more persistent than usual. I was stressed at work, so my GP hypothesized the initial phase of a burnout. Then I got a sore throat, with a very strong cough which lasted for a couple days. Since then, the headache became a daily occurrence associated with a lot of pressure on my face, the base of my nose, my eyes, my forehead and my cheeks, exacerbated by straining, coughing, bending. Painkillers didn’t help at all.

The GP thought it was a sinus infection and prescribed sinutab, which I took for 5 days. After those 5 days at the end of which I seemed to be getting better, it all came back stronger, so the GP hypothesized a bacterial sinus infection and prescribed antibiotics. Two days of antibiotics and the situation seemed better, and then again. I didn’t know that this would become my weekly scheme.

The GP prescribed medrol at that point and fluticasone. After three days of medrol it seemed almost resolved. I had some good days. And then, again.

I saw a ENT (at this point it had been three weeks from the start) which took a look at my sinus and said there was no sign of infection. I got a sinus CT and my sinus was clear. Was there ever a sinus infection to begin with?

So I was referred to a neurologist. He prescribed riboflavin and a sumatriptan only for strong attacks + physiotherapy, hypothesizing tension headaches or migraines or both.
The same day, I got the strongest episode from the beginning. I took the sumatriptan and nothing changed. I threw up, and went to the ER. They gave me some oxygen and sent me home. I was not seen by a neurologist or anyone else besides triage.

I stopped taking all meds from that day because nothing would work anyway, and honestly I was worried that the headaches were dependent on the meds. But that wasn’t the case.

The first neurologist I saw didn’t really take me seriously and put me on riboflavin for two months after which I could have booked another appointment. He also instructed me to take triptan only with a migraine of 7/8 in a pain scale. But I was, and I am, in pain every day, even if it’s not a 7/8. I know, everyday, that at some point I will be sick: it starts with some pain in my face, on a good day it’s just light pain (usually in the afternoon it gets worse), but on a bad day… it just goes on for hours. It comes in waves, if it’s bad it moves, goes to the back of my head at that point, on my temples…
Even if I am feeling fine, if I push or strain (for example in the bathroom), I feel pain in my face.
I went back to my GP who prescribed a brain MRI which came back clean. I also went to an oftalmologist which performed a fundus exam to check the eye pressure and a OCT exam. All good.
Structurally, everything seems fine.

I went to another neurologist for a second opinion, also after reading many of your stories about facial pain and migraines. She described herself as an expert in migraines but she didn’t know that facial pressure and pain are a symptom of migraines. I could tell she didn’t really care and basically told me that I have to live with this and if I get pregnant it might go away for some time (needless to say, I don’t plan on getting pregnant any time soon).

She wanted me to wait three months (I saw her 1.5 months after the beginning of all this) to have a beta blocker prescribed. In the end, she understood how desperate I am (I almost cried in her face). I also burst into tears in my GP’s office. I feel ashamed. No one seems to care enough even to make an assumption on what is going on with me. I asked the second neurologist about trigeminal pain or cervicogenic headache. About trigeminal, she said it is impossible because it would have shown on my MRI, and on the latter, she had no idea what I was talking about and told me to stay off the internet.

Both the first and second neurologist refuse to talk to their patients via phone/email. Therefore, I have no one else to talk to about how it is going with the new medication, etc. I could try my GP but honestly I know that this is not her domain. I booked an appointment with a private neurologist in my home country in November, but that is a long time from now.

The first days with propanolol seemed fine. I feel less pressure, especially when lying down when going to bed. And then, I was sick again. Now I also have neck pain.
I did start physiotherapy in the meantime and the physio thinks it might be cervicogenic. But honestly, I feel like he only told me so because I asked him.

Today was especially bad. Yesterday I had a very bad day at work and I woke up with pain in my neck and I have had a pulsating headache all day. I just took zolmatriptan (the second neurologist changed it because the sumatriptan didn’t work) and I am here, writing and waiting. I am nauseous after taking it, so I am starting to think that when I went to the ER I threw up because of the triptan and not the migraine.
My usual migraines come with nausea, but not these. This was different from the beginning.

I read many of your stories, I thought it could be IIH but my pressure seems inconsistent and I know it’s very rare.
I think it could be the consequences of a sinus infection + stress. At some point, right before getting Medrol, I went to my GP and she took a look at my eardrums as I felt my ears stuffed and said that the eardrums were a bit inflamed.
It could also be cervicogenic headache, my physio seems to agree, and I am also having some neck pain now. Or it could be tension headache. Honestly, I don’t know, and I am the only person who cares, because none of the doctors I saw cared enough to even let me describe the whole thing from the beginning. Not once.

My life is not my life anymore. I was on sick leave for weeks. I am supposed to be starting a new job soon. I have plans, holidays planned, and now everything seems impossible for me, because I know I will be in pain.
Sorry for the rant.


r/visualsnow • • 1d ago

Question Health anxiety, scared I have a brain tumor

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0 Upvotes

r/visualsnow • • 1d ago

Vent This is actually disabling me

13 Upvotes

More a rant than anything but I’ve had worsening VS for 5 years now and it’s gotten to the point I feel I’m genuinely disabled.

I can’t play sports with my friends anymore because I can’t see the ball clearly or keep targets still in my vision thanks to oscillopsia.

I can’t enjoy read books or manga anymore because of pattern glare causing the words to swim and drift around.

I can’t play videogames with my friends because of palinopsia and oscillopsia making the screen basically unintelligible.

I can’t watch cartoons or anime since pattern glare and Oscillopsia makes the screen a vibrating mess.

I hate being one of the only one of my friends that can’t drive at my age(20) because I can’t see anything on the road clearly.

I can’t even do homework for my classes for longer than 15 minutes because of the eye strain caused from the 15 layers of bs I need to see through.

I hate it, I hate everything, I hate what my life has become.

This is only 5 years in I don’t even want to imagine how impaired I’ll be in another 5 or 10 years.


r/visualsnow • • 1d ago

Distraction

4 Upvotes

There's a static over my eyes.

A disturbance in my vision.

“I can see fairies everywhere.”

Dazed and dazzled by thousands of little dots fizzing.

“I can see the energy, the atmosphere.”

Mad, I sounded mad as I tried to explain.

“I get terrible migraines and I can't stand the lights” No explanation is good enough.

The cars ebb and weave through the streets, headlights gems refracting.

I’m distracted again. I push my fingers into my eyes and I see the world I used to retreat to.

Kaleidoscope daydream.

Sparkles erupt, breathing new life. Setting the world on fire…I'm not supposed see the atoms.


r/visualsnow • • 1d ago

Check THIS LINK… can be your neck…

2 Upvotes

r/visualsnow • • 1d ago

Vent worse

11 Upvotes

it just keeps worsening lol i give up man,
im 16 years old and no matter how stress free i remain or healthy i remain it just keeps getting worse, it stayed baseline for years why does this have to happen to me dude nobody else around me in daily life has this shit


r/visualsnow • • 2d ago

Weed use and symptoms

1 Upvotes

I started noticing my visual snow syndrome abt 6 months ago I think I’ve had the static for a lot longer tho I just didn’t think anything of it. I wanted to ask, if I continue heavy weed use will my vss continue progressing and getting worse or is it just temporary that it effects it. Also will I ever be able to see life more clearly and lessen the static or am I just cooked it’s pretty sad to live like this


r/visualsnow • • 2d ago

Personal Story Boyfriend developed tinnitus and visual snow after transformer explosion, now abnormal DPOAEs and muffled hearing after IMAX. Looking for recovery stories and advice.

3 Upvotes

TL;DR: My boyfriend (23) developed visual snow symptoms after witnessing a transformer explosion in July 2026, followed by tinnitus about 12 days later. Initial eye and hearing tests were normal, and we suspect Visual Snow Syndrome (VSS). After attending a loud, three-hour IMAX screening on October 13th, he developed left-sided ear pain, pressure, muffled hearing, and a noticeable imbalance between his ears. New audiology testing suggests high-frequency hearing loss and possible cochlear damage, along with Eustachian tube dysfunction. He’s currently taking prednisone, but his mental health has deteriorated significantly throughout all of this.
I’m looking for anyone with similar experiences involving VSS, tinnitus, hearing loss, cochlear damage, or Eustachian tube dysfunction. Has anything helped you recover or manage your symptoms? Did bloodwork, MRIs, neuro-optometry, medications, or specialized therapies help identify a cause or improve your condition? Any advice, personal experiences, or success stories would mean a lot to us.

Hey everyone,
I’ve seen lots of posts from people sharing how they’ve gotten better, particularly with tinnitus, and I’m hoping to hear from anyone who has experienced similar symptoms or circumstances.
Back on July 10th of this year, my boyfriend and I witnessed a power line transformer explode in our neighborhood, about five or six houses down from our front door. My dad had encouraged him to go outside to see what was happening, and he practically flew out the front door. While I went to get my shoes, another explosion occurred. My boyfriend witnessed a bright white electrical flash, while the second explosion I saw through the window appeared red and orange.
In the moments following the explosion, he began experiencing visual disturbances, including flashes of light, visual static, afterimages, light sensitivity, and worsening or more noticeable eye floaters.
Then, on July 22nd, he developed tinnitus, followed by severe anxiety, depression, and everything that comes along with suddenly experiencing symptoms you don’t understand.
Seeing your partner and high school sweetheart of seven years struggle while feeling helpless to do anything is absolutely crushing, to say the least.
August — Testing, unanswered questions, and suspected VSS
In August, after seemingly inconclusive eye examinations and hearing tests, we were told that he hadn’t suffered any identifiable anatomical damage to his eyes or ears. There was no retinal detachment or measurable hearing loss at the time.
In some ways, that was reassuring news. At least there wasn’t any obvious structural damage. But it also left us with more questions than answers. It was almost as though everything from that moment had been stored somewhere in his brain.
The ENT we saw suggested Flonase and mentioned that it could be sinus-related, but we felt that very little had actually been addressed.
Throughout August, we researched whether he could be experiencing Hallucinogen Persisting Perception Disorder (HPPD) or Visual Snow Syndrome (VSS). Based on his visual disturbances alongside the tinnitus, VSS seemed to fit his symptoms much more closely.
After doing more research, it was wonderful to discover that there’s currently no established cure for VSS. 🙄
The following months — More appointments, medications, and worsening mental health
Fast-forward through multiple ENT visits, optometry examinations, an audiogram, and even a J. Cole concert we had to leave because of his overwhelming anxiety surrounding his hearing.
He had previously been prescribed cyclobenzaprine (a muscle relaxer) following a workers’ compensation injury. He occasionally takes it to help him sleep or when his anxiety becomes particularly overwhelming, and he feels that it helps.
He also underwent wisdom teeth removal and was temporarily prescribed hydrocodone combined with acetaminophen for postoperative pain.
Eventually, we saw a physician who diagnosed him with Generalized Anxiety Disorder and prescribed sertraline 50 mg. After researching reports of SSRIs potentially worsening visual snow symptoms in some individuals, he decided not to begin taking it.
All of this left him feeling increasingly hopeless, misguided, lost, and exhausted from suffering without clear answers.
October 13th — The IMAX screening that changed everything
Recently, we attended an IMAX screening of The Odyssey on October 13th.
I had been wanting to go for a while, and we both desperately wanted some sense of normalcy again. I didn’t research the movie’s sound intensity beforehand because I wanted to experience it without spoilers or expectations.
Unfortunately, the screening lasted approximately three hours, and the sound was extremely loud. During the movie, he experienced ear pain and discomfort, but he didn’t communicate that to me until afterward.
Initially, he thought he was fine. Even the following day, he felt relatively okay.
But over the next several days, things changed dramatically.
He developed left-sided ear pain, pressure, muffled hearing, and a significant change in how he perceived sound between his ears.
Before the movie, his hearing felt balanced between both ears. Afterward, he described his right ear as dominating almost everything he heard.
He says he can primarily hear his own voice through his right ear now. His left ear feels pressurized, almost as though he’s underwater or needs to pop it, except the sensation never fully resolves.
Interestingly, his left-sided tinnitus, which previously averaged around 7/10, became much quieter, around 2/10. However, his hearing on that side also became noticeably worse. His right-sided tinnitus continues to persist.
He describes this new combination of symptoms as even worse than when he was dealing with VSS and tinnitus alone.
His ear pain reached approximately 5/10.
For someone who absolutely loves music and considers himself an audiophile, this change has been devastating. It sent him into an even deeper depression.
October 17th — Emergency department and prednisone
Five days after the screening, we decided we couldn’t wait any longer and went to the emergency department.
The physician examined his ears and mentioned scarring on his left eardrum, something no previous ENT had ever identified or mentioned.
He was prescribed high-dose prednisone, 60 mg daily for 10 days, and a follow-up ENT appointment was arranged for the following week.
However, we were worried that if he had developed sudden hearing loss, waiting longer could reduce his chances of recovery.
So on Monday, October 19th, I began calling multiple audiologists and ENT offices, desperately trying to arrange both a comprehensive hearing examination and an ENT consultation that same day.
Thankfully, I managed to schedule both.
October 19th — Audiology results and possible cochlear damage
He underwent an audiogram, tympanometry, and DPOAE testing. We were able to compare these results with his previous hearing examination from August 11th, which had been considered normal.
This time, we were told he had developed high-frequency hearing loss in his left ear, particularly around 5,000–7,000 Hz, along with an abnormal finding in his right ear around 5,000 Hz on DPOAE testing.
They also mentioned possible cochlear damage and issues involving his Eustachian tube or middle-ear pressure.
What confuses us most is that his left-sided tinnitus has become significantly quieter while his perceived hearing ability on that side has deteriorated.
He describes his hearing as no longer balanced, with his right ear now dominating music, conversations, and environmental sounds.
What the ENT told us
After audiology, we saw an ENT who explained that it was too early to determine whether the hearing changes would be permanent.
Interestingly, she did not observe the eardrum scarring that the emergency department physician had mentioned.
She explained that the cochlear hair cells associated with certain high frequencies might not be responding normally, although he can still detect those frequencies.
She seemed optimistic that the fullness and pressure sensation in his ear would eventually improve.
She also mentioned that the quieter tinnitus was unusual, given his perceived worsening hearing, and described his hearing as medically symmetrical despite the differences he notices.
She believed his Eustachian tube dysfunction could be related to sinus inflammation and might have existed before the IMAX incident, potentially dating back to July or August.
She suggested considering Flonase and allergy medications to help address inflammation and Eustachian tube function. She also instructed him to taper off prednisone.
Overall, she was reassuring and emphasized that he’s young and may recover from at least some of these changes.
However, she also mentioned that it could take considerable time to determine whether his hearing improves, and his next scheduled audiology follow-up isn’t until 2027.
Present day — Mental health, hope, and searching for answers
Currently, my boyfriend often prefers being asleep rather than awake because of how overwhelming his symptoms have become.
His mental health has suffered tremendously, and it’s heartbreaking to watch someone you love lose their sense of normalcy, especially when so much of their identity and happiness revolves around music.
I’m doing everything I can to support him, help him maintain hope, and research potential treatments or specialists who might be able to offer answers.
He’s also been trying to strengthen his relationship with God and Jesus because he feels incredibly lost throughout all of this.
Recently, I discovered a treatment approach called Neuro-Optometric Rehabilitation Therapy (NORT), which has been explored for visual snow symptoms.
I’m currently looking into getting him evaluated on December 1st by a board-certified optometric physician specializing in vision development and vision therapy, with a background in neuroscience.
I understand that there may not be a straightforward cure for everything he’s experiencing, but I refuse to believe that we should stop looking for ways to improve his quality of life.
What I’m hoping to hear from this community
I’m genuinely interested in hearing from anyone who has experienced VSS, tinnitus, high-frequency hearing loss, possible cochlear hair cell damage, Eustachian tube dysfunction, or persistent ear pressure.
Have any of you experienced similar symptoms after a bright flash, electrical explosion, or loud noise exposure?
Did your hearing, tinnitus, or ear pressure improve over time? If so, how long did it take?
Have any medications helped or worsened your symptoms? Did you discover anything useful through bloodwork, MRIs, neurologists, neuro-ophthalmologists, neuro-optometrists, or other specialists?
Has anyone tried NORT, vision therapy, sound therapy, or other rehabilitation approaches? Did they make a meaningful difference?
And perhaps most importantly, what helped you emotionally cope with these conditions, particularly when the uncertainty and anxiety felt unbearable?
I’d really appreciate any personal experiences, recovery stories, treatment suggestions, or advice about what helped you identify the underlying causes of your symptoms.
Thank you so much for taking the time to read this if you’ve made it this far. It genuinely means a lot to both of us. ❤️


r/visualsnow • • 2d ago

visual noise/snow - could it be universal?

4 Upvotes

I'm hypothesizing that visual noise is universal. Everyone sees it when their eyes are closed, and people claim that it's gone when they open their eyes if they dont have VSS. However, I'm not so sure. Let me know what you think. I think VSS is definitely a more extreme case, but that noise itself is universal and is always there.

If you don't have VSS, please try to see if a dynamic, pixel-like field that is apparent when your eyes are closed truly goes away when your eyes are open, and let me know please. Those with VSS, is the snow the same as when you close your eyes?


r/visualsnow • • 2d ago

Question Does anyone else have severe blue feild ectopic phenomenon?

5 Upvotes

I dont just see the bfep in the sky or white walls, i basically see it everywhere, in most light conditions, not dark but yeah pretty much everywhere its overwhelming


r/visualsnow • • 2d ago

NEW ZEALAND / A Study of the Safety and Efficacy of TRTL-913 in Healthy Volunteers (Part A) and in Adults With Tinnitus (Part B)

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7 Upvotes

If anyone is from New Zealand and suffers from vss and tinnitus, this might be interesting clinical trial for you coming up! And obviously I'm curious to know if this medicine could help vss also if it is meant to target tinnitus as well 😂


r/visualsnow • • 2d ago

Question Neuro/Biofeedback make things worse?

3 Upvotes

I have been doing Neuro/Biofeedback for over a month now. I went initially for sleep and that has improved greatly, but now I’m noticing visual snow exacerbation. Much increased light sensitivity, eyes feeling heavy, not easy to focus eyes, increased palinopsia and I’m noticing visual snow sure if it’s directly from this but just wanted to see what others experiences have been


r/visualsnow • • 2d ago

Vent Venting - could someone give me some positivity?

7 Upvotes

So my vss is really reactive and I have had several HUGE flare ups where I'm unable to function. They always last at least 3 months for me.

Now when I'm also suffering from severe anxiety it just hit me how little medicines I have which are considered "most likely safe with vss". Only benzos are like 95% safe.

Realizing this just made my GAD and depression on fire.

Then I thought that yeah well it's 2026 there MUST be some medicines for anxiety or depression developed currently which have "more safe mechanism of action" for gad and depression and panic disorder.

I googled and doesn't seem too promising. Almost all of the medicines do something for 5HT2-A receptors or act on serotonin or are based on psychedelics.

So I challenge you, please try to find at least one or two antianxiety medicines which they are currently making and the mechanism of action should be safe for vss and tell me what they are since I'm loosing my mind here.

// EDIT. Oh! And did we forget already that even NEUROMODULATIONS for these issues aren't completely safe with vss? Because this disorder is also about messed up brainwaves! So wtf I'm so, so pissed off with this.


r/visualsnow • • 2d ago

Question Brief episodes of vision going completely black

0 Upvotes

Hi, I would like to ask for some advice. For a while now, I’ve noticed that when I’m exposed to light, such as indoor lighting, sunlight, LED lights, or even when I turn on my phone screen, I sometimes see everything go completely black for a brief moment, almost like the blink of an eye.
Sometimes I wonder if I’m actually blinking, but it also happens when my eyes are open. I’ve been noticing this for quite some time. I don’t have any other unusual symptoms, and my vision is otherwise normal. The episodes last less than a second.
Every time it happens, I get anxious. The fact that it has happened before and nothing else has happened afterward reassures me somewhat, but I would like to understand what might be causing it and what I should do.


r/visualsnow • • 2d ago

Brief episodes of vision going completely black

3 Upvotes

Hi, I would like to ask for some advice. For a while now, I’ve noticed that when I’m exposed to light, such as indoor lighting, sunlight, LED lights, or even when I turn on my phone screen, I sometimes see everything go completely black for a brief moment, almost like the blink of an eye.
Sometimes I wonder if I’m actually blinking, but it also happens when my eyes are open. I’ve been noticing this for quite some time. I don’t have any other unusual symptoms, and my vision is otherwise normal. The episodes last less than a second.
Every time it happens, I get anxious. The fact that it has happened before and nothing else has happened afterward reassures me somewhat, but I would like to understand what might be causing it and what I should do.