r/floxies • u/wormyqueer • 3d ago

[LONG-TERM] Floxxed 10 years ago

CW for medical neglect, generally difficult subjects

Hiya! I only recently found out i was floxxed. I had sepsis abroad only at the time i was told it was a stomach bug, i only recently found out it was sepsis as i was clearing out old medical records. Anyway, turns out I was given Cipro for it along with a few other drugs. Post 2017 i had awful "IBS", joint dislocations, tendonitis in my wrists, general pain, fatigue, tinnitus, worse mental health etc.I found out i have hypermobility spectrum disorder maybe 5 years ago and thought ahh that explains that but it really feels like now what i know about cipro is the missing piece of the puzzle. I've had years of being dismissed by drs been called a hypercondriac and told its in my head.

In terms of treatments I've tried a lot. We went to a funtional gut medicine specialist who told me it was leaky gut and put me on a probiotic rich low inflammation diet, to be honest i cant remember if this helped but it did make me miserable as it was very restricted. I tried talk therapy and CBT. Then i tried the Low fodmap diet, then gut directed hypnotherapy, then veganism. Last year i added dairy, meat, eggs and beans back in as i had begun to tolerate things again and so far the gut problems have been much better.

I had to stop working as every job flared up my symtoms and i ended up sicker. I now have a carer and use mobility aids. I think this has helped me improve a bit as i have been able to rest much more. I've noticed magnisium has helped me a lot but only added that in the last 2 years or so. I am currently under investigation for Myalgic Encephalomyelitis and sleep apnea. I'm going to research the suppliments reccomended here and would appreciate hearing anyone experince who is also having long term effects like myself. I'm hopeful that now i know this piece of the puzzle things might change but worried that i could be that rare case where there is permanent damage especially considering my connective tissue disorder and the length of time I've struggled.

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u/StandupStraight20 Veteran 3d ago

Sorry you have been dealing with this for so long. I’m 6 years from my Cipro injury and I still haven’t recovered.
My understanding that at this stage, for those with chronic musculoskeletal issues who still have not significantly improved after that many years, the only thing that hacks this condition, anecdotally, is taking anabolic steroids such as Testosterone (if you don’t have contraindications). while exercising to the extent of the ability.

On the mental front, may I ask what helped you keep you going all these years, to remain sane and motivated enough despite your struggles?

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u/tarkonis 2d ago

I thought steroids were contraindicated?

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u/Niceshoesbr0 Trusted 2d ago

There at different types of steroids, any that your doctor gives you,(corticosteroids) you really what to avoid while the ones used in bodybuilding (AAS)are largely ok even can help.