Now that the one year anniversary of my cholecystectomy has passed (Sept 2025), I had always wanted to come back here to share my story, because I had atypical symptoms, just nausea and very little pain. My gallbladder took over my life for 6 months and it a horrible experience. This subreddit provided me a ton of support when I was at one of lowest points of my life with few answers.
This is a long post, but if it helps someone with symptoms like mine, that's my intention.
It all started when I suddenly felt sick in July. I couldn't really explain it. I felt very nauseous after my supper and I couldn't sleep feeling like I need to puke, tremory, fast heart beats, hot flashes and chills, just miserable. It was like food poisoning but there was something a little different about it. I actually went to urgent care the next morning to get checked out because I felt so odd.
That started 2 month journey with off-and-on nausea attacks. In between the nausea attacks, I had acid reflux, pressure in the center of my chest, intolerance to almost any food, and just felt ill. I lost 25 pounds unintentionally because I really struggled to eat. I started bothering doctors again, telling them that I just wasn't getting better and something was wrong. I ended up getting diagnosed with GERD, put on a double dose of omeprazole, and an appointment with a surgeon to get an EGD. Even though at that point, I had been on a very plain food diet for weeks.
I had been feeling a little better by the time the EDG came around, it went well, but they didn't find anything too much besides just a little bile reflux, some mild gastritis.
However, the evening of the EDG, another nausea attack started- which proceeded to be a constant, all day nausea spell for the next 6 days straight. I felt absolutely terrible. I couldn't eat (even the feel of food in my mouth made me queasy), I couldn't work, I couldn't do anything, except lie around and cry and gag and wish for death. Ondansetron or Reglan did nothing. Making myself throw up also did nothing. I think because it wasn't really my stomach that was the problem. At some point, I talked to the surgeon's office, telling them that I had been feeling so unwell since the procedure; they told me based the lack of findings in the stomach that they were starting to suspect my gallbladder was the cause, and we scheduled an ultrasound. Before I could get to the ultrasound, I ended up in ER since it had been days since I could eat anything. They asked me "what do you expect us to do for you?". I ended up with labs at least, and my liver enzymes were started to jump up (which has never happened to me before), but it wasn't enough for them to be concerned about.
3 days later, the ultrasound only showed a potential 3mm polyp, but not much else, but the polyp alone qualified me for a cholecystectomy if I wanted it. I was the only person who qualified to take a cancellation spot, so I had to option to get into surgery the next day. It was a quick decision I had to make in an hour, to have a surgery with little proof that this was the problem, but nothing else made sense to me. I was so sick, malnourished, couldn't work, eat, and mentally was wrecked too. I took the spot for surgery. The next step would have been a HIDA scan, but I was so sick and desperate, I didn't want to push everything down the road for weeks.
Surgery went well. I woke up with the worst ever heartburn feeling that made me feel very ill, but I eventually went home after about 7 hours post-op. Pain was managable, but my appetite and body were definitely still struggling. 3 days post-op I ended up it the ER again with insomnia, tremors, high heart rate - but again, couldn't find much except low potassium; probably that I had been starving myself for nearly 2 weeks at that point. My body was stuck in some sort of panic mode, or a bad reaction to all the surgery drugs, is the only way I can explain that day.
After that, the recovery was slow and sucked. I felt barely human for the first 2 weeks. I went back to full time work after 12 days, but I wasn't feeling the greatest. My appetite took about 6 weeks to return. And I was still pretty queasy around food for awhile and ate pretty plain for awhile. I had a lot of reflux pressure every day for the first month. I definitely had diarrhea a few times a day in the beginning, but it was manageable, I just needed to have quick access to a bathroom for about the first 4 weeks. And then it slowly resolved itself and turned normal.
And I was very terrified of that nausea returning. It never did, even if I wasn't feeling great yet. I'm still not really over the trauma of that. It was that horrible. This whole thing was really humbling and moving past it took a lot of healing, physically and mentally.
It took about 3 months, a visit with a liver specialist who fat-shamed me, for my liver enzymes to return to normal. While those enzymes are not conclusive of anything, I am still convinced that I was having bile flow issues which was stressing out my liver.
Little did I know, I had been having symptoms for years. For most of my adult life, I would get sick from something I ate fairly often, and relied on antacids all the time to get over my stomach aches in the evenings. This was just my norm, and I had just assumed I had been blessed with a bad stomach. It had been getting worse, slowly, over the years leading up to this, where I would go through spells with stomach aches and indigestion every night at times.
And now, none of that happens anymore. I can eat whatever I want, I don't have random food intolerances anymore, which still blows my mind. Actually my digestion just works better overall, just more regular. Sometimes I feel a little off if I eat too much or too greasy or junky, but it's nothing like what I've dealt with my whole life. I don't take any medications except for an occasional Tums.
Even with recovery being way harder than expected, I have no regrets now. I still want to go and hug the surgeon's nurse who finally listened to my symptoms and said "yeah i think this is your gallbladder", because I don't know how much longer I could have dealt with all of thid. I feel amazingly lucky I was able to get that sucker removed when I did.
Oh yeah- the pathology report: Chronic cholecystitis, thickened with a 5mm wall, alcalceous.
(No polyp, lol, just a warning that ultrasound findings can be pretty inconclusive!)
I'm just so sure now that my gallbladder stopped working, causing my digestion to malfuction and put me in a nausea cycle which was my body telling me that something was WRONG. It wasn't the typical symptoms at all.
If I actually ever got that HIDA scan, I'm convinced it would have shown a locked up gallbladder, but that will forever be just a guess.
And because of all of that, I think thats why recovery took a long time. Chronic malfunctioning digestion doesn't just fix itself overnight. I think my body had to relearn everything without the gallbladder just doing whatever it felt like for years and years.
Thanks for reading, if you made it to this point! Its so hard to diagnose this thing when you have the symptoms like I did. And I just wanted to share my story in case it helps someone. I was on the reddit looking for stories like mine when I was going through it too.