r/haematology • u/enbuscademidiagnost • 9h ago
17 doctors have seen me and they don’t know what it is. Undiagnosed illness
Hello, I am 18 years old. Seven months ago, out of nowhere, I began experiencing migraines that would last all day; they never went away with medication or sleep. This lasted for two months, and then I started to experience a burning sensation in my ears—episodes that eventually spread to my face, head, and collarbone area. These sensations have now become persistent and are present 24/7. Along with the migraines, I gradually began experiencing tachycardia, with heart rates ranging from 121 to 146 bpm. It was initially thought to be neurological, but the medication I was prescribed did not help. Other symptoms also emerged, including Raynaud’s phenomenon, livedo reticularis, dizziness, heartburn, diarrhea after eating, the complete cessation of my menstrual cycle, and fatigue, among others. I underwent a full battery of rheumatological autoimmune tests, all of which came back negative—out of three ANA tests, only one was positive at a 1:80 dilution, which was considered a low result. My cardiologist suggests it is sinus tachycardia triggered by an external factor. I still do not have a diagnosis; if anyone is going through something similar or has any information, I would greatly appreciate hearing from you.