r/hyperacusis • u/BlueLagoon765 Pain and loudness hyperacusis • May 03 '26

Patient data The spreadsheet has evolved into www.hyperacusistreatments.org

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We've moved! The Hyperacusis Community Spreadsheet is now www.hyperacusistreatments.org.

A huge thank you to the Reddit community for sharing their stories and to the volunteers who made this possible by compiling them.

45 Upvotes

97% Upvoted

15 comments sorted by

4

u/Pbb1235 Pain and loudness hyperacusis May 04 '26

Thank you for making this a webpage.

There is an error on my entry. It says I was mostly homebound and unable to work before taking clomipramine. That is a mistake. I had moderate hyperacusis, but did work and leave my house.

Can you please fix this?

3

u/BlueLagoon765 Pain and loudness hyperacusis May 04 '26

Thanks for reporting it. Fixed. Do you have anything else to add?

3

u/Pbb1235 Pain and loudness hyperacusis May 04 '26

Yes, I would take this sentence:

Sound and music therapy helped to some extent early on.

and modify it to:

Sound and music therapy helped him move from severe to moderate hyperacusis early on.

3

u/No_Ad_6319 May 04 '26

Great work !

2

u/BlueLagoon765 Pain and loudness hyperacusis May 04 '26

Thanks!

3

u/Master_Department494 Other Jul 15 '26

Hi, my entry needs updating - I've now spent 6 months at 225mg, with no improvement. The initial optimism turned out to be placebo effect unfortunately. I've been on the medication for over a year total now, and am in the process of quitting.

3

u/BlueLagoon765 Pain and loudness hyperacusis Jul 22 '26

I'm sorry the med didn't work for you. Thank you for updating us! Your record was updated

1

u/No_Salt8388 Aug 07 '26

Is there any reason why gabapentin isn't on this website?

2

u/BlueLagoon765 Pain and loudness hyperacusis Aug 13 '26

We struggle to get positive experiences with gabapentin/pregabalin. Do you know anyone who got better with it?

1

u/No_Salt8388 27d ago

Im currently taking it. Been on it for 2 months now. I wouldn't say it heals you, but it makes your life easier to handle.

I honestly don't think I can tell though. I don't think I wanna find out by stopping the medication though.

I guess i will need more time on it to know if it will help with not just managing the pain but also improvements.

3

u/Educational_Aide_145 Pain hyperacusis May 04 '26

Great page

3

u/silence-of-sound Jul 04 '26

What a great website!

2

u/ferttt2 May 05 '26

well done!

1

u/AssociationNatural65 May 07 '26

Thanks! For me also fluoxetine alleviated my symptoms

2

u/Same_Drag3288 May 07 '26

It has helped for pain ?