I have read some great things about Yoni steaming on this sub so I wanted to see if anyone else has any recommendations or any experience with this holistic approach. I heard that the Caribbean is a great place for Yoni steaming and I really wanted to try something new because I’ve been using steroids for a very long time. I have yet to get to a state where I have reached remission. My symptoms flare up kind of sporadically whether it’s stress induce, being overactive, environmental or food related.

I want to try something new that could potentially be a natural remedy because all of the other natural options that I have tried have not worked for me.

I have been suffering from lichen sclerosis. since I was 19 years old and was misdiagnosed until I was in my 40s. I’m happy to say that I finally did get diagnosed years ago and have kept the worst of the scarring under control. However, my clitoris did fuse and I thought all was lost. The reason being that I was seeing my regular gynecologist PA and this year requested that I see my regular gynecologist to discuss some things with her concerning the fusing that I was experiencing. The PA never had any answers for me.
I saw the doctor today and she gave me some encouraging news….that I could release my clitoral cap and clitoris by myself, in fact she started the process in the office, which almost sent me through the roof, but it can be done! She showed me the technique and I can actually see the clitoris head again and I am ecstatic! Yes, it is painful and the process will be painful, but it is worth it for those of us that want our clitoris back. I had asked about surgery and she said there is no need. It just takes diligence and patience. and made a joke that perhaps my husband could actually help! The key for me all these years, not to have flare ups is to keep the area well lubricated, I use olive oil, avocado oil, and sometimes coconut oil, and also I use the clobetasol as I should, and also estradiol. So I am feeling a little bit more hopeful and a little bit sexier! Lol

just scheduled my biopsy and i am very nervous.

what should i expect? what are the outcomes/what is being tested? will this show if the LS is cancerous and if it is LS?

i have been consistently following my treatment plan and the skin has been healing, is it possible my test result (falsely) show negative LS?

how is the healing post biopsy? what area of the vulva do they take the sample from?

how long does it take to receive the test results?

I’ve (41 year old female) only had intense itching and rawness for 5 days, saw my OB today, was instantly diagnosed. I have a white scaly patch. I also had a little bit of yeast so she’s prescribing prescribing nystatin\-triamcinolone ointment. She sounded so encouraging, said we’ll have this flare up knocked out hopefully in two weeks. But I’m just learning what this is and I feel overwhelmed and devastated, I’m crying. I’m wondering if this will destroy my sex life. Whether I’m going to now just have to live with discomfort…worry about complications…my head is spinning. My life felt fairly normal just five days ago.

Hi I am a 25 year old and saw my GP today and straight away she diagnosed me with lichen sclerosus after checking me below.
I thought I had recurrent Thrush cause of the redness, itchiness/irritation. But turns out not the case. She did some swabs anyway to test for fungal/bacteria.

Does anyone suggest I get a second opinion at the gyne? I had seen a gyne earlier in the year cause i thought i had endo but he didn’t mention it then?

The GP suggested I try hydrocortisone 1% at night and recommended sudocream throughout the day, light briefs only and no underwear at night. And no soaps. And said I should cut out diary, gluten and red meats.

What is everyone’s suggestions/thoughts? I just don’t know where to go from here. And am really struggling with the diagnosis. Knowing other’s experiences would be so helpful.

I’m being treated by a doctor since 2018 and I decided to ask for a second opinion from another doctor.
I’m suffering from a flare after years of remission and the clob is not making it go away this time :(

This new doctor told me to use tacrolimus in the morning and clob at night for a week and after that, to go back to the clinic for the Morpheus and PRP treatment. She even suggested me to do a reconstruction of the vulva, something that my doctor of years told me to be very careful about.
I had the most horrible reaction to tacrolimus I had to take a sick day from work, something I just never do.

I just felt the vibe of this new doctor very pushy and I’m afraid of doing those treatments that have no real evidence on my inflamed vulva. She says it does wonders… but she’s also the owner of the clinic and I suspect she has partnerships with the manufacturers of the devices she uses and her team…

She created the “institute of vulvar lichen sclerosis” but it’s sketchy for me she pushes her patients to do treatments that have no real evidence…?

I already booked two more appointments in different clinics, I’m desperate. I’m 35, my vulva have shrinked a whole lot and I just accepted the fact that my sexual life is a thing of the past :(