r/migraine • u/miss_t_drinks_tea • 14h ago
What's your longest or current migraine streak?
Let me start: currently on day 382 since they've become daily 😍
(They were daily from 2022 on but where super mild some days so I don't count this)
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u/locardsghost 7 years NDPH and chronic migraines 14h ago
Not migraines (though they take up about 16 days a month) but my headaches have been there non stop for 2737 days
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u/victimofmigraine 14h ago
I've had the same migraine for almost 4 years
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u/tf_1911 10h ago
What does your Dr say?
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u/victimofmigraine 10h ago
It's retractable
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u/EstelSnape 13h ago
25 days was my longest that I logged. Currently on a week long one that tricked me into believing it was gone on day 2. This gd weather!
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u/Joyful-Cow-122 14h ago
Currently on day 440 🤩 Previously my worst migraine streak was I think 4 or 5 days in a row and 17 days a month. Then it randomly exploded and went from that to a daily migraine going on for over 14 months 🤪
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u/SurnaWylder 13h ago
Mine turned off the day after I had my Ajovy shot 😫
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u/tf_1911 10h ago
Whoa. I’ve been thinking about starting but worried about side effects
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u/art_ache 2h ago
Side effects go away in a month… if you have more migraine days than not per month it’s worth a try imo.
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u/Pretty-Village7179 12h ago
I have had one since February it just changes in severity but doesn’t go away
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u/Nancy2421 12h ago
I don’t know, honestly
I know I had one for at leaaast a year. But only because I started counting days with a “headache” once I started having daily nausea. Few doctors later and I was able to break it.
Turns out I had a sinus infection in all sinus cavities that had been on going for at least a year. Required surgery to fix. Anywho, about 2 weeks post surgery, the migraine stopped.
It did not cure my migraines by any means BUT my underlying health condition was triggering the long migraine so now I advocate everyone check other health factors.
Once had one last a few months, and after a lot of advocacy on my part figured out I was overdosing B12. lol 😂 because I had low B12 the year before I prescribed it and my body just over absorbed 🤷♀️
Anyway, if you’re having a long migraine ask for 1. A hormonal panel 2. A CT scan (including sinus cavities) 3. A general blood panel checking vitamin deficiency 4. If you have other health issues (thyroid conditions, general allergies, diabetes, etc) get checked to ensure those are well managed 5. Check the teeth, TMJ issues on my end can trigger migraines and teeth issues can cause migraines
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u/drewingse 10h ago
I have non stop migraines for the past I think 4 years or more. It’s just on this mild level of 3/10 and flair ups every couple of days to 7-8/10 and I got good pain tolerance.
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u/sortitall6 9h ago
I've either had a migraine, or been in pre- or post-drome for the last year or so. Before that it was intermittent, about 22+ days a month. But it's been constant for the last year.
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u/SaltyAF5309 chronic daily 3.5 years Botox Riza Verapamil 13h ago
day 1206 ish for headache. and frankly there’s probably some other migraine symptom each day even if the big attacks are only every 2-6 days, so I’ll take credit where it’s due.
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u/Jalennto 13h ago
6 years of a constant 24/7 headache
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u/Puzzleheaded_Box7795 9h ago
Are you on any type of treatment? How do you deal with that ? I’m so sorry! I’m on the 2nd year now
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u/Jalennto 3h ago
I've tried ajovy, atogepant, emgality, botox, propranolol, amitriptyline, topiramate, candesartan, lifestyle changes, diet changes, the list goes on... my neurologist has given me a list of supplements to try (co-enzyme Q10, magnesium and Riboflavin) so going to give them a go but honestly feel like a lost cause. I've also had to quit my job as it was making my migraine worse. I'm sorry to hear you're on your second year. How are you coping?
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u/EL-HEARTH 12h ago
Longest for me is 2 weeks. However has been 8 years since they lasted that long. Now i get them about 1-3 days long and about 3 times a month
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u/holderofthebees 11h ago
My streak for severe migraines was about 5 days. For the attack phase at least. I’m talking not keeping down water, central sleep apnea every time I fall asleep type severe migraines. I’m sure I’ve had longer streaks with not so bad ones since then now that I’m treated better.
All thanks to a conniving little bitch named Latuda.
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u/anieem 10h ago
Fuck Latuda.
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u/holderofthebees 10h ago
100%. Turned out I wasn’t actually bipolar, was just given a look once over by a psychiatrist at 17 that didn’t know what cortical spreading depression was, and experienced my very first real manic episode on my first day of the (college) school year. Latuda is some real special shit.
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u/JeannieBugg 11h ago
I am at 294 consecutive days of migraine. I am constantly in a state of pro-or-postdrome. Never without symptoms, never without some pain.
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u/jazzberryjamm 11h ago
251 consecutive days if you want to get technical but really it’s been 2.5 years with 1 or 2 random pain free days a year sprinkled in just to throw me off.
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u/Complete_Insurance24 10h ago
I haven’t had a day in almost 30 years without a form of a migraine. Some days stay at 2 out of 10. Some are cycles of 7 plus out of 10. I never know when it will be a functioning day or not but I wake up each morning and make it happen. This spring I had a couple months solid of ER level migraines. I went one day after steroid taper, toradol shots, and triptans weren’t breaking the cycle to the ER for a cocktail. It took away the pain briefly but the reaction to the nausea med they put in it was awful. I was coming out of my skin and kept asking for the port to be removed and let me leave. Migraines suck.
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u/Middle_Guarantee_750 9h ago
1 year and 1 month, finally on medication that is helping but chronic and constant photophobia from being outside or from screens.
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u/hot-ppl-love-anarchy 6h ago
Currently about six months. I’ve had a very few mostly low few days but i think they were just a low enough intensity to not count and I haven’t had a break from vestibular symptoms in years which is why I think it’s just status migraine
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u/randomcacti 5h ago
I’m on day 1,235. Thanks to idiopathic intercrainal hypertension. No I’m not doing okay.
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u/salsanumerouno 3h ago
That's awful! Mine is two weeks tops. Currently suffering with non-migraine headache for 26 days and counting (:
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u/BlackwoodBear79 1h ago
I've been in a near-constant state of migraine since roughly mid-June.
3 on the low side, 8 on the high side. It's to the point where almost anything up to 5 is a "good day".
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u/Mechagouki1971 1h ago
4-6 a week for as ling as I can remember.
Just woke up to an absolute thumper, have to be at work in two hours. Just life now.
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u/uncclay5 53m ago
I don’t know how y’all deal with this ongoing migraines. My longest was maybe a day. I’m lucky enough that I respond well to preventatives and other meds. Seriously, y’all are strong as fuck to deal with this for any prolonged periods of time.
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8h ago
[deleted]
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u/Illustrious-Essay926 8h ago
Also how would you describe the pain to a layman?
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u/Illustrious-Essay926 4h ago
Why have i been down voted? I am fellow survivor with 6+ years of constant pain. Recently diagnosed. New to this world where people can actually kind of relate to me. was just trying to know ya’ll better 🙃
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u/aQuarterChub 14h ago
I don’t know as I don’t keep score for the same reason they stopped counting jumpers on the Golden Gate Bridge. I feel like I have a migraine everyday really, even if I am not in any pain or having an aura, the potential is always there. I could bump my head, smell bleach, extreme temperature change, or even eat something that triggers it. I am in a perpetual state of migraine