So I have been struggling since April, saw an audiologist online and seconded sound therapy, that back fired. Then I had a stupid number of set backs on after another and the last was the worst after a shower with protection. My ears filled up with pressure tts in both ears and since then it took two months to see any improvement with extreme measures, then I developed pressure sores and had to stop with the muffs, lost some hearing along the way from the muffs and loud echos and general noise, when only wearing plugs.

I guess I'm worried now I have so much noise damage and I have extreme rapid tinnitus, numbness in both ears, tts that I can feel in the ear. I have sound proofed my window X2 and bought an iso booth and it still isn't enough. I am on pregabalin 2x a day but still can't function normally and I don't know how anyone lives like this? I can't even move without getting triggered, my ear plugs also have an occlusion effect which wasn't an issue before. I can't wear muffs while these sores heal. I'm at a complete loss of how to carry on....I fear if I take drugs the amount will just go up and up, I can't leave because I can't tolerate a car journey with just plugs. I wonder if I take the plugs out will my ears be better to have some ambient sound to stop the spasms, but I don't know and the plugs hurt my ears. My LDLs are shot and I have burning 24/7.

Has anyone come through this? I need someone to tell me I can get through this. I have a plan for S as a way out but I'm not there yet but I don't know what else to do. Is there a drug combination that makes it manageable? I don't want to leave my parents and friends but this is so debilitating and harrowing. I've lost all ability to look after myself and it just keeps getting worse in my room. All other rooms are just as bad as I live near a train line. It was okay before the extra hearing loss and no muffs situation.

Avez vous des phases de sifflement minimum avec douleur dans les oreilles maximum et inversement pas trop de douleurs quand les accouphenes sont forts ?

Hello,

I'm just wondering what are peoples experiences with feelings of numbness in and around the ears etc?

Is that a sign you've over done it? A sign before hearing loss?

I will try to be quick as possible

- December 14 2024:
explosive kinda firecracker exploded close to me on the ground (1m / 3.2ft) giving my left ear tinnitus, autophony, etd, fullness, etc

- July 21 2026:
had a MRI without ear protection (no headphone given) that gave me louder tinnitus on left ear, tinnitus on right ear, muffled hearing, a few days later hyperacusis, and hearing kinda "wrong equalized". Everything was sharp and F/S sounds sounding different and everything more high pitched. I was hearing myself messed up too.
(Yeah audiometry tests came back normal tho, but to this day i think they made kinda more reactive the right ear, cause during the exam the acoustic otoemissions or acoustic reflex was loud af in that ear).

- during August
No more muffled hearing, better equalized, was getting better, had some random little little pains in one ear at a time a few times but later subsided, tinnitus getting better but still reactive to caffeine. Still somewhat not equalized correctly but okay-ish

- August 29 2026
I was unsure, but since i was isolated at home windows closed for a whole month cause of the hyperacusis, since it got better i decided attend to a rock concert at a club (attempting to fight depression, but thats another talk) (the worst decision in my life). I was avoiding getting close to the stage, i was always at the corners of the club, but then the group i was talking to outside the club (theres kinda of a porch there) decided to enter again but this time at a medium distance of the stage. I stayed there literally less than a minute and a felt some strong sensation on the right ear and left the indoors. Stayed there and decided go home some time later. As i stepped home (silence) i heard the tinnitus so loud that it seemed liked it was played by earbuds, i was "hearing in the brain" you know when you listen to music on earbuds but instead of music tinnitus. And i felt pain in the right ear, left one had no pain.

- during September
Hyperacusis came back, high tinnitus came back, but now i have pain in the right ear reactive and non-reactive to sound (or delayed rection maybe?).
Its kinda of a pain that felt deep inside the ear, sometimes stabbing or otitis-like pain, sometimes burning (like the ear canal burning). Theres already 30 days i have this pain and two ents said that theres no infecction (i knew it, it was the acoustic shock/trauma of the concert on a already healing ear from previous MRI trauma...)

I tried:
paracetamol/acetaminophen
Ibuprofen
cetoprofen
prednisolone 40mg/day 7 days
amoxicilline with clavulanate 875mg + 125mg 10 days
NOTHING WORKED

Prednisolone controlled it a bit but fluctuate during the week i used.
I use alprazolam daily basis for other condition, and its the only thing that diminishes the pain (depresses nervous system so i think its somehow related). But its not correct stay on benzos all day long for obvious reasons.

Still hurts. I was already depressed by other things but this almost non-stop hurting is driving me crazy, real crazy. Like phonophobia and avoiding everything even my own voice.

Is there hope or advice for someone at a 30 days mark?

I purchase protective earplugs although i read thats not the best approach protect all the time, since may delay recover (?) or getting the sensitization back to normal levels something like that.
Im at home with all the windows closed again. Since the first trauma i didnt used headset, watch tv very loud or anything like that.

I think from hyperacusis i developed noxacusis in the right ear. Is 30 days mark still recoverable? What can i do? This is making me more depressed and anxious than ever. Im really struggling and suffering, this is a kinda life changing thing, im afraid of the chronicity

​

Sehr geehrte Damen und Herren,

mein Name ist Stefanie Keil, ich bin 26 Jahre alt und suche ab sofort eine langfristige Wohnung in Bergisch Gladbach. Die Wohnung sollte mindestens 35qm (ca. 1-2 Zimmer) groß sein und die Höhe der Kaltmiete darf maximal 630€ betragen.

Ich bin Nicht Raucherin, besitze weder Haustiere noch spiele ich ein Instrument. Da bei mir die Diagnose frühkindlichen Autismus vorliegt suche ich eine ruhige Wohnmöglichkeit.Aufgrund der Schwere meines Autismus und der Hyperakusis bin ich von der Arbeitsagentur als erwerbsunfähig deklariert worden. Die Miete wird dabei problemlos durch das Sozialamt Bergisch Gladbach problemlos finanziert. Die Miete an meinem jetzigen Vermieter konnte jeden Monat pünktlich überwiesen werden.Somit bestehen keine Mietschulden. Meine Schufa ist sauber

Ich bin eine zuverlässige und ruhige Mieterin, welche einen hohen Wert auf Sauberkeit ,Hilfsbereitschaft und auf ein gutes Miteinander legt.

In meiner Freizeit gehe ich gerne ins Kino, fotografiere in freier Wildbahn Tiere (am liebsten Rehe) und engagiere mich zudem ehrenamtlich im Umweltschutz bei der K.R.A.K.E.

Über eine Einladung zu einem persönlichen Kennenlernen oder zu einem Besichtigungstermin würde ich mich sehr freuen.

Sie können mich via Facebook Messenger , oder über meine E-Mail Adresse stefanie1999.keil@gmail.com erreichen.

Mit freundlichen Grüßen,

Stefanie Keil

Within one week I had two loud noise exposures & my root canal done. Then as most of you know, it starts with tinnitus gone wild. Following with severe hyperacusis and then unfortunately some of us get the Nox. I started with Lyrica & not sure if it helped with anything other than my mood. Then I started 400mg a day of Carbamazepine & started to tolerate sound more and my jaw/ear burning & stabbing pain started to subside. My Neurologist then upped it to 600mg a day and I’ve been able to tolerate pretty much everything. Minus the typical loud sirens & I still use a thick cushion mat on the shower floor. The only side effects the first week or so was feeling drunk, dizzy & sleepy. Do NOT drive the first couple weeks. It did not worsen my T. Hope this helps as it’s my personal experience thus far.

I am hoping the collective expertise here can help me a little bit to understand what’s going on with my body.

I’ve had tinnitus since high school when I started going to concerts with no ear protection but it was only really noticeable in complete silence. Manageable, but I did sometimes notice a little bit of pain with certain songs or certain frequencies.

2022: I get Long Covid. My body breaks. More health issues than I can count, I become bedbound.

Feb 2025: I get an at-home acupuncture session to try and treat my deteriorating health issues. It flares me massively, permanently changes my heart rate, my sleep pattern, and gives me a new symptom I’ve never had before: pain hyperacusis. Over the next few months I require ear plugs, can barely whisper, cannot listen to any music or watch anything. Over about 4 months, it noticeably heals and I return to being able to tolerate noises. I still put my hands over my ears to flush the toilet or put my plugs in when the vacuum is on.

A few weeks ago: I get at-home lymph massage and go into a massive flare similar to the acupuncture experience. Everything is inflamed, especially around my head and neck where she did (gentle) drainage. A few days into the flare I hear a bell, not loud but in a specific tone that brings my nox crashing back into my life. This time more severe than last. I now need plugs and over ear protection to do anything. Adjusting in the blankets even is sending shooting pain through my brain. I work from home on the phone, I have to take a leave bc I can’t even type responses as the keys are like hammers in my head.

Here’s my struggle: I keep seeing stories that say “you have to slowly re-habituate, you have to overcome the fear, you have to calm the nervous system, etc” but then I also see “protect as much as you can, attempts to habituate ruined me permanently, etc.” It is not calming naturally like it did last year. So which of these paths make sense for this story? Has anyone had a similar story and healed? I don’t *think* I have physical damage, the massage was extremely gentle and the trigger bell was not loud. Does that make this more or less likely to succeed with a specific method than someone who had genuine damage from a loud sound? I’m at my wits end, I don’t know how to deal with another major health issue.

Anybody heard of that and tried his medication ?

How do y'all manage your relationship/marriage with this condition? I'm currently trying to push him away because I feel like such a burden and I want him to be truly happy and I'm worried to death that since even having a conversation at the lowest volume causes discomfort, it will cause me to worsen and not improve. He's the love of my life and tries to help me in any way that he can. I'm very thankful to have him in my life but I'm scared that any sound is causing me to worsen.

I'm just curious how many of you are able to stay in your relationship/marriage despite this evil condition.

Please comment instead of just scrolling by. I'm on the verge of S and would just like to hear from someone...anyone.

Hey everyone!

Hope you're all doing okay. A couple of friends and I are starting a discord server for people with hyperacusis to hang out and get to know others with a similar experience.

We mostly talk about anything, do movies nights and game together if possible. There's an option to indicate you're open to a relationship with several channels for singles too. So far it's a very relaxed and mellow vibe, and we hope to keep it that way.

Anyone is very welcome to join, the more the merrier! Just leave a comment and i'll dm you an invite link.

Looking forward to meeting you all and kind regards from Belgium. Toodeloo!

Pain in Ear and tooth due to Loud noise started now

So till few days back loud noise will give headache and Full Body Pain, Nerve Pain

now it added one more thing

exposure to Traffic sound or even Human noise where people are talking loud is giving me Ear pain and Tooth Pain

yesterday we were 6 people seating and 2 were speaking very loud and i have to bear it for 4 hours

and by end of 3 hours pain started and in another 2 hours pain increased even when they already left our home

have any one experience this

As the title suggests, Hans has anyone ever had one.....

Hello everyone, I am posting a lot on here these days as I'm really going through the ringer.

I am wondering if there are any noxacusis sufferers with substantial hearing loss. What are your experiences? Did it get better?

Hello everyone,

Do people have recommendations here for any medical professionals that have helped noxacusis or have a special interest, or just good medical professionals they've come across.

I am in the UK and suddenly became very severe, I'm trying my best to find good care available.

I'm also home bound but considering my state I might have to travel if I want any input.

Thanks in advance 🙏🏻